Brand new in epilepsy!

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leaodamontanha
New Member


Date Joined Oct 2009
Total Posts : 1
   Posted 10/16/2009 7:39 AM (GMT -7)   
Hello everyone, I am a 35 years old, male. I had my first seizure when I was 03 years old, after I fell down from a chair and hit my head. My mom took me to a neurologist, he made a lot of EEGs and they were all normals. I don't have any history of epilepsy on my family.

Until the last month I had a life free of seizures..... I never took any medication and a 18 months ago I had another one (tonic clonic seizure). The doctors in Brazil, when I was living, told me that I was fine and that it was caused by stress, that I wasn't epileptic or need any medication. Soooo... a one month ago I had another seizure (TCS) and started to cough out blood! Like three glasses of bright, and intense red blood!

The doctors did a lot of exams in me: MRI, CATscan (lungs and brain), Xray, TB, HIV, EEG, etc..... They said that they found an abnormal activity on my EEG what suggest a primary generalized seizure, what meaning that I will have to take the medication for alll my entire life (They told me this). They put me on Keppra 500 mg, twice a day. I was feeling weak and tired with Keppra and I lost almost 05 kg, but I was doing fine! Playing sports, eating well, taking classes, having a very active social life.... Of course, I stop to drink, i started to be careful with my sleep time, etc... A one week ago, after a party (without drinks, but with a lot of dance!) I had another seizure and I coughed out blood again (The same pattern that I had in the last time!) . The doctors did a lot of exams again and didn't find nothing abnormal. They increase my dose of Keppra for 750 mg, twice a day, but now I am feeling very insecure. Can the medication really control the seizures? How will I know that my seizures are under control? Should I expect a normal life? Is it worst in the beginning? A friend told me that I am taking a small dose of Keppra? Is it true? Well I have a lot of questions, but now I am feeling more comfortable cuz i can share my concerns with people that face the same situation.

missyo
New Member


Date Joined Sep 2008
Total Posts : 14
   Posted 10/19/2009 4:57 PM (GMT -7)   
Hello, I am sorry you are going thru this now.  I am 50 yr old female diagnosed at 35+.  I have complex partial seizure w/probably 6 or so grand mal seizures.  I take 600 mg Topamax + 400 mg Lamictal XR.  I have been on many different medications over the years.  Sometime you may go thru this also.  Neurologists may have to experiment to see what works best to control your seizures.  I took Tegretol XR for the longest period of time 9 yrs but stopped because of side effects.  I am doing well now.  I could not take Keppra because of side effects.  Ask lots of questions of your doctors.  Do exactly as they say.  If you are not happy with your doctor or don't feel comfortable don't hesitate to get a second opinion.  I have had many different drs over the years, but I moved from 1 state to another.  In KY I had several different neuros.  I love my neuro here in VA.  I don't know where you live, but you do what is best for you.  All things will work for your best.. Blessings, Missy
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