Since my appt with the Rheumatologist this week, I've been thinking about
what he's told me. He mentioned that the "spells" I have could be seizures. I've been told this time and time again, but when I have an EEG study, it's been normal. Why? Because I never have a freakin' seizure during the test!! BUT, there have been two times where I did have a spell and the seizures were shown on the EEG, so at least I know I'm not crazy. I've been able to find out what my triggers are: hunger pain (happens daily), lack of sleep, extreme stress, and strenuous activity. The spells are strange, here's what I go through during an episode on an almost daily basis:
(Keep in mind this is all on the left side of my body only)
-Temple pain, usually throbbing
-Eye pain, usually throbbing (connected with left temple pain)
-Eye Fatigue, feels tired and gets small
-Whites of eyes turn yellow or pink
-Arm pain, shooting or stabing usually
-Leg pain, shooting or stabbling, sometimes throbbing
(Basically my entire left side has pain)
-Unable to think properly, can't get words out
-Extreme dizziness, head bobs around
-I am able to hear and understand everything
-Sometimes it feels as if someone has picked up my left side and dropped it down, if that make any sense. I feel the left side of my body lift up and then back down and it happens very quickly and only once.
I have tested my blood sugar to see if that is what is causing the spells, since they happen when I get hungry, but my levels are between 77 and 90, not at a level for a typical hypoglycemic episode. I must eat between 2 to 3 hours to keep from having a spell, but I travel in my job and not always able to eat that consistently. Does this sound familiar to anyone?
Fibromyalgia, Reynaud's Diseasecocktaildizeaz.blogspot.com/