DIFFERENT DOCTORS THEY UNDERSTAND NON-EPILECTIC SEIZURES

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realife
Regular Member


Date Joined Oct 2009
Total Posts : 77
   Posted 11/6/2009 9:12 PM (GMT -7)   
I read alot of the comments about psueodo-seizures  I was diagnosed in 2004, I just want to know anyone out there that lives in Ohio or even 5 yrs from Ohio know of any good dr. that really understand these seizures and don't think U are having them on purpose. If U know of any please let me know. I have to figure out how to put my email and stuff on my profile. redface
 
 
 ...hi tjere go to your control panel and to edit profile i believe you will hv success in adding email n other info yeah lyn

Post Edited By Moderator (Howlyncat) : 11/9/2009 1:36:43 PM (GMT-7)


Stella Marie
Veteran Member


Date Joined May 2005
Total Posts : 601
   Posted 12/11/2009 10:25 PM (GMT -7)   
There are several good teaching institutions in Ohio. One of the leading neurology and epileptology departments is at the Cleveland Clinic. However, Ohio State and University Hospitals also have noted epileptologists. I am not familar with the Cincinnati area. Your can go online and review the rankings of the different hospital departments and subdepartments in Ohio.

Good luck.

Stella Marie

 Moderator for Chronic Pain and Epilepsy

Rare neurodegenerative /movement disorder called “Multiple System Atrophy”.  Mobility issues,, neuropathic pain,  spasticity, central apnea, collagenous colitis, joint and body pain, swallowing and respitory  involvement,  Implants: intrathecal pump  & neurostimulator.  Extra features: O2 & wheelchair

 


realife
Regular Member


Date Joined Oct 2009
Total Posts : 77
   Posted 12/12/2009 10:13 AM (GMT -7)   

Thank you Stella Marie,

The Cleveland Clinic is the hospital that diagnosed me they are one of the best in Ohio, but the doctors where I lived have never heard of it and don't undestand it, even the doctor that sent me to Cleveland, and read the results

 

      Thank you for you information though


Stella Marie
Veteran Member


Date Joined May 2005
Total Posts : 601
   Posted 12/13/2009 2:04 PM (GMT -7)   
Did you go to a neurologist or an epileptologist? Epileptologist's specialize in seizure disorders. A trained epileptologist should be able to help you diagnose your problem.

Stella Marie

 Moderator for Chronic Pain and Epilepsy

Rare neurodegenerative /movement disorder called “Multiple System Atrophy”.  Mobility issues,, neuropathic pain,  spasticity, central apnea, collagenous colitis, joint and body pain, swallowing and respitory  involvement,  Implants: intrathecal pump  & neurostimulator.  Extra features: O2 & wheelchair

 


Wotan
Regular Member


Date Joined Jun 2005
Total Posts : 462
   Posted 12/13/2009 7:47 PM (GMT -7)   

Here is what I had written about them...in my other thread---& the desription from a medical site---about "Non-Epiletptic Seizures"--aka.."Pseudo- seizures-!

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Psychogenic , also called pseudoseizures, are not thought to be epileptic in nature. Rather, they are believed by many professionals to be caused by mental and psychological stress. Those who suffer from such seizures often resent the term "pseudoseizures," as it implies the seizures are "all in the head." However, this is not true. The real physical symptoms sufferers of pseudoseizures experience are caused by underlying psychological problems.

  • triggers for Pseudoseizures
  1. Pseudoseizures can be brought on by many and various triggers, depending upon the patient. These can include academic stress, stress at work, family or relationship stress, fear of being alone, feeling rejected socially by others, and many more. Emotions can also be triggers. Once triggers of pseudoseizures are properly identified in a patient, treatment becomes a bit clearer. Most professionals treat pseudoseizures through a combination of psychotherapy and anti-convulsant drugs.

    Symptoms


realife
Regular Member


Date Joined Oct 2009
Total Posts : 77
   Posted 12/14/2009 12:49 PM (GMT -7)   
I seen both kind of doctors stella the neurologist sent me to the specialist. I tried to get disability for it but I got denied 3 times. I've been off of work a long time
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