Over the counter cold meds.

New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

RanMan
Veteran Member


Date Joined Feb 2003
Total Posts : 665
   Posted 11/6/2004 4:28 PM (GMT -7)   
Hi to you from Ontario and welcome to the wonderful world of epilepsy.
I've been told by my neurologist and family Doctor that, If I should happen to catch a cold or the flu , Since I'm on medication for my EP, I should not take any over the counter medications, especially the ones that contain DECONGESTANT as they can cause internal bleeding or even massive nose bleeds.
When they mix with the other meds that I'm on, they can also trigger a seizure. nono
 
Randy

kayakmom
Veteran Member


Date Joined Jul 2003
Total Posts : 585
   Posted 11/7/2004 6:28 AM (GMT -7)   
Many of them also lower the seizure threshold. Drink LOTS of water to help loosen things up can help a little....

Daisy9980
Veteran Member


Date Joined Sep 2004
Total Posts : 775
   Posted 11/7/2004 9:05 AM (GMT -7)   
uugggghhhhhhh another wonderful thing to have to worry about!!!! My hair is falling out everywhere!! I am 24 yo girl I need my hair!!! And I am putting on alot of weight for no apparent reason. Joined the gym and do cardio and stuff, but mentally feel like crap and now I never want to get a cold again!!! Can't we win for once!!!

mjhampstead
New Member


Date Joined Jan 2005
Total Posts : 6
   Posted 1/18/2005 7:56 AM (GMT -7)   
Daisy9980 said...
uugggghhhhhhh another wonderful thing to have to worry about!!!! My hair is falling out everywhere!! I am 24 yo girl I need my hair!!! And I am putting on alot of weight for no apparent reason. Joined the gym and do cardio and stuff, but mentally feel like crap and now I never want to get a cold again!!! Can't we win for once!!!
Hiya Daisy
 
Has your thyroid gland been tested both by blood tests and body temperature lately?  Some AEDs can affect thyroid function and other things.  About.com has a good site on thyroid as does tropicaltraditions.com
 
Here we work to keep a strong immune system with diet and etc so we don't get colds and flu in the first place.  Use simple kitchen herbs like garlic and ginger and pepper to help with symptoms.
 
Hope this helps
Charlie's Mom

jezzabelle
Regular Member


Date Joined Jan 2005
Total Posts : 56
   Posted 1/18/2005 5:55 PM (GMT -7)   
My uncle is a pharmacist and suggested I use Anefrin Nasal Spray for colds because basically all cold medicine has Sudafed (sp?) in it which lowers my seizure threshold. The nasal spray can be found at basically any store- we just got the Walgreens brand. The only downside of the nasal spray is you can only use it for 3 days in a row. hope that helps!
"Carry on.  It is not easy.  But it is what we have to do- only we do not have to do it alone."
 
First seizure: 1993
Officially diagnosed: 1999
Type: Simple Partial to Secondary Generalized Tonic-Clonic Seizures
Cause: Unkown, all tests are negative for abnormalities...
Meds: 750mg Keppra 2xday


Daisy9980
Veteran Member


Date Joined Sep 2004
Total Posts : 775
   Posted 1/19/2005 1:30 PM (GMT -7)   
Thanks alot charliesmom how kind of you to post. I have had my thyroid level check and it was borderline hypo when I went. They said they were just going to retest me in another month. So I have to go in and get that taken care of next week. I have gained weight and cannot loose it since being on the keppra. The neuro said it isn't the keppra. I don't know. But thank you. Tracy
 


mjhampstead
New Member


Date Joined Jan 2005
Total Posts : 6
   Posted 1/19/2005 3:24 PM (GMT -7)   
Daisy9980 said...
Thanks alot charliesmom how kind of you to post. I have had my thyroid level check and it was borderline hypo when I went. They said they were just going to retest me in another month. So I have to go in and get that taken care of next week. I have gained weight and cannot loose it since being on the keppra. The neuro said it isn't the keppra. I don't know. But thank you. Tracy

Tracy
 
Make sure the doctor has you check your basal temperature.  See the work of Broda Barnes, MD, on hypothyroidism.
 
THe virgin coconut oil can help with the thyroid issue as well as providing some good lubrication for your brain.  My son's been eating 3 tablespoons a day and we have seen a decrease in seizure activity. He's been enjoying the coconut oil (MUST be virgin or cold processed, unrefined) now for over two years.  We get ours from tropicaltraditions.com  Many folks with seizures benefit from certain essential fatty acids......
 
Hope this helps
mjh

epileptic_Cajun
Regular Member


Date Joined Dec 2004
Total Posts : 45
   Posted 1/20/2005 10:18 PM (GMT -7)   
The person who posted about the Thyroid is right.

Certain drugs, ESPECIALLY Depakote can deplete the T3 adn T4 levels.

THat happened to me. I now have to take Synthroid as of two weeks ago for it, and as long as I take and respond to Depakote, I will always need the Synthroid.

Also I don't know what drugs you are taking, because Tegretol, Lamictal, Depakote, and Keppra are the biggest offenders in weight gain for no reason.

Depakote can also cause hair to fall out all over the place. Mine did, but it grew back in and extremely curly. Since they increased the dosage after my last major Grand Mal 2 weeks ago tonight, I have started to have hair fall out again.

Low Thyroid problems can also cause someone to lose hair, as well.

Nancy
31 years old--born with epilepsy--undiagnosed for over 25 years. Suffered bad abuse by dad causing repeated head injuries, 3 brain infections, 4 concussions, and shingles on the brain.

Initially diagnosed last April, and it was confirmed this March after a 9-day stay in the EMU.

Diagnosed with a sub-type of TLE called Mesial Temporal Lobe Epilepsy Syndrome with Amygdala-Hippocampal seizures.

I have epileptic aura, Simple Partial, Complex Partial and Secondarily Generalized Tonic-Clonic seizures (nocturnal), and a reflex epilepsy as well with Absence and Myoclonic seizures. Myoclonics do occur as regular seizures in me, not just as a result of photic responses.

I failed 7 other drugs.

I take Depakote-1000 mgs and Neurontin--3600 mgs

--TAKE WHAT YOU CAN DO AND DO YOUR BEST WITH IT!!!!


mjhampstead
New Member


Date Joined Jan 2005
Total Posts : 6
   Posted 1/21/2005 1:59 AM (GMT -7)   
epileptic_Cajun said...
The person who posted about the Thyroid is right.

Certain drugs, ESPECIALLY Depakote can deplete the T3 adn T4 levels.

THat happened to me. I now have to take Synthroid as of two weeks ago for it, and as long as I take and respond to Depakote, I will always need the Synthroid.

Also I don't know what drugs you are taking, because Tegretol, Lamictal, Depakote, and Keppra are the biggest offenders in weight gain for no reason.

Depakote can also cause hair to fall out all over the place. Mine did, but it grew back in and extremely curly. Since they increased the dosage after my last major Grand Mal 2 weeks ago tonight, I have started to have hair fall out again.

Low Thyroid problems can also cause someone to lose hair, as well.

Nancy

Nancy
 
Do you have some research or medical article to support this thyroid depletion issue that we are both aware of?  I sure would like a citation to add to my collection of things that AEDs may do to my son's body.
 
My son's 'normal' body temp is about 96.4 yet he tests by blood low thyroid range.  I supplement with liquid seaweed for the natural iodine plus the virgin coconut oil.
 
He's been on Depakote since 1992.  Lamictal from 1996 or 7 until late 2004.  He's also been on Neurontin and Felbutol this past decade and spent about 20+ years on Phenobarb and Dilantin.
 
He gained well over 50 pounds when he started Depakote and worked hard to loose it the last three years.  Mostly, we just reduced grains in addition to the above.
 
Thanks
CHarlie's Mom

Daisy9980
Veteran Member


Date Joined Sep 2004
Total Posts : 775
   Posted 1/21/2005 10:16 PM (GMT -7)   
I would love some documentation to support that Keppra causes weight gain. My neuro keeps telling me no and I don't see that listed in anything I read about the drug. Except for on forums. I haven't had another TC since the start of keppra, but put on 20 pounds like that and CAN NOT loose them for anything. Five days a week of cardio for 2 months won't do it nothing will. Help please forward some kind of official respectable link that shows this information so I can give it to my doc.
 


epileptic_Cajun
Regular Member


Date Joined Dec 2004
Total Posts : 45
   Posted 1/22/2005 3:19 PM (GMT -7)   
Some of the info I got was sent to me by the Epilepsy Foundation OF America. THey also have a site with good info on it with seizure types, drugs, an Answer place, and more forums to belong to.

THe info I got mine recently was from a blood test, and the last two blood tests were also coming back low for Thyroid. So they put me on it. Depakote does cause it, and it can also cause a weight gain from 8-50 pounds.

IT is hard to lose, since it is from the drug.

I also got some info from a 2005 drug book, it is listed right there in black and white.

Let me go digging on a few other sites, and see what I can find for you.

If I can't, which I don't think will occur, come up with anything, then you will need to give me your home address, so I can copy it and mail it to you.

Nancy
31 years old--born with epilepsy--undiagnosed for over 25 years. Suffered bad abuse by dad causing repeated head injuries, 3 brain infections, 4 concussions, and shingles on the brain.

Initially diagnosed last April, and it was confirmed this March after a 9-day stay in the EMU.

Diagnosed with a sub-type of TLE called Mesial Temporal Lobe Epilepsy Syndrome with Amygdala-Hippocampal seizures.

I have epileptic aura, Simple Partial, Complex Partial and Secondarily Generalized Tonic-Clonic seizures (nocturnal), and a reflex epilepsy as well with Absence and Myoclonic seizures. Myoclonics do occur as regular seizures in me, not just as a result of photic responses.

I failed 7 other drugs.

I take Depakote-1000 mgs and Neurontin--3600 mgs

--TAKE WHAT YOU CAN DO AND DO YOUR BEST WITH IT!!!!


kayakmom
Veteran Member


Date Joined Jul 2003
Total Posts : 585
   Posted 1/22/2005 5:09 PM (GMT -7)   
I see on the DRKOOP site that Thyroid function test reliability may be altered while taking Depakote. So far nothing about it causing the problems, but it is possible. These meds do cause so many side effects.....

http://drkoop.com/druglibrary/93/depakote-warnings_precautions.html

Daisy9980
Veteran Member


Date Joined Sep 2004
Total Posts : 775
   Posted 1/22/2005 8:39 PM (GMT -7)   
aHH yes I have a neuro appointment this thursday and really want to discuss these issues. It is such an ongoing thing for me. I would like to get threw the four months of school before I switch meds. See what the neuro thinks. But I wold love to see the documentation about the Keppra. The only other place I hear this is on forums from other E patients. Not doctors or my nursing book or anything!! Thanks
 


epileptic_Cajun
Regular Member


Date Joined Dec 2004
Total Posts : 45
   Posted 1/23/2005 2:26 PM (GMT -7)   
I wouldn't rely on ANYTHING that Everet Koop wrote, said, or did.

He is high on the list of quack docs. He would rather push "do-it-yourself-medicine", that are mostly nonsense in nature, than be real about his education.

My dad likes him, because he doesn't believe in going to the doc and would much rather stay at home and play doc or surgeon to himself.

Koop gave some stupid ideas in his book called PAIN PAIN GO AWAY.

Most of you know that ligaments have no ciruclation, therefore they can't heal without some form of intervention ending with crutches and non weight bearing. This knuclehead was telling people in his book to inject themselves with sugar water, that that would heal it. What a fool. Sugar water isn't going to do ANYTHING to heal non-vascular things.

I had surgery to rebuild my L ankle about the time that that came out, and my orthopedic surgeon, said that he had read some of his stuff, and that it was all nonsense. None of it is going to help anyone with a real problem. It is kind of like a placebo approach to medicine. Don't actually HELP them to get better, make then THINK they are getting better.

You can't play mind games with people who are sick, especially with epilepsy. The only treatment for epilepsy is drugs, VNS, different brain surgeries, or the Ketogenic Diet.


That is basically the name of Koop's game, and that is all it is.

My drug books that I have that are for epilepsy (2), for regular drugs (3--2005, 2003, 2004), and a 2004 Mosby's Nursing drug book.

The side effect of depleting T3 and T4 is written in EVERY book.

That doesn't mean that just because it happened to me, it will happen to you.

There is not a need to worry if it doesn't. I wouldn't do more than just quiz your neuro about it, don't get mat him or her, if they say they don't think it is necessary. It only occurs with the higher dose, and I am above high.

Most of you take other drugs, other than Depakote. Depakote is my main AED, so it is taken in massive doses--1250 mgs, and then I take 3600 mgs of Neurontin and that drains my Folic Acid levels down, so I take that two.

For the person wanting a list of stuff on Keppra-I wouldn't worry too much, depletion of Thyroid is not a side effect for that drug.

It can cause behavioral changes, reductions in both white and red clood cells. Doc needs to monitor every week while taking this drug.

Possible side effects

Most common: tiredness, weakness, dizziness, dry or sore throat, hoarseness or loss of voice, loss of strength or energy, muscle pain, tender swollen glands, trouble swallowing, unusual tiredness, weakness, or other voice changes, and infections.

Less common: appetite loss, clumsiness, unsteadiness in walking (ataxia), crying fits, chills, headache, lower back pain, or side pain, sever mood or mental changes, pain or tenderness around eyes and cheek bones, painful or difficult urination, parnoia, muscle control problems (dystonia), asmatic symptoms, burning, crawling, itching, numbness, prickling, tingling feelings, feeling of constant movement of self or surroundings (vertigo), memory loss, anxiety, poor coordination, depression, easy emotional upset, hostility, nervousness, tingling in the nahds and feet, fainting, coughing, runny nose, sinus irritation, and double vision.

Rare: muscle aches, diarrhea, constipation, stomach problems, chest pain, black and blue marks (easy bruising or unexplained bruising), fever, flu-like symptoms, angry outbursts, over reacting aggravated convulsions, sleeplessness (insomnia), rash, middle ear infections, hand tremors, swollen gums, and weight gain (from 3-30 pounds in the rare cases--most people gain between 10 and 15 pounds), weight loss can also occur and can lose as much as about 10-15% of total body weight. It may take 6 months for that to show up.

You need to ask you doc about other drug interactions.

It may decease or increase the effect of both drugs taken. NOT GOOD.
31 years old--born with epilepsy--undiagnosed for over 25 years. Suffered bad abuse by dad causing repeated head injuries, 3 brain infections, 4 concussions, and shingles on the brain.

Initially diagnosed last April, and it was confirmed this March after a 9-day stay in the EMU.

Diagnosed with a sub-type of TLE called Mesial Temporal Lobe Epilepsy Syndrome with Amygdala-Hippocampal seizures.

I have epileptic aura, Simple Partial, Complex Partial and Secondarily Generalized Tonic-Clonic seizures (nocturnal), and a reflex epilepsy as well with Absence and Myoclonic seizures. Myoclonics do occur as regular seizures in me, not just as a result of photic responses.

I failed 7 other drugs.

I take Depakote-1000 mgs and Neurontin--3600 mgs

--TAKE WHAT YOU CAN DO AND DO YOUR BEST WITH IT!!!!

New Topic Post Reply Printable Version
Forum Information
Currently it is Wednesday, December 07, 2016 3:21 PM (GMT -7)
There are a total of 2,734,290 posts in 301,200 threads.
View Active Threads


Who's Online
This forum has 151323 registered members. Please welcome our newest member, judy.
387 Guest(s), 14 Registered Member(s) are currently online.  Details
Wdan, Psilociraptor, Rikky1, tennisplayer, Bohemond, Tick41, Girlie, Lymiemomster, smlafleur, exqualls, peanut307, lavendar, Blu's Mama, trumpet123


Follow HealingWell.com on Facebook  Follow HealingWell.com on Twitter  Follow HealingWell.com on Pinterest
Advertisement
Advertisement

©1996-2016 HealingWell.com LLC  All rights reserved.

Advertise | Privacy Policy & Disclaimer