would just like to introduce myself

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New Member

Date Joined Nov 2004
Total Posts : 1
   Posted 11/8/2004 10:27 AM (GMT -6)   
hi there, i just found this site by accident searching for info on epilepsy, ive been diagnosed with epilepsy for approx 10 yrs but have just been told by my neuro that i might not be able to work mad was wondering if anyone could help me with info on it, im on sodium valproate 2500mgs a day, i feel so alone with this

Veteran Member

Date Joined Sep 2004
Total Posts : 775
   Posted 11/8/2004 11:01 AM (GMT -6)   
Hi Mich75. I am not on that med. But I am sure someone will be able to relate to what you are taking. I wanted to welcome you to our forum. It really is a nice bunch of people to get support from. Hope you are feeling well. Tracy

Regular Member

Date Joined Oct 2004
Total Posts : 47
   Posted 11/8/2004 9:09 PM (GMT -6)   
Hello Mich,
I just wanted to say hi and welcome to the forums. I'm really sorry you are feeling so alone. I know the feeling all too well, but the truth is you aren't alone and I'm not either. Many people don't understand the frustration, but there are quite a few who do, so I hope you find the support here comforting. I have :)


Regular Member

Date Joined Nov 2004
Total Posts : 167
   Posted 11/9/2004 1:07 PM (GMT -6)   

I have lost a few jobs due to epilepsy and also been told that I'm not allowed to work by my neuro. I know how you feel. It is a very helpless feeling. Also, very stressful. I found myself wondering how I was going to support my family. I am not allowed to be left alone. So, as a result, I'm not allowed to be left alone with the kids either. So, because I'm not working, we can't afford child care. Which means my wife can't work either. Kind of a viscious circle. You're NOT alone in this. Believe me. If there is anything I can do to help you through this....Please let me know


hector27 male
New Member

Date Joined Nov 2005
Total Posts : 10
   Posted 11/29/2005 10:44 AM (GMT -6)   
hi, mich

did u know that your work can not fire u becuase of ur epilepsy, that is discrimination .well if u cant work try to get disablity, I tried but my neuro will allow me to work. if need more help on this info let me know
granmal siezures

New Member

Date Joined Oct 2005
Total Posts : 11
   Posted 11/29/2005 1:30 PM (GMT -6)   

Hi Mitch,

You don't have to feel like you said, because if you want to work you can do it. This doesn't mean that you have to work in big companies, but you can do many jobs as sales like omnilife or travel one, do you hear about that? it's easy and do not take too much time and may be you can earn a good money for you.


Veteran Member

Date Joined Feb 2003
Total Posts : 662
   Posted 11/29/2005 1:48 PM (GMT -6)   
Hi Mitch:
I can sort of relate to what you're going through. I was in a similar situation. This post is based solely on my own experience, maybe you can get something out of it.
I am on disability for my UC and Epilepsy. yeah yeah
 I was fighting to keep my job and not go on disability.
I've had UC and epilepsy since 1979.
I'm from Canada and my employer of 30 yrs. has reccomended that I go on Disability (not my choice-fought against it for 4 yrs.and lost) through Sun Life Financial and it has been approved, it kicked in Feb/05. It might have been easier for me to qualify because I also have Ulcerative Colitis.
My employer has put me on medical retirement since Aug./05  
I agree that there are a lot of people out there that don't really need it but make up stuff so they can get benefits and not work. I'm only 49 yrs old  and I'm not dying (yet)so maybe someone will hire me part time since my UC and EP has been in control (remission) for years.
Did you know that it is a proven fact that epilectics are generally better employees? So employers should be more than willing to hire an epileptic. (unless it's really severe)
They have better attendance because they think they're being watched by their superiors who are expecting them to take lots of sick days.
They work harder and have a better production rate for the same reason. Everyone is just waiting for you to screw up.
But they're still outcasts, Everbody thinks the're different but actually they're more compssionate.
I agree with Hector, Your employer cannot let you go for a seizure condition.  It is descrimination (as per the Canadian Human Rights Code)
Your employer is obligated to provide you with the necessary job modifications and/or put you in an area where you will be at no risk to yourself or others.

Diagnosed with epilepsy and ulcerative colitis in 1979,
Been on meds ever since.

New Member

Date Joined Dec 2005
Total Posts : 1
   Posted 12/2/2005 3:40 PM (GMT -6)   
My name is Jon. My 5 year old daughter has epilepsy and she has failed 3 or 4 antisez. meds. she has some drop downs but most of hers come while she is going to sleep or waking up. We were talking to the droctors yesterday and the think that they are coming from her prim. motor strip or the secondary motor strip. they wont to place the grids on and try to find out but they wont to know more about the CERPIRL TRANSECTION. Before they will do the removel. So if it is on the prim. motor strip they will do this.
If posting a reply to Jon please post on this link below
Thank You

Post Edited By Moderator (~Jennifer~) : 12/2/2005 1:56:36 PM (GMT-7)

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