having seizures after RTL

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wifeandmommy
New Member


Date Joined Dec 2009
Total Posts : 1
   Posted 12/2/2009 4:11 PM (GMT -7)   
 2005 I had a RTL after having seizures for 19 years.  I now have a 2 year old and 3 year old.  I have recently started having seizures again.  I don't know if it is stress related or what.  I have them before my period most of the time.  I have had 3 this week but i am really stessed from college and Christmas shopping.  I'm afraid they are back for good.  Is a second surgery a option? Also, for anyone that has had more than 1 surgery, did the second 1 work and did you have to have all the test again? 

Stella Marie
Veteran Member


Date Joined May 2005
Total Posts : 601
   Posted 12/11/2009 10:08 PM (GMT -7)   
Sorry, I don't have experience with success rates of second surgeries. It sounds like you have only been having these seizures for a short period of time and that you are under a terrific amount of stress. What does your epileptologist say? Have you started taking medication again? Now that you are caring for your children it is important to try an get these under control as quickly as possible.

Let us know what you neurologist or epileptologist has to say.

Good luck.

Stella Marie

 Moderator for Chronic Pain and Epilepsy

Rare neurodegenerative /movement disorder called “Multiple System Atrophy”.  Mobility issues,, neuropathic pain,  spasticity, central apnea, collagenous colitis, joint and body pain, swallowing and respitory  involvement,  Implants: intrathecal pump  & neurostimulator.  Extra features: O2 & wheelchair

 


Athena Boo
New Member


Date Joined Sep 2010
Total Posts : 1
   Posted 9/13/2010 1:02 PM (GMT -7)   
wifeandmommy -- I don't know if you've found answers to your question in another way, but I hope I can help a little.

I had a second surgery because my first surgery didn't work. Right temporal lobectomy as well. The difference for me was my first surgery made them worse and it happened almost immediately. I had my first surgery in May 2007 and my second surgery in Dec 2007.

I had the surgeries when I was 37 and I'm now 40. My second resection was MORE THAN WORTH IT! My seizures are so much better. I used to have up to five CP a week. I now have one SP every 3 or 4 mos. I'm allowed to drive again.

I did another VEEG and they decided a second surgery was an option. I was told I could have a pair of surgeries or simply go to a resection. I chose to have the pair. I went in on Dec 10, a grid was placed and we did another VEEG. On Dec 17, they removed the grid and did a second resection.

It's been years since I've written on a forum board. It's highly possible this will come across as stiff or odd somehow. If so, I'm sorry. I am more than open to questions and I swear I won't bite.

mercyme
Regular Member


Date Joined Feb 2005
Total Posts : 310
   Posted 10/14/2010 6:31 PM (GMT -7)   
 
   Hi Athena Boo, I remember seeing you on the boards a couple of years ago. I had a RTL in 2002 have been seizure free ever since the surgery. I have a few auras but no full blown seizures. I deal with chronic migraines now, which is a bummer. I just got home from UVA in Charlottesville Va where I underwent DHE iv treatments for my migraines. It helped a little but am still having migraines 3-4 a week.  Having the surgery for my complex paritial seizures was the best thing I ever did.  I wish you all the very best!
 
   Mercyme
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