What type of seizure disorder are you suffering from?

New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

Stella Marie
Veteran Member

Date Joined May 2005
Total Posts : 601
   Posted 12/27/2009 1:27 PM (GMT -6)   
Since i am rather new to this forum, I was wondering if the readers would take a minute and tell us what type of seizure disorder they are suffering from.  I do have myoclonus, but my major problem in a rare neurodegenerative brain disorder called Multiple System Atrophy (basically brain rot that affect muscles)-I sort falls betwenn ALS (Lou Gehrig's Disease) MS (Multiple Sclerosis).  Since a brain transplant in out of the question, I'm trying to keep what I brain matter I have around for the longest period of time.   Like the Scarecrow in Wizard of Oz--If I only had a brain.

Stella Marie

Moderator for Chronic Pain and Epilepsy

Rare neurodegenerative /movement disorder called “Multiple System Atrophy”.  Mobility issues,, neuropathic pain,  spasticity, myoclonus, central apnea, collagenous colitis, joint and body pain, swallowing and respitory  involvement,  Implants: intrathecal pump & neurostimulator.  Extra features: O2 & wheelchair.



Regular Member

Date Joined Feb 2005
Total Posts : 310
   Posted 2/17/2010 8:59 AM (GMT -6)   
I had complex partial seizures for over 25 years before having brain surgery to remove scar tissue from the right side of my brain. I have been seizure Free now since 2002. Only had a few brief auras after the brain surgery. Wishing you the best!


New Member

Date Joined Mar 2010
Total Posts : 4
   Posted 3/18/2010 7:53 AM (GMT -6)   
mine is a "refractory temporal lobe epilepsy probably" though it tends to spread into other/entire lobes.

it wasn't obvious as to what it was to begin with since I was much younger. like the above poster, it's probably a scar tissue in the brain. I had suffered over a number of decades before it became much clearer as to what it was and diagnosed.


New Member

Date Joined Mar 2010
Total Posts : 10
   Posted 3/21/2010 9:44 PM (GMT -6)   
I had "benign rolandic epilepsy". I had my first seizure at 9 and only had them for five or six years. I got an EEG a few years back and my neurologist said I'm seizure free! :-) Definitely a blessing!
New Topic Post Reply Printable Version
Forum Information
Currently it is Monday, October 24, 2016 3:12 PM (GMT -6)
There are a total of 2,711,196 posts in 298,970 threads.
View Active Threads

Who's Online
This forum has 153537 registered members. Please welcome our newest member, janelise.
412 Guest(s), 20 Registered Member(s) are currently online.  Details
Kirky98, Wdan, TrialbyLyme, 81GyGuy, Artist Mark, StarGirl10, Serenity Now, NB236, Evets, H Mommy, Steffersp, FamilyGuy, wellness hailu, Jimmyjumpstick, mjw11, Tall Allen, goodnurse53, Snarf, pooldrops5, Sissy63

Follow HealingWell.com on Facebook  Follow HealingWell.com on Twitter  Follow HealingWell.com on Pinterest

©1996-2016 HealingWell.com LLC  All rights reserved.

Advertise | Privacy Policy & Disclaimer