What type of seizure disorder are you suffering from?

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Stella Marie
Veteran Member


Date Joined May 2005
Total Posts : 601
   Posted 12/27/2009 11:27 AM (GMT -7)   
Since i am rather new to this forum, I was wondering if the readers would take a minute and tell us what type of seizure disorder they are suffering from.  I do have myoclonus, but my major problem in a rare neurodegenerative brain disorder called Multiple System Atrophy (basically brain rot that affect muscles)-I sort falls betwenn ALS (Lou Gehrig's Disease) MS (Multiple Sclerosis).  Since a brain transplant in out of the question, I'm trying to keep what I brain matter I have around for the longest period of time.   Like the Scarecrow in Wizard of Oz--If I only had a brain.

Stella Marie

Moderator for Chronic Pain and Epilepsy

Rare neurodegenerative /movement disorder called “Multiple System Atrophy”.  Mobility issues,, neuropathic pain,  spasticity, myoclonus, central apnea, collagenous colitis, joint and body pain, swallowing and respitory  involvement,  Implants: intrathecal pump & neurostimulator.  Extra features: O2 & wheelchair.

 

 


mercyme
Regular Member


Date Joined Feb 2005
Total Posts : 310
   Posted 2/17/2010 6:59 AM (GMT -7)   
I had complex partial seizures for over 25 years before having brain surgery to remove scar tissue from the right side of my brain. I have been seizure Free now since 2002. Only had a few brief auras after the brain surgery. Wishing you the best!

Mercyme/Cindy

mshonda
New Member


Date Joined Mar 2010
Total Posts : 4
   Posted 3/18/2010 5:53 AM (GMT -7)   
mine is a "refractory temporal lobe epilepsy probably" though it tends to spread into other/entire lobes.

it wasn't obvious as to what it was to begin with since I was much younger. like the above poster, it's probably a scar tissue in the brain. I had suffered over a number of decades before it became much clearer as to what it was and diagnosed.

cheers.

Alice_in_Wonderland
New Member


Date Joined Mar 2010
Total Posts : 10
   Posted 3/21/2010 7:44 PM (GMT -7)   
I had "benign rolandic epilepsy". I had my first seizure at 9 and only had them for five or six years. I got an EEG a few years back and my neurologist said I'm seizure free! :-) Definitely a blessing!
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