Cortical Displasia?

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LiteralRuse
New Member


Date Joined Dec 2009
Total Posts : 5
   Posted 12/28/2009 10:33 PM (GMT -7)   
(sorry if I spelled it wrong)

My mother might have cortical displasia. Can anyone tell me how bad this is/isn't and what I can expect? I'm extremely worried at this moment, since I have no clue what's going on. All I know is she had one (her first) seizure in late/mid August, and then she had another in the hospital (even stopped breathing). She hasn't had a seizure since, although we did have to rush her to the hospital again shortly after that because of a high fever. This has been bugging me for awhile now, since the doctors have basically told her everything from she has a normal cyst, to "she might have cancer", and now that she might have a birth defect that is just now being discovered this late in life. As hard as this is on me, I can only imagine how hard it is on my mother. She's got a doctor's appointment with I believe the neurosurgeon/neurologist again this week.

Any words of comfort, advice, knowledge that won't keep me pacing back and forth nervously, etc.? And is cortical displasia hereditary?

Thank you in advance. :-)

Post Edited (LiteralRuse) : 12/29/2009 6:48:44 PM (GMT-7)


LiteralRuse
New Member


Date Joined Dec 2009
Total Posts : 5
   Posted 12/29/2009 6:45 PM (GMT -7)   
Oh, and she's had an MRI. It came up clean. The EEG was "slightly abnormal", however. She's currently sick (nausea, vomiting, dizziness, I think it's a stomach flu) but no seizures, and she's been off the seizure meds for about 2-3 months now and doing fine, seizure-wise. She had to reschedule her appointment with the neurologist/neurosurgeon.

And if it helps any, she had the seizure after taking two antihistamines together. The doctor (GP) said that it caused an abnormal reaction in the brain, and caused a pseudo-seizure or a non-epileptic seizure. Like I said, after August (and after stopping with the Dilantin), she's had no more seizures. I really don't know what's going on, and it's really starting to worry me. confused

She's in her early 40's if age is a factor.

Post Edited (LiteralRuse) : 12/29/2009 6:48:44 PM (GMT-7)


Stella Marie
Veteran Member


Date Joined May 2005
Total Posts : 601
   Posted 12/30/2009 9:50 PM (GMT -7)   
I am sorry I do not know much about this. Let's hope that another member of HW might have some information. I can see why you are worried.  It is my understanding that this is usually a birth defect and depending on it's size and specific location can cause pediatric seizures.  I also thought that MRI's or PET scans were the tests used to detect this soft tissue disorder.  It is usually difficult to detect soft tissues abnormalities with CT scans.  When you find out more information, please keep us informed.


Stella Marie

Moderator for Chronic Pain and Epilepsy

Rare neurodegenerative /movement disorder called “Multiple System Atrophy”.  Mobility issues,, neuropathic pain,  spasticity, myoclonus, central apnea, collagenous colitis, joint and body pain, swallowing and respitory  involvement,  Implants: intrathecal pump & neurostimulator.  Extra features: O2 & wheelchair.

 

 

Post Edited (Stella Marie) : 12/31/2009 2:15:30 AM (GMT-7)

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