Can someone please offer advice asap

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New Member

Date Joined Feb 2010
Total Posts : 1
   Posted 2/2/2010 4:03 PM (GMT -6)   
  I am looking for anyone with some advice.  My husband has had epilepsy for over 20 yrs no seizures in over 9yrs.  His dr has said he can wean off his meds ( Dilantin) but he is nervous to do so. My issue is his sleep habits/insomnia are affecting our entire family.  I am willing to move mountains to help find a solution for us.  He usually gets home from work by 5;15 and is passed out on the couch by 7:00pm he sleeps til about 1am and goes to bed til maybe 2:30 or 3:00 then gets up and leaves for work at 7:00am.  Now our problems are we have two kids ages 9 and 12 who dont get to spend any time with him because his sleep habits and it is taking a toll on our marriage/intamacy due to his not being on a "so called normal" schedule.  He currently does not take any sleep aids, does anyone have any advice on maybe tweaking or switching meds or adding a sleep aid. ANY advice right now would be a blessing.  Again my heart goes out to all of you struggling with this disease as I do not have it myself I see thru my husband how dibilitating it can be. 

Stella Marie
Veteran Member

Date Joined May 2005
Total Posts : 601
   Posted 2/2/2010 7:54 PM (GMT -6)   
I am so sorry.  What a mess.  I to suffer from insomnia and know first hand how disruptive it can be to the entire family.  Have you discussed this problem with his neurologist.  You need to get him from taking that 5:15 pm to 7:00pm nap that sounds like it is disrupting his evening sleeping schedule.
I know we are all tired when we get home from work, but is there anyway a cup of coffee or caffinated beverage could help keep him up until a normal bed time.  At bedtime, has he ever tried Melatonin, an over the counter product that I find does help slightly with sleep.  Maybe he doctor could temporary Rx a sleep aid for a short period of time.  This way you could work at keeping him up until a realistic bedtime and then making sure he gets a good night's sleep.  I think they call this sleep hygine and his schedule needs some tweaking.  I would definately talk with his doctor and see what the tweo of you can do to get him back on track.
I am sure you sleep is all messed up to because of his schedule.
Keep us posted as to your progress.

Stella Marie

Moderator for Chronic Pain and Epilepsy

Rare neurodegenerative /movement disorder called “Multiple System Atrophy”.  Mobility issues,, neuropathic pain,  spasticity, myoclonus, central apnea, collagenous colitis, joint and body pain, swallowing and respitory  involvement,  Implants: intrathecal pump & neurostimulator.  Extra features: O2 & wheelchair.



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