Disorienting Sunlight Symptom

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Acheybody
Forum Moderator


Date Joined Nov 2008
Total Posts : 5930
   Posted 3/31/2010 2:00 PM (GMT -7)   
Hello,
My daughter had one seizure six years ago. She is taking Lamictal and is symptom free aside from the fact that sunlight diorients her, especially in the early and late times of day. The sensation is almost like a short loss of consciousness, but her doctor does not think these episodes are seizures. Does anyone else experience this?
Debbie
 
Diagnosed: Fibromyalgia, Meniere's, mild liver damage, keloid scar tissue (from burn) on back, arthritis, lumbar disc damage, IBS, migraine, herpes
 
Meds: Nortriptyline, Clonazepam,  Effexor, Darvocet as needed
multivitamins, l-lysine, probiotics, magnesium, calcium + vit. D, vit. C
 
Chiropractic adjustments


summerstorm
Veteran Member


Date Joined Aug 2006
Total Posts : 6571
   Posted 4/1/2010 9:17 PM (GMT -7)   
do you mean like when it flickers through the trees? i think that bothers everyone
UC for 8 years, before finally kicking its butt and having a permanent ileostomy April 17 2007! 
-I have gone to find myself, if i get back before i return, keep me here-


Acheybody
Forum Moderator


Date Joined Nov 2008
Total Posts : 5930
   Posted 4/1/2010 9:30 PM (GMT -7)   
No, not exactly. She can be standing still and she'll keep involuntarily "flicking" the sun out of her eyes with her hand, and she loses track of what she was saying or doing, temporarily. She also gets really irritated. I just wondered if this is common? Her neurologist never really picks up on this, so maybe it's nothing to worry about.
Debbie
 
Diagnosed: Fibromyalgia, Meniere's, mild liver damage, keloid scar tissue (from burn) on back, arthritis, lumbar disc damage, IBS, migraine,
 
Meds: Nortriptyline, Clonazepam,  Effexor, Darvocet as needed
multivitamins, l-lysine, probiotics, magnesium, calcium + vit. D, vit. C
 
Chiropractic adjustments


summerstorm
Veteran Member


Date Joined Aug 2006
Total Posts : 6571
   Posted 4/3/2010 5:38 PM (GMT -7)   
oh i dont know, i have never heard of that, sorry
UC for 8 years, before finally kicking its butt and having a permanent ileostomy April 17 2007! 
-I have gone to find myself, if i get back before i return, keep me here-


Acheybody
Forum Moderator


Date Joined Nov 2008
Total Posts : 5930
   Posted 4/3/2010 9:37 PM (GMT -7)   
Ok, thanks anyway! Will ask the new neuro.
Debbie
 
Diagnosed: Fibromyalgia, Meniere's, mild liver damage, keloid scar tissue (from burn) on back, arthritis, lumbar disc damage, IBS, migraine,
 
Meds: Nortriptyline, Clonazepam,  Effexor, Darvocet as needed
multivitamins, l-lysine, probiotics, magnesium, calcium + vit. D, vit. C
 
Chiropractic adjustments


Another Day
Veteran Member


Date Joined Mar 2007
Total Posts : 1055
   Posted 4/13/2010 9:53 AM (GMT -7)   
I am 59 years old and was diagnosed with myoclonic seizures in 2006.  I have a definite problem with sunlight which I have never thought to mention to my neurologist.
 
If I look up at a very tall tree or up at the sun, I had better be holding onto to something.  I definitely get dizzy and feel disoriented for a minute or so. 
 
I do not have a problem with driving in the sunshine.  I always have a good pair of sunglasses and put the visor down if it is real sunny.  My eyes have always been light sensitive.  What about your daughter's?
 
My eyes are so light sensitive, I usually wear sunglassess to drive on a cloudy day.
 
Take care!
 
Carla
Epilepsy, asthma, fibromyalgia, GERD, depression, hypothyroidism, tinnitus


Acheybody
Forum Moderator


Date Joined Nov 2008
Total Posts : 5930
   Posted 4/13/2010 1:14 PM (GMT -7)   
Carla,
Thanks for answering. Yes, I'd say my daughter's eyes are light-sensitive (but not as much as mine, actually.) She works outside sometimes at her home-impovement store job, and usually forgets her sunglasses. She gets extremely disoriented and even irritable, out of the blue. But I'm taking her to a different neurologist in a couple of days. Hopefully this one will actually consider the question!
Debbie
 
  Diagnosed: Fibromyalgia, Meniere's, mild liver damage (why?), keloid scar tissue (from burn) on back, arthritis, lumbar disc damage, IBS, migraine
  Meds: Nortriptyline, Clonazepam, Darvocet as needed
multivitamins, l-lysine, probiotics, magnesium, malic acid, calcium + vit. D, vit. C
  Chiropractic adjustments


Acheybody
Forum Moderator


Date Joined Nov 2008
Total Posts : 5930
   Posted 4/24/2010 8:51 AM (GMT -7)   
Dwayne,
Thanks for answering. My daughter has a couple of weeks of school left and then her new neurologist is going to order another EEG. The one she had a few years ago showed abnormal activity, but no diffinitive seizures. So based on that, she's on Lamictal.

How is your son doing?
  Achey 
 
  Diagnosed: Fibromyalgia, Meniere's, elevated liver enzymes, skin grafting on back, arthritis, scoliosis,   lumbar disc damage, sciatica, IBS, migraine headaches, skin cancer surgeries on face
    Meds: Nortriptyline, Clonazepam, Darvocet as needed
    Multivitamins, l-lysine, probiotics, magnesium, malic acid, calcium + vit. D, vit. C
    Chiropractic adjustments
 
Be yourself.  Everyone else is already taken.


Acheybody
Forum Moderator


Date Joined Nov 2008
Total Posts : 5930
   Posted 4/25/2010 7:19 PM (GMT -7)   
No, this new doctor isn't a pediatric neurologist, my daughter is 20 & she had her one grand-mal seizure when she was 14. Thanks for reminding me about the seizure triggers during an EEG. I'm going to suggest that they somehow test her while she's in the sun, if possible, because the flashing lights last time didn't make anything happen...it's only the sun that makes her spacey or whatever it is. The doctor says it may be abscence seizures.

Good luck to you and your son. Have fun with the puppy!
  Achey 
 
  Diagnosed: Fibromyalgia, Meniere's, elevated liver enzymes, skin grafting on back, arthritis, scoliosis,   lumbar disc damage, sciatica, IBS, migraine headaches, skin cancer surgeries on face
    Meds: Nortriptyline, Clonazepam, Darvocet as needed
    Multivitamins, l-lysine, probiotics, magnesium, malic acid, calcium + vit. D, vit. C
    Chiropractic adjustments
 
Be yourself.  Everyone else is already taken.

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