Has anyone had a MEG test done, and or WADA ??

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Minnie66
Regular Member


Date Joined Jun 2004
Total Posts : 82
   Posted 1/6/2005 10:58 AM (GMT -7)   
Hi,
 
I just scheduled my video eeg, and I need to go for a MEG test and a WADA test, two tests that I had never had, I am having a tough time finding info on them...
 
Besides I would like some real life experiences of the test, not just text book....
 
Thanks for the help
 
Dor :-)
diagnosed seizure disorder 1989
reason, angioma in L temp lobe
seeking surgery options
Keppra 750mg
Zonegran 200 mg


kayakmom
Veteran Member


Date Joined Jul 2003
Total Posts : 585
   Posted 1/6/2005 2:22 PM (GMT -7)   
I have read about them on sites, but never been through them. Hoping some here have. I know some insurance companies really fight paying for a MEG since they are relatively new!

Hang in there and best wishes....

Minnie66
Regular Member


Date Joined Jun 2004
Total Posts : 82
   Posted 1/6/2005 4:37 PM (GMT -7)   
Thanks !!  Yes !!!  I am so upset !!  I finally made the decision to look into surgery after 15 years, and I got a phone call a few hours ago from my docs office that my insurance wont pay for the MEG test sad ...
I am sick... When I saw the doc in Sept. he said this test is supposed to be a very thorough test...
I mean this is the BRAIN !! not a toe !!!!  I am waiting to hear back from the docs office now...
 
I dont even know if this doc will even consider surgery if I dont have this test done.... I am also sure the test is thousands of dollars !!!!! an MRI is at least 1000 now  I am sure, more,  so I could imagine the price of a MEG !!!  I am so sick...... I finally got the guts to make the appointments and I get hit with this.... sad ...
 
no wonder why I havent heard that much about this test.....  Thanks for listening 
 
Dor :o(
diagnosed seizure disorder 1989
reason, angioma in L temp lobe
seeking surgery options
Keppra 750mg
Zonegran 200 mg


kayakmom
Veteran Member


Date Joined Jul 2003
Total Posts : 585
   Posted 1/6/2005 7:54 PM (GMT -7)   
I am so sorry! Ask the doctor to help you fight this! I know a girl in California who needed this to see if she needed a third surgery!

You are so right, this is the brain and not some simple thing. Sometimes insurance says no the first time. Keep appealing! Everything I read about the MEG sounds so promising....


(((Dor))) hang in there. I know it is so hard to keep fighting, but it is worth it!!

Minnie66
Regular Member


Date Joined Jun 2004
Total Posts : 82
   Posted 1/7/2005 6:30 AM (GMT -7)   
Ohh,
 
Thanks for your thoughts !! I am a fighter !! I am more in shock I think !! I just couldnt believe that insurance companys could get away with this... We pay thousands and thousands of dollars for insurance...  a year and when a person is in need, they dont want to pay.. the same with medicine.. how dare they tell me what medicine I am allowed to take, and what I am not....
 
Sometimes I think, it is better to not have health insurance and get medicine free, and free health care like alot of other people in this country.....Sometimes I wonder if its worth it to have a job and pay taxes, and be an honest working family anymore.....
 
I am sorry.... I am just sick sad
 
Thanks...sorry.. I am just venting
Dor :o(
diagnosed seizure disorder 1989
reason, angioma in L temp lobe
seeking surgery options
Keppra 750mg
Zonegran 200 mg


kayakmom
Veteran Member


Date Joined Jul 2003
Total Posts : 585
   Posted 1/7/2005 8:08 AM (GMT -7)   
Vent away! I totally understand. It makes no sense that they deny a great test that is so helpful in pin pointing seizures!


Hang in there....

RanMan
Veteran Member


Date Joined Feb 2003
Total Posts : 665
   Posted 1/7/2005 8:36 AM (GMT -7)   

Minnie66

Sorry, I've never heard of a MEG test, or a WADA, what are they?

Randy



Diagnosed with epilepsy and ulcerative colitis in 1979,
Been on meds ever since.
 
275mg-dilantin/day
120mg-pheonobarb/day
3,000mg-Mesasol/day

Post Edited (RanMan) : 1/7/2005 4:10:04 PM (GMT-7)


Minnie66
Regular Member


Date Joined Jun 2004
Total Posts : 82
   Posted 1/7/2005 6:25 PM (GMT -7)   
A MEG test is a fairly new test I am told, which is sort of a MRI/EEG combo... thats what it sounds like to me anyway.... It is supposed to define the location of the seizures, I think they use this test to map out how the surgery should be done... That is the impression I am under anyway... I dont think all docs use this test, the last group I went to last year never even mentioned this test, but it sounds like a good thing to have....
 
The WADA is a test also done to determine if you are a candidate for surgery, I think an angiogram is done, then they put one side of your brain to sleep at a time, to see how your skills are,The docs asks you questions and see what you can comprehend, and what you can remember basiclly, and where your skills are coming from....This test is done to determine if surgery is done in a certain area if this would affect you in any way...
eg... my angioma is in my L temp lobe... So the docs want to make sure if they go in... how my speech comprehension would be affected, by them going in on the specific area of the angioma......
 
Dont quote me on this.... These are just my beliefs... :-) ... These are what I believe the tests are needed for... I found them on epilepsy.com also they give more detail on there.... :-)
 
Well my docs office called today... and they said they will fight the insurance company... So we shall see...
 
Thanks for listening
Have a good one...
Dor :o)
 
diagnosed seizure disorder 1989
reason, angioma in L temp lobe
seeking surgery options
Keppra 750mg
Zonegran 200 mg


Raun
New Member


Date Joined Jan 2005
Total Posts : 8
   Posted 1/9/2005 1:49 PM (GMT -7)   
I had the WADA test, and that is exactly what they do. It was a very interesting experience- I had quite a few people there talking me through it - not scarey at all.
If I had a choice to do that again or have an MRI - I would pick the WADA over the tube! Ü

Minnie66
Regular Member


Date Joined Jun 2004
Total Posts : 82
   Posted 1/9/2005 5:56 PM (GMT -7)   
Thanks Ruan,
 
I can relate... I hate MRI "S !!! I am so Claustrophobic !!! 
I have to psych myself so much when I go for one !! I am not crazy about an angiogram either,
but I guess, ya gotta do, what ya gotta do....
Thanks !!
Dor :o)

diagnosed seizure disorder 1989
reason, angioma in L temp lobe
seeking surgery options
Keppra 750mg
Zonegran 200 mg


Daisy9980
Veteran Member


Date Joined Sep 2004
Total Posts : 775
   Posted 1/9/2005 9:02 PM (GMT -7)   
So when you are awake for the wada, are you in any kind of pain?? I am a nervous wreck when it comes to new procedures. I found the MRI to be a little too close for comfort, but I could do it again. The banging noises is what really gets to me. But when I heard about the wada it sounded so cool, yet scary, I guess because I don't fully understand the whole procedure. Thanks for sharing your experience with us. Take care, Tracy
[color=purple>Tracy</FONT>
<FONT]1000 MG daily Keppra[/color]

[color=gray>&]

<FONT color=gray>Wishing Joy to the world[/color]


Raun
New Member


Date Joined Jan 2005
Total Posts : 8
   Posted 1/10/2005 4:46 AM (GMT -7)   
The day before the test they explain some simple tasks they will ask you to perform while they "freeze" each side of your brain. I was awake and answering their questions - joking with them - it was very easy going. When I was asked to perform the tasks when my right side was down it was no problem, but I couldn't do a thing when they administered it to my left side - no talking - movement anything-I knew what they wanted me to do but I couldn't- it was crazy! Knowing that the the effects of the drug were only going to last a short time made it no problem for me, it was over very fast I thought. Many times over the last five years since I have had it done I have thought of the people who live like that every day- that would be very tough. Good luck on your test, I hope you find it as easy as I did.

Minnie66
Regular Member


Date Joined Jun 2004
Total Posts : 82
   Posted 1/10/2005 9:08 AM (GMT -7)   
Thanks for the details... I know when I had an angiogram done ohh 15 years ago... It was a bad experience... but that was because they screwed up the needle.. catheda... spelling?? anyway.. I remember it BURNING !!! devil    The thought of putting one side of my brain to sleep is scary... but, if it has to be done.... it has to be done....
Thanks for the input... it helps to get personal experiences  :-)
Dor
diagnosed seizure disorder 1989
reason, angioma in L temp lobe
seeking surgery options
Keppra 750mg
Zonegran 200 mg

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