I have not been well, so I was not on here for a while, and I just didn't want you to think I left you behind in some rage over something, because I didn't.
I saw my epi 2 days ago on an emergency appointement, and after talking to me, he told me he wanted me to take more and he was increasing it.
I am not sure what to think or feel. Sometimes I feel bad, mad, or whatever. I think I have mixed feelings about this now.
Why would they increase a drug that has not been touched since they put me on it in March? They increased rapidly on it and then left it alone, and now 10 months later I take 1250 mgs of it.
Does he think my seizure are worse or something?
31 years old--born with epilepsy--undiagnosed for over 25 years. Suffered bad abuse by dad causing repeated head injuries, 3 brain infections, 4 concussions, and shingles on the brain.
Initially diagnosed last April, and it was confirmed this March after a 9-day stay in the EMU.
Diagnosed with a sub-type of TLE called Mesial Temporal Lobe Epilepsy Syndrome with Amygdala-Hippocampal seizures.
I have epileptic aura, Simple Partial, Complex Partial and Secondarily Generalized Tonic-Clonic seizures (nocturnal), and a reflex epilepsy as well with Absence and Myoclonic seizures. Myoclonics do occur as regular seizures in me, not just as a result of photic responses.
I failed 7 other drugs.
I take Depakote-1000 mgs and Neurontin--3600 mgs
--TAKE WHAT YOU CAN DO AND DO YOUR BEST WITH IT!!!!