Hello all...my friend directed me to this website as I have begun to feel more and more isolated from the world. I am 29 years old and this last fall had my first of many Grand Mal seizures. Since then I have been diagnoised Epileptic and in November started Depakote DR 1000mg twice per day. I take Xanax 2mg as needed to help with the shakes and convulsions that come with the Depakote. Since the medicine got to full capacity, I have had nearly a dozen seizures in 2010. Half of them were because I missed a dose a day or so before so we could link it to that, but the other half were unexplained. My EEG's look good (although my Neuro says that is not all that uncommon) and so yesterday he put me on Keppra 1000mg (we are going to start at 250mg and each week add another 250mg until we reach the 1000 mg per day in additon to the Depakote). I am nervous because I already have many side effects from the Depakote. So here are my questions.
Is there anyone who is taking a Depakote/Keppra combo, and if so what can I expect? Right now my side effects with the Depakote are weight gain (I put on 50 pounds in 3 months), moodiness, and being very tired, lethargic at times. My memory (short term) is gone and I rely on post-it notes and my Blackberry to remember even the simplest of things like when my kids daily events are.
I am losing confidence with each seizure and get nervous to be home by myself with the kids since there is no rhyme or reason to my seizures (I am not nervous when my 10 and 5 year old are here because they can both dial 911, but days like today it will be me and my 3 year old alone, and while I LOVE MY TIME WITH HIM, I get hung up on the "what if" that comes with this disease). Sorry for the dump here...I just have not come to grips with all this and am looking for friends and answers...I just do not want to keep isolating...I talk to my wife, but not too much as I do not want to burden her and she simply could not personally understand what I am going through myself (as I cannot understand what it must be like to be her and have her husband to care for).
Thanks for reading, listening and posting replies...appreciate it greatly.