Hi, I have been with this site for a few yrs now, but I have had colitis and usually post there.I also have epilepsy, partial complex also.I have had them for @ 14yrs. Theyhave no reason why I just had a granmal went to the hospital and ever since I have probably 1 granmal a year and for the last 3 yrs have been batteling the med thing myself. This time I have been on 1200mg of carbatrol for @ a year now, and still keep on having seizures.I finally got a doc who is sincerly interested in trying to get me to not have any, so he adds and takes away. Right now I an 1200mg of carbatrol and 100mg of lamictal??? its a new med he said. It has phenabarbatol in it. Well I started this one around xmas and on xmas day I had 3 seizures..... Very strong partial complex. I think I get the same feeling after one of theses as I do after a granmal. I had 3 yesterday in the morning, and I felt like crap all day. Its nice to know there are other people who go through what I do and who drive. Do you think we should not drive??? Can you feel yours coming? Alot of people get mad when they know my cituation and then find out I drive. I don't know....I have not had one in the car.
Any way I could go on forever........... lots of hugggggggggggssssssssssssss............................
First I want to say hi to Randy....I have talked to you on another site, I think.
As far as driving, I have always stayed concience while having these seizures. Meaning I don't convulse.Most of the time I am able to sit down.This is why he says he has a hard time treating mine.They are more like a very, very strong "desavou"(not sure how to spell that one). The granmal ones I have always had in my sleep, and I wake up in the hospital or at home with everyone around me and my mouth bloody. I am sure some can relate.
This driving thing.... The first time I had a granmal and was taken by ambulance to the hospital, I had my licence suspended.After a review and cosult with my docter I got it back. So it is not like they don't know.... I am just very careful!!!! If I was ever to get that feeling or taste I would pull over!!!!! For the most part I am on disability right now because of developeing arthritis due to my other disease and have since had major surgery to correct the colitis...(illeostomy) so needless to say I don't drive very much right now.
Thank you for your concern it was well taken.....
Unfortunately, There's always a first time.
That's exactly what happened to me. I went 23 yrs seizure free and I was of the strong opinion that if I were to have an "aura" or get that feeling just before a grande-mal, I would be able to pull over in plenty of time, but since found out that it's like playing Russian Roulette, I was fooling myself. I had a minor incident in a parking lot and as a result, I had my licence suspended.I still drove for 2 yrs but I was just lucky that nothing happened. After driving my whole adult life and then having my licence stripped away, I felt like part of my freedom was taken away. It could happen at ANY time and you won't have time to pull over. So again I ask you is it worth the gamble?
Did you hear about the lady in Florida last week that had a siezure while driving and her licence was under suspention for medical reasons?
She drove her SUV through a school bus drop off area and hit some kids. (not sure how many were killed)
As well as facing criminal charges, she will be living with this guilt for the rest of her life and never be able to get insurance.
I'm sorry but I have a problem with people who have a KNOWN seizure condition and continue to drive and then there's me who has a siezure condition that has been under control for 25 yrs and I've had mine suspended. To me that seems very irresponsible.
I am also on disability for my epilepsy and ulcerative colitis so I really don't need to drive but I'd like to have that freedom again.
Post Edited By Moderator (Rocking4Epilepsy) : 1/13/2005 6:26:26 AM (GMT-7)