Mary, I am so sorry! I agree with you that it seems odd he can tell your jerking is anxiety without seeing you!!
I am so sorry! I am sure the anxiety climbs because of a big increase in jerking!! Hoping that upping meds will help. Sounds like Ativan just for the clusters of seizures or Valium might have been a good choice.
So sorry you are having trouble with the epilepsy clinic. I know they often are harder to get in touch with or have a call back, depending on the doctor.
Hang in there! Hoping things have calmed down now...