It sounds like the tegretol is controlling the seizures with minimal side effects. That's great.
If you were worried about possible negative side effects, I think you would have noticed them by now.
Not to rain on your parade but if inproperly diagnosed, this is what COULD happen. If my sister was perscribed tegretol in the first place instead of dilantin (overdose) and pheonobarb, This story below would not have happened. BTW I also have epilepsy and colitis and have a perfectly normal life.
Parents, Please watch that you child with epilepsy is seen by a NEUROLOGIST or EPILEPTOLOGIST, not just your family doc. who may not be to familiar in this field.
I have an interesting story about my 40 year old sister who was dx'd with EP when she was 13 yrs old.
At that time she didn't see a specialist, but instead, saw her family doc who over prescribed pheonobarb and dilantin, so much that it became toxic in her system and caused brain damage after long term use.
It (the grande mal seizure) was triggered when she got her first menstrual cycle.(puberty)
At that time, my mother took her to the family doc. but instead of getting a second opinion, she let the family doc. over medicate her.
The meds were so powerful that she has never advanced past age 13. Now she's 40 and has never worked a day in her life or played any sports and couldn't even complete high school or have a family because she was constantly in a fog and everything is "TOO STRESSFUL".
I blame my mother for most of her problems because every time my mother takes her to see a doc. if she doesn't hear what SHE wants, she takes her to another doc. because she doesn't want her daughter to be labeled as having a disability. I don't have anything to do with my mother because of what she's done to my sister.(Kelly).
Now my sister (Kelly) is so messed up that she barely regognizes me, She tried some voluteer work at the hospital and I happened to be in there one day to visit a friend and when I called out to her she didn't know who I was at first for a few minutes. When she speaks (which is rare) she looks through you. not at you. You have to speak to her like she is a 13 year old or she can't understand. She can't complete a setance without messing it up.
Her gait and co-ordination is so bad that she is always holding on to something and when she walks she always looks like she's going to fall.
She's a walking vegitable. What kind of a life is that.
My mother thinks that Doctors are stupid and just like to use big words.
Thank god I was dx'd after I had moved out or that might have happened to me.
All this from being over medicated.
And she still has several grand-mal seizures. All her life until about 10 yrs ago it was weekly, now monthly. So this is what can happen if you're not careful and the meds go toxic in you're body.
I'm not looking for any help for her, she is permantley damaged and I'm just venting (pissed off)
Diagnosed with epilepsy and ulcerative colitis in 1979,