Someone be honest with me

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PBABYG81
New Member


Date Joined Jan 2005
Total Posts : 10
   Posted 2/4/2005 10:11 AM (GMT -7)   
 
    I have read some comments about those of you who do not work, or drive b/c of your   condition(s).  What I need to know is then what do you do?   Are you relying on someone 24/7?   Can you afford to live a "normal" life without working?  Have you tried a "work from home" job?   What is your situation?  Please be honest.  I need to know if there is hope b/c I cannot drive anymore and nothing is working for me to help me fix my seizures after many diff methods.

SonyaTx
Regular Member


Date Joined Sep 2004
Total Posts : 24
   Posted 2/4/2005 6:58 PM (GMT -7)   
I just wanted to say if the seizures are really bad and you cant get control of the have you thought about getting on dissability?
 
Now if you are bored find some online classes there are tons of free ones out there just do a google on something you might be interested in or find a hobby to give you something to do.I am a stay at home mom and I get bored very easily so I do the online classes for HTML, CSS, Paint Shop Pro etc and they are all free classes. I really enjoy them alot.
 
I dont have seizures its our son who does but I wanted to reply to your message. I hope you can get some control of the seizures very soon. Hang in there.
 
 
Sonya
 

DBG
Regular Member


Date Joined Sep 2004
Total Posts : 235
   Posted 2/4/2005 8:21 PM (GMT -7)   
I guess it depends are your situation.  Are you married?  I am and my husband works.  He's a police officer so we are by no means rich but we do ok.  We have three girls and I think I wouldn't work even if I was sz free cause i'd want to stay home with them.  But if like Sonya says your sz's are to the point that your aren't able to work then you should consider disability.  I'm also fortunate to have alot of family and friends around me that are always willing to take me places.  I still wish that I could drive but I guess since I haven't driven in so many years i'm adjusted to not being able to.  I know it's hard not being able to drive because it's so much a part of one's independence.  And I live in CA where public trans is lacking and if you can't drive then you are really limited. 
Christine

try2bhappy
Regular Member


Date Joined Nov 2004
Total Posts : 163
   Posted 2/5/2005 8:37 AM (GMT -7)   
How do you do a google? mary

Phoebe
Regular Member


Date Joined May 2004
Total Posts : 21
   Posted 2/5/2005 8:53 AM (GMT -7)   
Hello, I wrote you an epistle and it got lost! I will get back and try to rewrite it but for now I want you to know there is hope. Never give up on that. I also want you to do a Google search for Epileptologist. That is the specialist who treats nothing but epilepsy. That's our next step to me. Go to the google website and put n the subject you want such as the classes mentioned. I want to know how to find those too. By the way, I have the same type of seizure you do and you described them perfectly hose were Simple Partials. please check on Comprehensive Epilepsy Centers and get your PCP to refer you an Epileptologist. there is hope. You just have to fnd the right doc. What is your diagnosis? Phoebe

PBABYG81
New Member


Date Joined Jan 2005
Total Posts : 10
   Posted 2/7/2005 10:46 AM (GMT -7)   
I appreciate all your comments - more specifically on my situation - I am getting married in april and my seizures are not that extreme. I have them at very random times thru out the month which is why the situation I am in is unfair. For the little amount I have them my life is restircted so much. But, I have to work SOMEHOW!!!! My soontobe husband and I cannot live on one salary due to our college loans and house payments. And I do not beleive disablilty will be enough either. So by the sound of it I think everyone who has some type of seizure stays home, or works only part time. But again I cannot do it.

I just need advice as to what can I do? Esp about working?

Phoebe
Regular Member


Date Joined May 2004
Total Posts : 21
   Posted 2/7/2005 10:29 PM (GMT -7)   
You may be aware of this but maybe not, so I will explain. Seizures that are not stopped but are allowed to continue, can and do worsen over time. That is called Kindling, just like the word sounds. The fire gets bigger, so to speak. Many people do work, but it isn't easy in some cases. The stigma is still there. You will need to do research re your rights and the ADA. You do not have to reveal your epilepsy to them before hire. There is no need unless it would affect your ability to do the job you were hired for. There is lots of info out there on the Web. Yu wanted advice and I gave you the best I now. That was to go to a Comprehensive Epilepsy Center and see an Epileptologist so that you may can rid yourself of your seizures for good if that is what you want and if the Epileptologist feels that is the best route. Seizures worsen around your period. Due to the estrogen See Catamenial Epilepsy. Some find eating peanuts helpful since progesterone raises the seizure threshold and since natiural progesterone is made from peanuts. Estrogen lowers the seizure threshold. I know you frustration and fear. I am my sole support, and I have had many very fearful days and night re money or the lack thereof. I am now in school again working on a second career and since I have had surgery already, I feel I am on a very forward path. Live all of your life! Epilepsy should not stop you from doing whatever you want although you do have to use good sense and reason re driving etc. Good luck. Phoebe.

Axa
New Member


Date Joined Mar 2005
Total Posts : 18
   Posted 3/20/2005 7:20 PM (GMT -7)   
I don't drive, even though my seizures are well controlled - mostly because I am absent-minded (legacy of my family) ;)
 
I used to live alone for some ten years without any troubles. Sometimes my friends would give me a lift, that's all. Now my hubby is taking me everywhere, when he has time, of course. :) It's OK with me to be without driving license since I live in not all that big town with good public transport and not too expensive cabs.
 
I used to work in ad-agency as an art director, I still work sometimes in theatre (as free-lancer), but mostly live from translating. I work at home, yes, not because of E, but because of the nature of my work. I enjoy it a lot. My insomnia (side effect of Neurontin) isn't such a problem, since I can work whenever I want.
 
Axa
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