up and down, sleep and not sleep. apnea and aorias

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jcer
New Member


Date Joined Feb 2005
Total Posts : 2
   Posted 2/22/2005 12:39 AM (GMT -7)   
I am epileptic and my meds. are keepping the sezures under control it is more of the side affects.  Plus on top of the stupid epilpsy that gets my speach and that I have IBS that dows not help my sleep. 
confused  Really sucks.  Three different meds. plus taking one for my IBS.
     hating it here in Wisconsin, but thatnkful that the meds. are somewhat keeping the sezures down.
                                       James

goodwitch46
Regular Member


Date Joined Feb 2005
Total Posts : 241
   Posted 2/22/2005 1:00 AM (GMT -7)   
jcer
yeh, I know what you mean. I've had my dosage of meds rearranged so many times I don't know what it's like to feel normal anymore. My seizures are a lot better when the dosages are high but I feel really awful - what a price to pay, huh? I was on three meds until about 3 months ago, then my doc said to try to go on just two. When I did, my seizures came back! What a surprise. So, here I am on just two now but my Zonegran gives me a pounding headache all the time since the dose was upped. I don't sleep well either. I'm hoping that I can ride out the side effects and maybe I'll get used to the med change.
complex partial seizures since 22
lamictal 200mg 2x/d
zonegran 150mg 3/d


Daisy9980
Veteran Member


Date Joined Sep 2004
Total Posts : 775
   Posted 2/22/2005 5:35 AM (GMT -7)   
Yuck Yuck, I hear you.
I have epilepsy, IBS, acid reflux, and ulcer and other problems... So I am feeling your post. It sucks ... It seems like alot of E patients have IBS or GI problems too. Stress is the major culprit for us. Try to take it easy if you can. Just know there are many of us out here. I am on meds for all my GI problems. I hate taking meds. I feel like a 90 year old in a 24 year olds body :) So take care vent away, it will make you smile to see how many people feel the same as you do. Side effects are no fun. I hyope you are feeling well take care, Tracy
 


Minnie66
Regular Member


Date Joined Jun 2004
Total Posts : 82
   Posted 2/22/2005 6:23 AM (GMT -7)   
Add me to the list !!! We should take a poll, How many of us have IBS or colitis !!!
I would bet most !! If not all !!!
Hey we might as well add hemmoroids to the list tongue .......
Headaches.... Shall I go on ???
Oh goodness.... It could only get better ... right !!! :-)
feel good :-)

diagnosed seizure disorder 1989
reason, angioma in L temp lobe
seeking surgery options
Keppra 750mg
Zonegran 200 mg


SheenaGirl
Regular Member


Date Joined Feb 2005
Total Posts : 77
   Posted 2/22/2005 6:41 AM (GMT -7)   
The IBS is horrible isnt it?? I agree with all of you....it is a vicious cycle between the meds...the stomach issues and the stress....also the emotional issues with the medications .....I am on Keppra and have noticed that I have been crying a lot lately too. What do you guys eat with your IBS that you are able to keep in your system? I am having a hard time keeping anything in me. Thanks ! Take care all.
TWILIGHT ....love generously...praise loudly...live fully!! (elias porter)\
CP TL Epilepsy, IBS, Obsessive Worrying/Anxiety Attacks/Migraines
 


RanMan
Veteran Member


Date Joined Feb 2003
Total Posts : 665
   Posted 2/22/2005 10:37 AM (GMT -7)   

James, I know what you're feeling.

 

I've had Ulcerative Colitis (very similar to CD) and Epilepsy since 1979.
Both conditions are stress related (in my case).
I've had everything under managable control until 6 yrs ago, my 12 year old son was diagnosed with bi-polar (manic depression) and has been puting this family through hell.
 
Then my petit-mal siezures became more frequent(almost daily) from the added stress in the household. 
Then my UC flare-ups started to be more frequent as well and more severe. As a result I had to increase my UC meds, and since this effected the metabolic rate of my epilepsy medication, it has to be increased to the point where I am a walking zombie and afraid to go out for fear that everyone would think I was a drunk. This shows me that there are still so many people that are still uneducated about this topic.
Some people still think that if you have epilepsy, you're possessed by satin.
 
This effected my social life big time and causes depression.
It even effected my personal life.
My own family was embarrassed to be seen with me. I just had to learn to deal with it.
 
In a lot of cases stress is a major trigger for epilepsy, CD and ulcerative colitis, if that flares up then you will have to increase your meds and that can throw everything out of wack.
I thought I was living a fairly normal life but it must be worse  than I thought as my employer of 29 years has put me on medical retirement and I'm only 48 yrs old.
 
Randy (Ontario, Canada)

Diagnosed with epilepsy and ulcerative colitis in 1979,
Been on meds ever since.
 
275mg-dilantin/day
120mg-pheonobarb/day
3,000mg-Mesasol/day


RanMan
Veteran Member


Date Joined Feb 2003
Total Posts : 665
   Posted 2/22/2005 10:45 AM (GMT -7)   

James.

Did you know that it's a proven documented fact that people that suffer with epilepsy have a very high risk of having some sort of IBS or Colitis as they are both stress related.

As per the Canadian Medical Journal.

Randy (Ontario)


Diagnosed with epilepsy and ulcerative colitis in 1979,
Been on meds ever since.
 
275mg-dilantin/day
120mg-pheonobarb/day
3,000mg-Mesasol/day


SheenaGirl
Regular Member


Date Joined Feb 2005
Total Posts : 77
   Posted 2/22/2005 4:21 PM (GMT -7)   
Hi Randy and James
I am recently diagnosed with CP seizures and I have had IBS for many yrs. However since the E...the IBS has become much more severe, and the more stress I am under the more severe the IBS becomes. Take care and thanks for the info! yeah
TWILIGHT ....love generously...praise loudly...live fully!! (elias porter)\
CP TL Epilepsy, IBS, Obsessive Worrying/Anxiety Attacks/Migraines
 

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