Well, you know, the first time I had a seizure I was walking and I had this weird feeling. It was raining and I had my umbrella up. I was all alone and I thought, " Hey, I think I've done this before a bunch of times." The deja vu thing. Well, when it started to happen over and over again it was getting too weird. I honestly thought I was getting psycho. I didn't want to tell anyone. I wasn't pregnant. Maybe your hormones were the reason and the body's stress from pregnany?
My episodes gradually built up to 3 times a day over the next 3 years and finally I had an out of body experience. And then I thought, "OK, they're going to put me in the funny farm if I tell anyone." I was having incontinent episodes at night and the bedsheets were all pulled up in the morning. It was later a friend said to me, " Glenda, what's the matter with you! You stopped talking to me like you were a statue!" So, I went to the doctor and had a seizure on an EEG.
I'm the second of twins . My dad says the doctor didn't know there were twins in my mom when were born. I'm left handed and there was a possibility I was a little oxygen deprived at birth. Guess I should feel lucky they didn't leave me in there, huh? lol Anyway, my sister is fine. She is right-handed and is healthy.
I'm not scheduled for surgery yet. But because I've failed medical therapy so far, where does that leave me? Probably in the same place as you... My doc is great, he doesn't want to say, " YOU NEED SURGERY". I think he wants me to come to that conclusion myself and say, "Ok, I'm ready now." And I think I'm ready now...
I just Know somewhere over the rainbow, sky's ARE blue...
Hi, I wanted to say that I had my first(and only) grande-mal seizure whenI was 21.
The only reason that my neurologist wants to keep me on meds is because my EEG's keep showing epileptic activity in my lower left tempral lobe.
You are so funny! When we were kids were always fighting, I THought she was a wicked sister! But now, she is the GREATESt sister a person could have.
And as for the hormone thing- there are so many darn things that make seizures worse , it seems every time we turn around someone is telling us how this is bad and that is bad, etc, etc, etc. But, the fact is, we have faulty wiring in our brains and LOTS of things affect the delicate balance of that. I am told that hormones in women are especially to blame because there is a chain reaction that affects a whole bunch of other things. So, the delicate balance is thrown out of wack all the time. That happened to me too with my cycle. I could tell when I was going to get my period. The day before it came-sure enough, I would have a seizure or two. I was getting a real "charge" out of my monthly period!
Did you ever get an angiogram? I did right after I had my first MRI. It was to make sure there wasn't an AVM. The neurosurgeon said he was sure it as a cavernous angioma, "low pressure" and not needing immediate surgery, but he wanted to make sure so he did an angiogram. I thought it was a rather painful test. I could feel everything they did.- If I ever have another one, I'm going to ask to be put asleep for the procedure.
Randy- You know, I had a seizure on my first EEG - Tonic type- clinched and tightened up my whole body, opened my eyes wide... and every one after that has been totally normal! The body does weird things!!
Yes I did have an angiogram... that is how we diagnosed the angioma... I was admitted into the hospital, 15 years ago, after I gave birth to my daughter ... right after.. to have the AVM taken care of... that the doctors thought I had... Then..before the Surgery... The neurosurgeon, did the angio.. and said ... you dont have an AVM... this is what you have.... He did suggest I have it removed .. then ... But 15 years ago... he really couldnt give me any guarantees of the damage that would be done afterwards, and he said an angioma is so much less severe than an AVM maybe we should ride it out a bit... So I packed my bags .... And RAN !!!!!! The rest is history......But YES !!! I do remember the pain of it !!!! It hurt !!!!!!
Now the WADA test that I am having in April requires an angio.... and I am not happy !!!! I just remember the PAIN !!!!
So what do you mean you failed medical therapy ?? Not sure what you mean by that ....
I have to say also ... Yes.. a day before my cycle is the DAY... I love being a Woman !!!!! That was a good one...You get a " charge " out of it... I will have to TRY... to remember that one !!!
yes, you are absolutely right about the estrogen and progesterone levels! Another time that the estrogen levels are high and progesterone levels are lower is at ovulation time (midcycle). I would occasionally have a seizure in the middle of my cycle exactly at the midway point, but most predictably it was the day before I got my period.