hormones...seizures...menopause

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c.michele
Regular Member


Date Joined Feb 2005
Total Posts : 32
   Posted 2/27/2005 7:15 PM (GMT -6)   
There's been much discussion on the site about hormones and if anyone has read my story that's what my seizures are related to. (Of course until recently, when I started having them just about every other day, around 12 hrs a part. And for those of you that have been keeping up with my posts. I did go and get my Lamictal level drawn Sat. so let's see if they've changed any since my 50mg increase) Question.......Is there anyone out there that had seizures before menopause and noticed any kind of difference after menopause?
Everyone's hope for me is that when I go thru menopause it will all go away... wouldn't that be great!!!
 
cm

goodwitch46
Regular Member


Date Joined Feb 2005
Total Posts : 241
   Posted 2/28/2005 12:06 AM (GMT -6)   

cm-

I just had to reply to your post about hormones and menopause...  as for me, I had been on Dilantin and well controlled for many years, having only  3-4  CP in a year at best and very mild.  In fact, in 15 years of marriage, my husband had never even seen me have a seizure.  That was how good my seizure control  was.  When my seizures decided to escalate in severity and frequency a few years ago, it was associated with the onset of early menopause.  No amount of drug manipulation had seemed to help me, and I saw a Gynecologist specializing in catamenial seizures.  I am taking homones now in addition to my Anticonvulsants (Oh, joy).  I was averaging 12 seizures a month before menopause, and now its more like 2-3.  I think the worse part was that I was told menopause was going to be rough because with the fluctuating levels of estrogen in my body, I might expect poor control of my seizures.  That's exactly what happened to me.   So, in addition to having the hot flashes and waking up in the middle of the night sweating, I was also having all these intense CP seizures that were much more severe than I had ever experienced.    I'm happy to report that I HAVE lived through menopause, and although the seizures are not under as good control as before, at least they are a lot better than when I was going thru hormone hell!         Glenda


complex partial seizures since 22
lamictal 200mg 2x/d
zonegran 150mg 3/d


c.michele
Regular Member


Date Joined Feb 2005
Total Posts : 32
   Posted 2/28/2005 8:20 PM (GMT -6)   
Hi Glenda,
Thank you for your reply. If you don't mind me asking your age? I'm curious because you mentioned early onset menopause. I don't have a female family hx of menopause to use as a gauge since I am the only girl out of four children and my mother had a hysterectomy in her late 30's. Most GYN Dr's say you tend to follow the pattern of the females in your family. Since there are none I'm just paying attention to the signals my body is giving me. I doubt I'm going thru it.....but if this month is any indication of what it may be like....God help me.
cm

goodwitch46
Regular Member


Date Joined Feb 2005
Total Posts : 241
   Posted 3/1/2005 1:51 AM (GMT -6)   

cm-

I'm 46.  Menopause started with my periods being just irregular and having a lot of backaches.  This went on for at least 6 months and when my seizures started to get worse... I knew something was lurking around that wasn't good.  My twin sister hasn't gone thru menopause yet.  (She doesn't have E - double lucky).    My mother died of lupus at age 46 and didn't go thru menopause. 

Yes, That's right about menopause being a pattern in women in a family.  I can just tell you that with all the women that I've talked to about menopause, it's a wonder that anybody recognizes it in the first place because it never looks the same in anybody until most people get hot flashes.  Some women are lucky not to get even that!  A good friend of mine went thru menopause at age 32 if you can believe that.   My neuro told me if I went on hormones it would probably help me with seizure control because mine were so sensitive to the onset of menses, but unfortunately, I feel that the consequences of the additive effects of my anticonvulsants and hormones are contributing to this ever present headache problem. 

If you are presented with the issue of taking hormones, then make sure you know about possible side effects too.    I wish my body wasn't so sensitive to these drugs.  It's taken me over a year to just get over the nausea and lethargy with lamictal and now I am starting to feel that zonegran is the same story.  Sometimes I'm a little desperate when I have  a bad headache for 4 days straight.  That's the time when I want to get rid of the drugs one by one.  I've often wanted to try to do without the hormones to see how I would feel- but would the seizures be worse?  Heck if I know.  But like anything, there are two sides to every coin- on the days when I don't have a headache, I feel thankful that I ONLY have 2-3 seizures/month instead of 12.             Glenda


complex partial seizures since 22
lamictal 200mg 2x/d
zonegran 150mg 3/d


Sally M
New Member


Date Joined Mar 2005
Total Posts : 1
   Posted 3/1/2005 5:16 AM (GMT -6)   

Hi there,

My name is Sally amd I am 47 and have been going through the change for 2 years now only having had 4 periods in that time.

But the worse thing is that my Epilepsy is terrible at the moment,very frequent and not at all controlled.Up until this I 'd gone for 11 years without a seizure and had even stopped all AED's.

I'm feeling desperately unhappy,tied to the house and very lonely so was SO pleased to read these posts here....at least I know there are others suffering for the same reason as me.....menopause and hormones!!!

Sal

 

 


mercyme
Regular Member


Date Joined Feb 2005
Total Posts : 310
   Posted 3/2/2005 5:49 PM (GMT -6)   
 
 
 
    This post is for the ladies dealing with menopause and hormone changes which cause onset of seizures.  Every month right before it was time for me to start my period, the seizures would hit, my neurologist said that when I went through menopause the seizures would probably go away. I didn't wait for menopause to see if the seizures would go away. I elected to have the brain surgery and have done great!  I still wonder if when I go through menopause if the seizures might return, maybe that is somthing I should ask my neurologist.  I have been seizure free now for almost 3 years, only haveing a couple of auras.  I still take lamictal and probably will for a couple more years. 

BonAmi
New Member


Date Joined Aug 2009
Total Posts : 2
   Posted 8/31/2009 12:48 PM (GMT -6)   
Dear Mercyme,
I am interested in an update.  Were you able to come off your AED?  I began having arrested speech seizures with one grand mal seizure when I went into menopause.  I am now 3 years postmenopause and would love to come off my AED and am wondering if that is ever possible.  Also did you try to balance your ovarian hormones?
Thanks.

mshonda
New Member


Date Joined Mar 2010
Total Posts : 4
   Posted 3/21/2010 10:06 AM (GMT -6)   
from what I read on different epilepsy related sites and in my direct experience, peri-menopause and menopause do clearly seem to impact upon a lot of women (including me) who suffer from epilepsy. I once did mention this to a neuro (a male doc) who wasn't specialized in Epilepsy, brushed it off but then he always has this tendency to brush everything off to begin with. lol

until I had gone past my mid-Forties, never even thought of epilepsy though in retrospect, I did have quite a few other sensory, intellectual and other more subtle forms of epilepsies since I was much younger (in my teens). my diagnosis of epilepsy came only after my peri-menopause started and since, I have read personal accounts of other women who kept asking the same quetion, "is hormone related to epilepsies?". Definitely, yes.

suppose it's usually a body of research done about the subject which would convince doctors who may simply ignore speculations by patients, who are in fact, expert in knowing our own body.

cgquilter
New Member


Date Joined Apr 2010
Total Posts : 1
   Posted 4/19/2010 4:42 AM (GMT -6)   
I'm 43 years old I have been going through menopause for the last year, my seizures have gotten worse maybe one a week. I don't take medication because it doesn't work I have tried everything. Going through hormone hell, mood swings, hot flushes, and can't sleep. The doctor gave me a prescription for Citalopram this helped with the symptoms but made the seizures a lot worse, so had to come off it. Before the menopause I was controlling my seizure by using a natural progesterone cream I was seizure free for a year. Does anyone know what helps with the symptoms of menopause I think my husbands had a guts full of the mood swings. Anyone know how to make the seizures go away.

flaggerT
New Member


Date Joined Dec 2010
Total Posts : 1
   Posted 12/9/2010 11:33 AM (GMT -6)   
I had my 1st seizure in Dec 2007. no one could figure out why, had never had any in my life. Well I had an ambulatory EEG, where you have electrodes on your head and you wear them home overnite so they can read your brain waves the next day. T diagnosis was that I had something wrong in the right trmporal lobe of the brain which is the emotional and mood swing part of the brain. Well I was on my cycle when I had the test done and it showed a spike there. (go figure) I began to think that maybe this was related to menopause because of the time of the month and I was just starting in to the pre menopausal stuff, well my neurologist said it could be since they never found anything on the MRI's I had. I am on 500 mg of dilantan everyday and I don't have seizures at all. Doc tried to ween me off one time and when I was totally off for over a week I had another one, so two in my whole life. Don't have a gyno, I need one and would like to find out if this is the reason, would like to just not treat the symptom, but also the cause. yeah

stoneychild
New Member


Date Joined Dec 2010
Total Posts : 3
   Posted 1/3/2011 2:23 PM (GMT -6)   
My first seizure was when I turned 14. After years of fairly successful drug therapy of all kinds, I went through menopause.The grand mals returned. Hence at 57, I took the advice of my neurologist and after much careful though and questions, I had a right temporal lobectomy. I'm on half the drugs of before and have bee seizure free since the day prior to the surgery. (that seizure was brought on by the tension caused by my very nervous husband trying to talk me out of the surgery.) The surgery removed a piece of my hippocampus and the right amygdala, both damaged because of a baseball bet to the r side. Life can change! But as you can see, my seizures were very closely related to hormones.
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