Difficulties receiving Disability Insurance or Social Assistance

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RanMan
Veteran Member


Date Joined Feb 2003
Total Posts : 665
   Posted 2/28/2005 1:35 PM (GMT -7)   
Hi everyone,
 
I've read on several of the posts on different boards, about the difficulties people are having trying to get some kind of medi-care or social assistance. I'm reading about people having to wait two or more years or having to get a laywer and go up against a court judge to explain your case when it seems obvious that you need the assistance.
 
I'm from Canada and I find it mind boggling when I hear about all the trouble that you're having, especially when I consider that I have epilepsy and ulcerative colitis (both under control) and I had no problems at all and no questions asked and I WAS APPROVED both by Sun Life of Canada Disability and Canada Pension Disability, also unemployment insurance medical for one year (all at the same time), all I needed was a medical from ONE of my Docs.  so I went with my Neurologist (he is also familiar with my ulcerative colitis).
 
My former employer of 30 years recommended to the head office that I go off on Disability, and when that is expired-medical retirement til age 65.
 
We also have free health benefits FOR ALL PEOPLE for most drugs (if approved by the FDA) or if it's not covered, I pay for the drug and send in the receipt to my wife's employment health care plan for full reimbursement.
 
I realize that your Government is trying to cut down on fraud (ours is too, always people trying to defraud the system by trying to put in a false claim) but this is taking it too far.
 
In this country, Health Care is the number one priority (as I think it should be because of the baby-boom population getting older).
 
Sorry for the long post but I had to vent.
 
Randy (ontario)



Diagnosed with epilepsy and ulcerative colitis in 1979,
Been on meds ever since.
 
275mg-dilantin/day
120mg-pheonobarb/day
3,000mg-Mesasol/day


goodwitch46
Regular Member


Date Joined Feb 2005
Total Posts : 241
   Posted 2/28/2005 2:43 PM (GMT -7)   
Mary- I too have heard nothing from SSD in over 2 years. My lawyer has heard nothing about my hearing. This isn't the way I had planned my life to be. I am lucky to have a wonderful husband that carries health insurance and goes to work with a smile on his face. Others are not so lucky as me and I feel for them. It is so important that people stand up for each other and support each other.

I agree with Randy that basic medical care in the US has been going downhill and not going to get any better. It seems the choices get fewer and farther between all the time. Canada looks pretty attractive to many of us. I know I sure have appreciated reading and posting to the boards. I don't know what I would do without the support of people who know what I'm going thru. Glenda
complex partial seizures since 22
lamictal 200mg 2x/d
zonegran 150mg 3/d


RanMan
Veteran Member


Date Joined Feb 2003
Total Posts : 665
   Posted 2/28/2005 10:04 PM (GMT -7)   
Inability to receive healthcare and the crime rate are indirectly related.

If people have a medical disability like bipolar, manic depression, epilepsy, schizo etc, they require certain counselling and/or medications, if they cant afford it, they could start acting violent/hence, they become criminals and are labelled as "bad people" when actually they just have a medical condition that can be treated with meds (if they were made available and affordable).

Sorry for the long post but I had to vent.

Randy (ontario)


Diagnosed with epilepsy and ulcerative colitis in 1979,
Been on meds ever since.
 
275mg-dilantin/day
120mg-pheonobarb/day
3,000mg-Mesasol/day


goodwitch46
Regular Member


Date Joined Feb 2005
Total Posts : 241
   Posted 3/1/2005 12:18 AM (GMT -7)   
Randy, I hear you- most of those people that don't have insurance aren't seeing a doctor for their medical problems and few are taking proper medications.  When I look at the retail prices of the drugs I get from the pharmacy I have to laugh, I mean, who in the heck is paying RETAIL prices anyway? Even with my co-pay I still have to pay $100 a month for my drugs.  And I have insurance????  What is this country coming to?  Pretty soon,  the co-pay won't make much of a difference!     OK....now I guess I have vented also, sorry....
 
Mary,  you are a sweetheart because you speak your mind...  and yes, you are going to one of the best places for Epilepsy care there is.  U of M is a great place.  (I was born and raised in Michigan!)  Hang in there, Mary, I know you'll do OK.               Glenda
complex partial seizures since 22
lamictal 200mg 2x/d
zonegran 150mg 3/d


goodwitch46
Regular Member


Date Joined Feb 2005
Total Posts : 241
   Posted 3/2/2005 1:07 AM (GMT -7)   

Mary-  yes, now I see where you are coming from.  I do agree with you that mental illness is greatly misunderstood, just like epilepsy is...  it is too bad that so many people that need to be treated for their mental illness are not treated or undertreated.  Some do not have an understanding wife or family.  If a person is being treated for their mental illness and sticks with the treatment, they have a chance of living a normal life, but if they fall to the wayside or get lost somewhere in the cracks, they might have a relapse and have to start all over again.  I know about Community Mental Health.  I know they are there 24/7  and will be there for people.    They are a godsend for some people who would have nowhere to go.  There are also other agencies that work closely with CMH in each community that act as a half-way house for people that don't have a home that is safe to go home to. 

We all  hear stories of people who are criminals that are untreated schizophrenics and depressed, etc, etc.. but for the most part, anyone that works in mental health will tell you that mental illness does not = violence.  

The problem is when millions of Americans do not have health coverage and can't afford to go to the doctor.  They are caught in the middle.  You have to have a great job or be poor to have health coverage.  I have relatives that can't afford the premiums because they are self-employed.  They couldn't put food on the table if they paid what the insurance companies were asking for monthly coverage.   My favorite uncle needs meds for his diabetes, liver disease and depression but because he is self-employed he is struggling to pay the premiums for insurance. What a life!   Even I get depressed thinking about it!!   Perhaps Randy was thinking about the number of people that do not get their medication that turn to crime to vent their anger at this inefficient system.

Anyway, I'm being longwinded about the whole thing, more venting too...   Glenda


complex partial seizures since 22
lamictal 200mg 2x/d
zonegran 150mg 3/d


goodwitch46
Regular Member


Date Joined Feb 2005
Total Posts : 241
   Posted 3/2/2005 9:09 AM (GMT -7)   

Hi Mary,

You have every right to vent.  You have a lot on your plate right now. Although I can't put myself in your shoes,  I too have some of those same frustrations and fears.  I too fear my impending surgery and hope that I will get through it.  The drugs are no fun and  I thank God every day I don't a seizure.   I guess now that I have vented about the topic in this thread I feel I a little better.

I'm sorry you are having to deal with all those things too.  But if you are as Italian as your mother, I believe you won't give up without a fight either.  Am I right? :-)      Thanks for letting me vent too....   Glenda


complex partial seizures since 22
lamictal 200mg 2x/d
zonegran 150mg 3/d


Gumbee
Regular Member


Date Joined Feb 2005
Total Posts : 24
   Posted 3/2/2005 10:36 AM (GMT -7)   
smurf  Hi I know in tis a struggle and   Difficulties receiving Disability Insurance or Social Assistance in getting it I have Brother in that spot Just Keep fighting and do not give up
Best of Luck
Gumbee

RanMan
Veteran Member


Date Joined Feb 2003
Total Posts : 665
   Posted 3/2/2005 11:32 AM (GMT -7)   
MARY

1) When I said "Mental Disability" I was referring mainly to bi-polar, manic depression schizo etc, IF IT GOES UNTREATED as a result of unaffordable health care. NOT EPILEPSY. Yes I have researched it and also experienced it first hand as my son is bipolar/manic and when he had an episode that went untreated, he became very violent. If the police didn't know about his manic depression, he would have ended up in jail but instead he was taken to the hosp and was there for the whole summer of 2002. When I went there to see him, there were so many people in the same situation. As soon as they take their meds they are so mellow.

2) I was not critisizing your country-JUST THE HEALTH CARE SYSTEM.

Randy
Diagnosed with epilepsy and ulcerative colitis in 1979,
Been on meds ever since.
 
275mg-dilantin/day
120mg-pheonobarb/day
3,000mg-Mesasol/day


RanMan
Veteran Member


Date Joined Feb 2003
Total Posts : 665
   Posted 3/2/2005 11:49 AM (GMT -7)   
goodwitch46 said...

Mary-  yes, now I see where you are coming from.  I do agree with you that mental illness is greatly misunderstood, just like epilepsy is...  it is too bad that so many people that need to be treated for their mental illness are not treated or undertreated.  Some do not have an understanding wife or family.  If a person is being treated for their mental illness and sticks with the treatment, they have a chance of living a normal life, but if they fall to the wayside or get lost somewhere in the cracks, they might have a relapse and have to start all over again.  I know about Community Mental Health.  I know they are there 24/7  and will be there for people.    They are a godsend for some people who would have nowhere to go.  There are also other agencies that work closely with CMH in each community that act as a half-way house for people that don't have a home that is safe to go home to. 

We all  hear stories of people who are criminals that are untreated schizophrenics and depressed, etc, etc.. but for the most part, anyone that works in mental health will tell you that mental illness does not = violence.  

The problem is when millions of Americans do not have health coverage and can't afford to go to the doctor.  They are caught in the middle.  You have to have a great job or be poor to have health coverage.  I have relatives that can't afford the premiums because they are self-employed.  They couldn't put food on the table if they paid what the insurance companies were asking for monthly coverage.   My favorite uncle needs meds for his diabetes, liver disease and depression but because he is self-employed he is struggling to pay the premiums for insurance. What a life!   Even I get depressed thinking about it!!   Perhaps Randy was thinking about the number of people that do not get their medication that turn to crime to vent their anger at this inefficient system.

Anyway, I'm being longwinded about the whole thing, more venting too...   Glenda

Well put Goodwtch46
 
Randy
 


Diagnosed with epilepsy and ulcerative colitis in 1979,
Been on meds ever since.
 
275mg-dilantin/day
120mg-pheonobarb/day
3,000mg-Mesasol/day


SheenaGirl
Regular Member


Date Joined Feb 2005
Total Posts : 77
   Posted 3/2/2005 6:03 PM (GMT -7)   
Hey Mary....I read your story and may I say that I am very sorry for what you went through in the past, but am very impressed by your attitude and courage and determination. I am Canadian and all I have to say is that I am so very thankful for all the support that I have received from all of you on this forum....universally......I couldn't do it without you all.....thank you all for your kind words and support I think you are the greatest! Sheena
TWILIGHT ....love generously...praise loudly...live fully!! (elias porter)\
CP TL Epilepsy, IBS, Obsessive Worrying/Anxiety Attacks/Migraines
 


mercyme
Regular Member


Date Joined Feb 2005
Total Posts : 310
   Posted 3/2/2005 7:53 PM (GMT -7)   
Hi, I have read your post, and agree that we need better health care in the USA. I too had to fight for my ssd, I finally got it, but had to pay my lawyer $800.00 not fair, but what do you do?
I have had brain surgery to stop the seizures, and I am doing great. my only problem now is a bad back due to falls I took during 30 years of having seizures. and I still have migraines, so I am still on disability. I do pray that I can go back to work one day, I never wanted to try to live on ssd which is hard to do anyway. I am so glad I found this web site. do you know of any epilepsy chat rooms?
I am now doing volunteer work for the Epilepsy Foundation in Northeast Tn. I have joined a support group and I share my testimony with many people to give them hope. I also go to schools to help teach epilepsy awareness to teachers and students. See there was a purpose for all that I went through, now I am giving back to those who are in the place that I was. It's a wonderful feeling! I feel so blessed!

Blessings to you all!

Mercyme/Cindy

goodwitch46
Regular Member


Date Joined Feb 2005
Total Posts : 241
   Posted 3/2/2005 11:37 PM (GMT -7)   
If our lives went as planned, we wouldn't need a support group like this.....I agree also that we all have a common link that binds us. I appreciate the support and I will support each of you. Although each of us has to carry our own burden, it seems a little lighter with so many others giving a helping hand. American or Canadian? I don't care. Mostly, I just want to know how I can help YOU today, because I may need YOUR help tomorrow.... let's not let argument lead us to contempt for one another.

(I'd rather talk about chocolate and good movies...!) (((((To All of You))))) Glenda
complex partial seizures since 22
lamictal 200mg 2x/d
zonegran 150mg 3/d

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