Just reading your post... I'm thinking, right-o... you hit the nail on the head. That is exactly what I'm thinking. How many times have I been out somewhere and I said to myself... Oh, NO... I feel it coming....and I want to escape because I know the seizure is going to happen outside the safety of my home. I feel vulnerable...
A perfect example is when I was just about done with my physical exam and I was sitting on the exam table, in my little gown, and the doctor was talking to me. She is a super nice person and was talking about who knows what, I don't remember... I had a CP right there.
Well, she had gotten up and was standing at the counter looking down at the desk looking into my chart trying to find something, and talking to me the whole time and she didn't notice it. I was fighting the feeling the whole time, trying to supress what I was feeling. It lasted about 60 seconds or so. When I was coming out of it, she looked up at me and said something like, " What do you think of that?" And, of course, I didn't know what in the heck she was talking about.
My brain was scrambled at the time and all I could remember was shrugging and nodding my head. I think she was puzzled but it apparently was an acceptable answer, as she patted me on the shoulder and told me to get dressed. She probably thought I was acting really weird. I didn't want to tell her I had a seizure! Just more explaining to do!
God, ...the surgery is worth it so I don't have to go thru ANOTHER episode like that...
When people say, " I HOPE you don't need the surgery." I know they mean well. But to tell you the truth, I hope that I DO need the surgery to fix it. That way, it will be done and over with. I agree with you 100% Dorothy. NOBODY sees it thru your eyes. (maybe except your fellow sufferers!) Glenda
p.s. I forgot to say....About your Dad
I'm so sorry you are having to deal with that too. Dads are precious and its so difficult to see it happening in front of you. Sorry he has to go through that. Sorry you have to go through that too.
You need an extra, extra, extra big hug.