I'm Allison, 27 yo woman with CP seizures from age 12. I had a very hard time getting a diagnosis and wasn't put on anti-epileptics until age 20. I was on Dilantin one year then Tegretol(500 mg X 3) until last week but was still having breakthrough seizures at a rate of 4-5 generalised sz a month. Also I never had an MRI until 2 months ago when I switched neuros. The new neuro says I have a lesion in my Broca's region - one of the speech areas of the brain, left frontal lobe (I was previously told it was my MTL). I have auras and automatisms often with secondary generalisation. I'm aphasic and have trouble moving my right side for up to 20 mins after a seizure. My neuro says this is normal bc of the focal area, but I've never heard of anyone else who gets this.
I'm being gradually weaned off the Tegretol and onto Lamictal. But I didn't think Lamictal was used as monotherapy? My neuro thinks I'm a good candidate for surgery and wants to try it if I fail the Lamictal as well. But I don't see how he can be so glib about surgery in my speech centre - I need that!
Finally, I used to have Jacksonian cluster seizures (m/d as Tourette syndrome) all the time in childhood, but not at all since I finished high school. Again, my neuro says it's normal to have seizure type & frequency change in adulthood but I am so confused. It doesn't make any sense at all to me.
I guess I've gotten really distrustful of drs and am looking for reassurance that I'm not getting jerked around again by this new guy. Thanks for listening and I'd really appreciate hearing your opinions/advice.
Post Edited (hobbit) : 3/12/2005 11:59:10 PM (GMT-7)