New member - Broca's region, Lamictal, ?s

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hobbit
New Member


Date Joined Mar 2005
Total Posts : 2
   Posted 3/12/2005 11:56 PM (GMT -7)   
Hi all,

I'm Allison, 27 yo woman with CP seizures from age 12. I had a very hard time getting a diagnosis and wasn't put on anti-epileptics until age 20. I was on Dilantin one year then Tegretol(500 mg X 3) until last week but was still having breakthrough seizures at a rate of 4-5 generalised sz a month. Also I never had an MRI until 2 months ago when I switched neuros. The new neuro says I have a lesion in my Broca's region - one of the speech areas of the brain, left frontal lobe (I was previously told it was my MTL). I have auras and automatisms often with secondary generalisation. I'm aphasic and have trouble moving my right side for up to 20 mins after a seizure. My neuro says this is normal bc of the focal area, but I've never heard of anyone else who gets this.

I'm being gradually weaned off the Tegretol and onto Lamictal. But I didn't think Lamictal was used as monotherapy? My neuro thinks I'm a good candidate for surgery and wants to try it if I fail the Lamictal as well. But I don't see how he can be so glib about surgery in my speech centre - I need that!

Finally, I used to have Jacksonian cluster seizures (m/d as Tourette syndrome) all the time in childhood, but not at all since I finished high school. Again, my neuro says it's normal to have seizure type & frequency change in adulthood but I am so confused. It doesn't make any sense at all to me.

I guess I've gotten really distrustful of drs and am looking for reassurance that I'm not getting jerked around again by this new guy. Thanks for listening and I'd really appreciate hearing your opinions/advice.

Post Edited (hobbit) : 3/12/2005 11:59:10 PM (GMT-7)


goodwitch46
Regular Member


Date Joined Feb 2005
Total Posts : 241
   Posted 3/13/2005 12:33 AM (GMT -7)   

Allison-

First, let me say Welcome to the forum.  It's a great place... :-)

You've had a really rough time, so sorry for everything you've had to go through.  It's definitely frustrating when you don't feel good and you don't think you are getting the answers to your questions.    The fact that you have the additional stress of thinking of surgery is adding to the stress of already dealing with all the stuff you've been thru. 

It is confusing when you have so many questions that need to be answered.  Do you have a appointment coming up?  You definitely have to have a frank discussion with your neuro about your concerns and questions.  He should be able to give you the information better than anyone.  If you aren't sure if you'll remember all of your questions - make SURE you write them down so you don't forget.   You have to trust the person that's treating you and you HAVE to talk to him/her to find out if they know what you are all about.  If your doctor rushes you out the door, then you'd have to ask yourself, "Is this the kind of doctor that's listening to ME?" 

Hang in there, Allison.  You'll get great support from the members here.  Come back as much and as often as you need.  :-)               Glenda


complex partial seizures since 22
lamictal 200mg 2x/d
zonegran 150mg 3/d


kayakmom
Veteran Member


Date Joined Jul 2003
Total Posts : 585
   Posted 3/13/2005 10:55 AM (GMT -7)   
YOu sure went through a long time before getting proper care! SO glad you have moved to a new neuro who is helping!

Sounds like your neuro is right on. When you have questions, even if you just saw him. You can call. I try to have them all written down so I do not forget or waste time. Some neuros do allow email if used cautiously.


Lamictal can be used as mono therapy. I think it was first used only with another. Many meds have this and the older literature on it does not show how it is currently used. I have a friend who is on it for monotherapy.
Hope it helps you a lot!

hobbit
New Member


Date Joined Mar 2005
Total Posts : 2
   Posted 3/13/2005 5:12 PM (GMT -7)   
Well I'm actually pretty ticked off at the new guy. I first saw him months ago and he set up an appt for the MRI (8 mo wait) but basically didn't take me seriously, saying he suspected pseudo-seizures. But that I could stay on the Tegretol "if you think you need it". Before I was put on Tegretol I was having auras several times a day - was put on antipsychotics for it which obviously did nothing for me. The generalised seizures were written up as either panic attacks or TIAs (I was on blood thinners for a little while too aged 15-17).

So anyway I finally get the MRI done in Jan and now the neuro who gave me the brush-off last year is trying to talk me into brain surgery! And lecturing me on how I have a serious condition and need to treat it aggressively like I'm the one who's been dragging my heels for 15 years!

One last thing - I don't have any depth perception. I had a closed-head injury the same year I started having the seizures and my last neuro said the epilepsy and vision problems were both from that. But the new guy doesn't think that the head injury has anything to do with the epilepsy. And even if it did it's not in the right area to cause vision problems. So he's referred me to an opthamologist, my appt isn't until June.

I'm feeling pretty stressed out and irritated.

kayakmom
Veteran Member


Date Joined Jul 2003
Total Posts : 585
   Posted 3/13/2005 7:56 PM (GMT -7)   
Oh, I hate doctors like that!! I am so sorry you are not getting clear answers for anyone!! If you do not like this new guy, head on to number 3! I know it is so hard and then you have the different opinions dancing in your head and it is confusing for sure!

hang in there! Hoping the Opthamologist can help figure the vision trouble out!
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