Well, people are just not replacable ... so doing what you are doing is probably the most you can - this way you can even prevent someone else's death. It's a big work!
Post Edited (Axa) : 3/24/2005 6:35:59 PM (GMT-7)
This is my own experience with my parents as far as overprotectiveness...
When I first was diagnosed I was already in my 20's, out of the house...I was on my own by then and my parents would call me all the time with the kind of concern you would expect from worried parents. When things got better and my seizures got under control, they stopped calling me so much and things went back to "normal" again.
A few years ago when my seizures became uncontrolled again, my parents were calling me every day asking me how I was doing, did I get enough sleep, etc. I got all kinds of lectures about the relationship between caffeine and seizures, chocolate and seizures, stress and seizures, loud music and seizures, etc, etc. It was driving me crazy. Not only were my parents doing it, but somehow, my parents had talked to my Aunt, Uncle, Sister, and Brother on the phone and they were giving me the same lecture!!! I was getting pretty tired of all the calls and lectures. I felt that I couldn't do anything without someone's permission!
So, one day, despite being given a hundred warnings not to be by myself at any time, I decided to walk down to WalMart - which is a 2.5 mile walk. I went shopping and loaded up the backpack that I wore on my back, and walked home. The whole trip took me 4 hours. When I got home, there were several messages on the answering machine... from various people, wondering where I was. A few minutes after I got home, the phone rang! It was my sister - she was frantic wondering why I hadn't answered the phone. I said, " I went shopping at WalMart." She said, "How did you get THERE?" I said proudly, "I walked!" Well, I never heard the end of that when my parents heard the story as you can imagine.
I think when a person's independence is taken away, not having the freedom to go places, having the feeling of being treated like a little kid, ... all these things make it hard for a person with seizures to feel normal. I mean, I know they mean well... but, I don't want to feel Special, I want to feel normal....
Post Edited (Axa) : 3/24/2005 7:16:29 AM (GMT-7)