When "epilepsy" isn't epilepsy

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stonewolf
New Member


Date Joined Mar 2005
Total Posts : 1
   Posted 3/27/2005 10:40 PM (GMT -7)   
My mom was recently diagnosed with epilepsy by a neurologist and was put on tegretol. Last night she had seizure that was all on her right side and her arm was jerking violently and she was really scared. This was the first time she had a visible one, usually it was a slight tremor in the hands or thumbs. Before it was just a twitch in her fingers combined with a headache. We don't feel that she was correctly diagnosed because of other symptoms which don't match up to epilepsy.

- Occasional memory loss (long and short)
- Numbness followed by pain at the base of her skull
- Slurred speech during an episode (but not last night)
- Blackout
- Seizures on the right side
- Confusion (sometimes an inability to repeat what you've said, and even worse when dealing with numbers)
- Instability walking, banging in a corner (misjuding)
- Occasional face droop

Things that have been ruled out:
Stroke
TIA
MS
Aneurism
Tumors/lesions on the brain

She's had mutiple MRI's (neck and brain), CAT scans, blood tests, EKG, EEGs all that was turned up was a B12 difficiency which was treated by injections.

Does anyone have an idea of any other possibilities. (Not a diagnosis, but things to ask the Neurologist about)
She's currently in the hospital awaiting a 24 hour EEG.

She's really scared and I am as well.

goodwitch46
Regular Member


Date Joined Feb 2005
Total Posts : 241
   Posted 3/28/2005 10:59 AM (GMT -7)   

Stonewolf-

It does sound like your mom has already had quite a work-up for the problems she's had.  Hopefully something will come of the 24 hour EEG.  I guess the questions I would be thinking are: what is the next step in diagnosis and are other medications or treatment to be considered.  Is your mom going to be seeing any other kinds of doctors?  Does your mom have any other kinds of health problems?  Is it stress related?  Does she keep any kind of a diary of the episodes to see if there are any triggers to set them off?  Hope that helps.   Good Luck with you and your mom.  Let us know how everything turns out...

Glenda :-)


complex partial seizures since 22
lamictal 200mg 2x/d
zonegran 150mg 3/d


kayakmom
Veteran Member


Date Joined Jul 2003
Total Posts : 585
   Posted 3/28/2005 11:51 AM (GMT -7)   
Those things can all be symptoms of epilepsy. It does sound liek she has had a good workup. She can always get a second opinion! Hoping the 24 hour EEG can be arranged soon.
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