HALO (Shaun) Where are you

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RanMan
Veteran Member


Date Joined Feb 2003
Total Posts : 668
   Posted 4/28/2005 12:36 PM (GMT -6)   
Shaun, need to know if you're still around, I need an update on your situation.
 
 
Randy
 
Diagnosed with epilepsy and ulcerative colitis in 1979,
Been on meds ever since.
 
275mg-dilantin/day
120mg-pheonobarb/day
3,000mg-Mesasol/day


kayakmom
Veteran Member


Date Joined Jul 2003
Total Posts : 585
   Posted 4/28/2005 7:34 PM (GMT -6)   
Hey Shawn, I am wondering about you as well. Hoping things are going ok.....

Ginny

HALO
Regular Member


Date Joined Nov 2004
Total Posts : 167
   Posted 11/29/2005 11:13 AM (GMT -6)   
I'm back. Things have been really crazy. Sorry for not posting lately. I'm taking Topamax now. Seems to be helping some. I was down from 6 seizures a week to about 1 every 2 months. Now, I'm starting to have them more frequently again. I have an appt with my neuro on Dec. 15. I'm still trying to get him to "officially dx my with epilepsy. He did write a letter to my insurance company that said I was his patient that had a long history of chronic epilepsy. But, he was unsure if they were true epileptic seizures. Basically, he told me that the Topamax would not effect mny seizures in any way if I did not have epilepsy. He said without saying (if that makes any sense) that he feels that I have epilepsy. But in his words, "The gold standard of epilepsy diagnosis is that until he can catch a seizure on video EEg he can't officially dx me with epilepsy." I've had 2 VEEG's. the center that my insurance will cover has dx'd me with NES twice. They already have their minds made up. I didn't even have a seizure the last time and that's what they said. The other center in the state my insurance won't cover. So, that's where I'm at right now. Frustrated, confused, and just down right aggrivated. Plus, my wife's family is from Picayune. MS right off the Gulf Coast in Mississippi. They're all ok. But they're houses are all damaged very heavily. So, we're all dealing with that. Thank you Randy, Ginny, and Jennifer for thinking of me
Shaun
No one left behind!
1*
RLTW


RanMan
Veteran Member


Date Joined Feb 2003
Total Posts : 668
   Posted 11/29/2005 11:58 AM (GMT -6)   
Shaun:
Glad to hear from you. Good luck with your Dr's appt. in Dec.
I'm glad to hear that your wife's family is OK and good luck with the re-building. I can't begin to imagine the devastation.
 
Randy
Diagnosed with epilepsy and ulcerative colitis in 1979,
Been on meds ever since.
 
275mg-dilantin/day
120mg-pheonobarb/day
3,000mg-Mesasol/day
20mg-Celexa/day

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