Has Anyone Been To A Seizure Clinic??

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mom46
Veteran Member


Date Joined Dec 2004
Total Posts : 8198
   Posted 7/17/2005 2:11 PM (GMT -7)   
Hi,
  I have never posted here before, so here's a little info about me. My name is Babs. I'm 47 years old. I mainly post in the Lupus forum and the MS forum.
  I have lupus, RA, Fibro, Sjorgens, Raynauds, Diverticulitis, A lung condition from lupus, Seizures and possible MS.
  I had a mild stroke in May of 2004. I started passing out, falling around and getting very light-headed in March of this year. I went to a Neurologist and had an EEG done and he said I was having complex partial seizures. He put me on Keppra 500mgs twice a day, and had to raise the dose to 750mgs twice a day, but I continued to have the seizures everyday. I was admitted into the hospital in April for evaluation and more testing. I was there for 5 nights. I had an MRI that showed white spots consistant with MS and a ST that showed 4 bands of abnormal protein also consitant with MS, but I have no dx yet. I also had alot of tests done on my heart and they were all normal.
   While I was in the hospital he put me on Depakote along with the Keppra. When I was released I was a zombie from the Depakote and had to come off it. The seizures and falling spells continued until the first week in june, but were no longer complex partial seizures, they were simple partial. I have only had a very few seizures since then and my balance is alot better.
  I have an appt at a Seizure Clinic in Birmingham on the 26th of this month for a consult. My question is: Have any of you been to a seizure clinic and what should I expect at the consult? I was told that I may be admitted to the clinic sometime after the consult and taken off my meds for possibley 2 days to a week. Do they take you off all your meds or just the seizure meds? When your in the clinic, do you just lay in a bed for a few days or do you go through some testing? I'm just trying to get an idea of what I may be facing during this. Any help with this would be greatly appreciated.
  Sorry this was so long, I just wanted to give you some background info that may help. Tks in advance. Hope your all having a good weekend. Take care and God Bless!!
                                                Babs
Diagnosis: Lupus and Restless leg syndrome 1990, RA and  Fibro 1994, Sjoren's and Raynaud's 1995, Diverticulitis 1998, Seizures April, 2005
 

JOB 5:18 For he wounds, but he also binds up; he injures, but his hands also heal.
 
Please help Healingwell succeed in helping others. Any donations will be greatly appreciated.
 


mom46
Veteran Member


Date Joined Dec 2004
Total Posts : 8198
   Posted 7/18/2005 2:02 PM (GMT -7)   

Hi Jen,

   yeah yeah   Tks for your response!! It's good to know they won't be taking me off my other meds. I'm sure they will see some seizures when they take me off the Keppra and I hope they find out what is causing them. I just hope they don't make me wait another month or two to be admitted to the clinic.

   Tks for you help. Hope your having a good day. I know you are doing alot of packing for your move.

   We are having a MS chat tonight at 9pm est. I hope you can join us for a bit, if we have anyone there...hehe!!  I do hope it will be a good turnout.

   See you later and take care!!

                                            Love ya, Babs


Diagnosis: Lupus and Restless leg syndrome 1990, RA and  Fibro 1994, Sjoren's and Raynaud's 1995, Diverticulitis 1998, Seizures April, 2005
 

JOB 5:18 For he wounds, but he also binds up; he injures, but his hands also heal.
 
Please help Healingwell succeed in helping others. Any donations will be greatly appreciated.
 

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