I have been epileptic since I was 7 and several years ago during a particularly stressfull time in my life I began to have what sounds like Type A of what your daughter seems to be experiencing.
After several bouts of test, one of which was hospitalization w/a 24hr. EEG, I was told that I was suffering from pseudo-seizures which is basically a fancy term for "false seizures". My doc told me that while they are "false" seizures they are still, in fact, seizures to a point and that there is a very real cause for them.
Have you/your daughter been referred to a psycologist/psychiatrist? Is she taking any meds at all? This came out of the blue with no apparent cause?
Please get back to me and let me know how things are going. It can be frightening when these things occur and there seems to be nothing you can do to help. The feeling of impotence can be immense.
I was originally diagnosed with epilepsy when I was 5. I have numerous abnormal EEG's. Now, They're saying that my seizures are actually Non epileptic. But, I'm on my Dr has me on Topamax AND it's actually helping to partially control my seizures. I asked him if my seizures were truly non epileptic would the meds conrtol them and he said "no". I'll be 32 in March. Why the sudden change in diagnosis? I completely understand your frustration. I have been to a psycologist who said that he feels I show enough neurological symptoms that I DO have epilepsy and not NES. I don't know why these Dr.s won't listen to us.
After reading all the posts, I just have to say...I'm glad I'm not alone. I have had epilepsy for nearly 25 years and just had brain surgery 5 months ago. Back when I was 22, I didn't even realize it was complex partial seizures I was having for the first 4 years before I was diagnosed. I thought I was just overtired and feeling sick.
For years I thought all my episodes were seizures. It was a real eye-opener when, during my video-EEG to prepare for my brain surgery, the camera captured a "seizure" on the video. After it was over, I asked the technician who watched me the whole time if she saw me have the seizure, and she told me I didn't have any seizure activity on the EEG! I learned from researching that a significant number of people with epilepsy have NES as well. My doctor didn't make me feel like there was something wrong with me.
The bottom line- always work to find the BEST solution, work WITH a doctor that you trust, and SUPPORT the ones you love emotionally.
Have you seen a neurologist regarding these seizures? It sounds like it could be epilepsy but epilepsy is not the only cause of seizures and so a proper medical exam would probably be best. I am 21 and have been epileptic for about 6 years and I understand how scary it can be when you are not sure what is happening.
My name is Terri, My son is currently in the hospital with back to back seizures. He is 29 years old and was diagnosed with epilepsy about 8 years ago. Currently the doctors are saying he has sudo seizures (fake seizures). His whole body shakes but he can hear us and he reacts to amonia and pain stimulant. The doctors are saying that he is causing these seizures psychologically. The doctor ordered a psyc consult yesterday and now on top of all the other seizure medcations he will be taking an anti depressent. I know my son is depressed, any body would be if they lost thier job, their (so called) friends, and the freedom to drive and just go any where on his own. He has lost his purpose and I feel it is up to me to help him find it again. I'm his mother and I'm always supposed to make things better and now I feel I can't.