Non-epileptic seizures? Has anyone experienced this?

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mercyme
Regular Member


Date Joined Feb 2005
Total Posts : 310
   Posted 2/17/2010 8:08 AM (GMT -6)   
Hi, I dealt with complex partial seizures for over 25 years of my life. I had brain surgery in 2002 to remove scar tissue from the right side of my brain, which was the cause of my seizures for all those years. I had something crazy happen to me in Dec. I was just falling asleep when I could smell this burning smell which in fact wasn't there at all. I've heard some people that have seizures smell things that aren't there and this is an aura for them. I've been dealing with a lot of stress so who knows maybe that's all it is. with your sudo seizures what happens during the seizure? how do you feel during it? I still take lamictal 125mg twice a day, I also take klonipan (sp) at night. I will be on the lamictal the rest of my life but that's ok as long as it controls the seizures. I pray I never have another seizures. God is good!

Many Blessings,

Mercyme

prynce2s
New Member


Date Joined Mar 2010
Total Posts : 1
   Posted 3/27/2010 9:01 AM (GMT -6)   
i am having what they call psudo seizures and i have had doctors tell me that i do this for attention and i need to pretty much jack myself up when one of these episodes start to happen and tell myself to quit. i get very emotional when i am going thru ths because i feel that i am being a burden to people when i have these. i want to know has anyone found out any information what causes these or any advice anyone can give me? i am in the process of finding more doctors that can help me out a little more and actually care more about their patients.

iammi
New Member


Date Joined Sep 2010
Total Posts : 1
   Posted 9/16/2010 5:37 PM (GMT -6)   
Hi, I am 41 and just started seizing in May 2010. My neuro says it's psuedo and my psych says its seizures. I am on anti-anxiety drugs and the seizures have increased in frequency, diversity, length of time and multiplicity. I have had as many as 8 or 9 back to back before the first could fully release. When they are over, I am in pain and can only sleep. I do not lose consciousness and I can talk through most. However, more recently my face twists to the right and my tongue sometimes cuts off my airway. When I go to the doc, they increases my meds. When I go to ER, I am told to see my neuro (who increased my meds). I am at a total loss. Can anyone help?

brainmalfunctions
New Member


Date Joined Jul 2011
Total Posts : 1
   Posted 7/10/2011 11:24 AM (GMT -6)   
Hi. I guess I have been looking for this kind of forum for a while. I have non-epileptic seizures that started January 2010. I am 19. My doctors kept telling me it was psychopsomatic until I was seizing for an hour and a half straight last may and I was taken to the emergency room where they finally had me talk to a neurologist who was interested. He gave me the name of someone to do an overnight EEG which made them decide that I had to see a neurologist specialised in non-epileptic seizures and a psychologist. But I was out of the country for months. The usual pattern of my seizures is paralysis or pain that lead into alternating 5 min of full body seizures (but I am always conscious, although unable to display it) and 5 minutes complete paralasis. This lasts between 20 min and 3/4 hours. I have had about 26 since they started. My last one was two weeks ago. It started when I was in the swimming pool...
They have evolved over time. It used to be that they were only triggered by intense pain (I had back problems for three years) and then... well, now bright or flashing lights set it off. But this has also evolved so that sometimes its migraines instead.
I think some of the worst things about these problems are the names... a 'fit' or a 'pseudo'-epileptic problem sound like the person is faking it. My doctors are francophone and so call it a 'malaise' literally, a dis-ease. I had to find the english term through my own research. And they tell me it is caused by 'brain-malfunctions'. Geez, do doctors sit up at night and try to come up with weird terms that make it awkward and hard to be taken seriously?
my doctor says that there is no medication or treatment possible... I guess we'll see.
She tells me: try to live a normal life. It makes me feel like she took a prescription card and wrote 'Good luck!'
How can I live a normal life?

AmyKK
New Member


Date Joined Jul 2011
Total Posts : 2
   Posted 7/29/2011 5:40 PM (GMT -6)   
hiya, i kept having episodes where i would just blank out in the middle of a conversation and my eyebrow would apparently twitch and my eyes roll back into my head then after i dont remember anything. my mum was certain i didnt have epilepsy, and then i was walking up the stairs at school and had an episode and collapsed, but was able to get up straight away, bearing in mind i was 15, and just started developing symptoms, i went for a brain scan, and results were i had absent epilepsy, which i am supposed to grow out of, and develops in teen years. i chose not to take medication as the episodes only last for 30 seconds and around twice a week. I have noticed this only happens when im hungry, tired and thirsty. Many teens develop this, and quickly grow out of it, i am now 17 and the episodes have calmed down. hope this helped.

Melony
New Member


Date Joined May 2011
Total Posts : 6
   Posted 8/1/2011 4:23 PM (GMT -6)   
Hi just replying to Tillie who posted awhile ago, my husband suffers with NES has done since he had a 3 way nerve block done in the base of the right side of his head due to ahorrific pain, after having MRI and EEG showing fine he thought that he was getting disbelieved until an ambulance man whitnesses a seizure. My husband is under a physyciatist who is fantastic he also has a Community Matron who by chance was an epilepsy nurse, when he came to visit my husband he asked if we had been explained the difference between epilepsy and NES, he said with NES the brain mimics a possible epileptic seizure  but they are real and you cannot do anything about it, it will just happen. If that's any help to you, hope you get sorted as my husbands has gone on now for 28months now. Take care
 

narol
New Member


Date Joined Nov 2008
Total Posts : 10
   Posted 12/29/2011 7:04 PM (GMT -6)   
How many of the people here have non epileptic seizures AND celiac?  I believe they are related.  There is info out  there about brain allergies that can trigger seizures.  The articles say the brain allergies are likely with celiacs because of the nutrition/malabsorption issue.  Something about brain barriers being weakened.
 
I had for a week of seizure monitoring.  Afterwards, my doctor told me that seizures are usually epileptic or psychological in origin.  The probability of other causes are so low, they are not even considered.  When you have seizures that are not epileptic, the diagnosis is psychological and you are sent to a psychiatrist.

I'd like to know how often celiacs are diagnosed this way?

Please relate your experiences.

Lisapalmer
New Member


Date Joined Jan 2012
Total Posts : 1
   Posted 1/10/2012 5:32 PM (GMT -6)   
Hello, my son started having seizures last November and after a stay in the hospital for almost a week and before that 5 trips to the ER the neurologist put him on dilantin and topomax and said he had epilespy. He had one other seizure after that last June. Just about three weeks ago he started having them again. All of them when he was at track practice or at a track meet. The doctor said exercise was not related, however his coach thought so. Last thursday his doctor added keppra to his other two meds. Again with trips to the ER. Then this past weekend he was at a track meet two hours from home we got a call from his coach, he said he was seizing and they were transferring him. When we got there he was still coming in and out of seizures. They had given him massive doses of meds to stop the seizures plus two bags of keppra. They said if that didn't work they would paralyze and intibate him. He stopped thankfully and was admitted to ICU. The next day he had two more seizures and one of the nurses described it to the neurologists. When the doctor talked to us he mentioned for the first time maybe he didnt have epilespy it could be non epileptic seizures. That really threw me as I have never heard of this. He has had four EEGS all were normal. Now after convincing my son he has epilespy we are presented with this. I'm frustrated, confused, scared of losing my son, and don't know what to do next.

Scared mom in NY

AngMichelle
Veteran Member


Date Joined Apr 2006
Total Posts : 932
   Posted 1/11/2012 11:42 AM (GMT -6)   
I am 27/f and started having seizures around 18. I was dianosed with PNES (psycogenic Non epileptic seizures). My seizures vary from what looks like a grad mal to absence. I can have back to back seizures and sometiems a seizure can last 12 hours, completly unconscience, occasional loss of bladder controll, and I always have memory loss. I had a seizure last so long once I was on a ventilator for 4 days to prevent muscle damage,etc. I never had an abnormal EEG during this period. I was eventually treated with ECT. not for the depression but my doctor was part of a study showing the ECT effective for treatment of PNES. It did help, but I struggle with short term memory loss and you have to continue maintenece treatments as well. But after having up to 30 episodes a day the ECT was a great option.
( I strongly believe anyone should have a COMPLETE neuro work up with Video EEG, and an actual seizure has taken place while on EEG w/ video, etc before a PNES diagnosis is even considered)
I went 12 weeks without an episode, but started having a few about a week ago.
Also, I wanted to mention that when I eventually have to go to the ER I receive a Geodon shot IM. This has always worked, even better than ativan or valum.
I want to tell those Mothers and others suffering from this that one with this diagnosis CAN have a good quality of life. After some time and treatment and reprogramming the body to express emotions in a healthy manner rather than dissisocition through seizure, it does get better. It takes a while and is a frustrating process. the hardest part for me was people who are completely ignorate of was a PNES is. I do not let any one use the term PSEUDO with me because they are in no way "false" or "fake". So many nurses can be simply cruel b/c of lack of knowledge. I encourage you to fully support your family members that many struggle with these seizures. It is hard and scarry and unconditional love and attempt to understand is vital.
I wish the best to you all!
Ang

Migraines, Ovarian Cyst, repeat and multiple jaw dislocations, depression/anxiety, PTSD, and the list goes on
On Jan 17th 2008 I had a very traumatic situation ending in a colostomy. had the reversal which put me through months of hell, but better now. I have had over 12 pretty major surgeries, 100's of "procedures", my immune system is a NO GO. I've been in and out of the hospital for the last 10 years. I have no real Dx's really. I have a lot of "Psuedo" (sp?) symptoms, so they say. This in just 24 years and its just half the story. (Violin's playing yet?)

Meds: Celexa, Klonopin, Serequel, Hydrocodone)

 May God give you a reason to smile today, an extra reason
to laugh, and bring joy to your soul.

narol
New Member


Date Joined Nov 2008
Total Posts : 10
   Posted 1/14/2012 11:04 AM (GMT -6)   
Has anyone noticed a correlation between shots, like allergy shots or flu shots, and their seizures or behavioral issues?  (like brain fog, staring, being unable to put things together in their minds...)  Especially with PNES diagnoses? 
 
I have found that I do have an association.  I had allergy shots and after a while, and started having seizures.  Stopped the shots, and seizures stopped.  Was told there could be no possible connection, so I started the shots again, and several months later, the seizures started again along with speech problems and twitches.  I stopped the shots and problems like fogginess continued, but no more seizures.  The fogginess cleared up pretty well after many months, but then I had a flu shot and the next day the fogginess was back along with severe speech problems.
 
Anyone else notice this?

Post Edited (narol) : 1/14/2012 10:10:42 AM (GMT-7)


Naed
New Member


Date Joined May 2012
Total Posts : 1
   Posted 5/14/2012 6:56 PM (GMT -6)   
I have been reciently diagnosed with NES Siezures. I am 61. We are not sure as to the primary cause but the symptoms are erratic and hard to concontrol behavior with totoal memory losss after the occurence.
I have found the best preventitive is to drink drouble strength GatorAid, the lactic acid has been depleted it seems.
THC also helps to keep stress levels low since high stress is always involed when they get triggered.

dreamweaver_53221
New Member


Date Joined May 2012
Total Posts : 1
   Posted 5/18/2012 4:12 AM (GMT -6)   
Wow, I thought I was the only one! I am 46 and have been having these pseudo seizures for about two years now. I've always had tremors but the seizure activity is a "recent" phenomenon. They come in clusters and seem to happen around my cycle. So frustrating. I cannot drive, or go anywhere unattended. My freedom and independence is no longer enjoyed.

narol
New Member


Date Joined Nov 2008
Total Posts : 10
   Posted 5/18/2012 9:12 AM (GMT -6)   
I believe one component of my speech and seizures is nutrition.  I have been taking sublingual B complex, and my speech is improving.  Fewer freezes and jerks in my face and neck.  Clearer thinking and faster response.  Is it the B? Is it the warmth and sunshine we have been experiencing?  Maybe the D vitamin in the sunshine?
Whatever it is, I am grateful and hope this can help others.

Caz 2012
New Member


Date Joined May 2012
Total Posts : 1
   Posted 5/19/2012 8:29 AM (GMT -6)   
43/F In Nov 2011, I was weaned off my migraine preventative too quickly which set off the NES seizures which I still have daily.
To control the migraine now, I’m taking 2x daily doses of Topamax and 100mg of Botox injected around my head to stop the head seizing. Within hours of the injections, I was able to speak properly again. I was put on Baclofen for the seizing also. This had an added advantage of getting rid of leg cramps that I was regularly experiencing prior to the initial NES seizures starting.
An injection of Cortisone in the shoulder and right hip under ultrasound gave great relief and reduced the seizures in those areas. I saw a Chiropractor to help with my balance. Diazepam continues to helps with the nerve pain. I’m very much conscious while I’m violently shaking all over.
I have been diagnosed as having dissociated seizures brought on by pain, stress or tiredness. The Neuro’s recommendation is to keep the pain completely under control while I see a Clinical Psychologist to deal with the underlying triggers. I’ve been told that I’ve got to rebuild the subconscious to understand the information that’s in my brain. Then work on a way to build a strategy to cope with that information. This is all well and good but when you’re working full time and trying to keep your kids clothed and fed, who has enough time to pull their brain apart!

libralady
New Member


Date Joined Aug 2012
Total Posts : 1
   Posted 8/5/2012 2:24 PM (GMT -6)   
My son has recently been diagnosed with non-epileptic seizure disorder, he is just 16 years of age and only a few days ago wrote his account of what he has been going through to post onto a web site. I will copy and paste his story, hope it helps someone and also helps him with feedback, maybe someone else has experienced similar: Please take into account, that these 'episodes/moments' can be finished by getting me to fall asleep, after this I am back to my 'normal' self and can continue with my 'normal' life. Also each and every 'episode/moment' I have, I have no recollection of any - bar one behaviour.

My story,

It's been ever so interesting seeing what has been happening to me over the past 9 months, bearing in mind that for the other 15 years I've been alive, apart from asthma and being hit by a car; they were the only two points of illness of my life - minus a few stomach bugs, and such.

November, I started with, well, my girlfriend began to notice, I had points where I would just stare blank in to space, without any show of awareness of my surroundings, I would just stare at one place, until someone touched, or shouted my name, where I would look around and finish with a massive cheesy grin on my face.

It came to mid-November where the doctors were notified and I was given multiple appointments with the same GP, she was lovely and went through every test they could possible do at a GP; they then came to the conclusion when all the tests were complete that there was a huge possibility it could be petit-mal seizures. She then recommended me to one of two hospitals, one of which was a two week wait to see the specialist paediatrician at Kingsmill (Mansfield, England), and the other was a 6 week wait to go to a closer hospital to see a Doctor with the same qualification as the specialist. but this appointment was at The Queens Medical Centre (Nottingham, England). My parents wanted to know as soon as possible so we opted for the two week wait.

It came to the appointment, when the specialist confirmed the theory of petit-mal by inducing one by getting me to hyperventilate, this being showed allowed her to book an appointment for an EEG (electroencephalogram) at the Queens Medical Centre. We heard nothing for a while to find when the appointment was. The same evening I displayed an agitated behaviour when it appeared I couldn't quite get my words out. Getting quite agitated and annoyed, I proceeded to hit things, such as walls and slam cupboards. (Please bear in mind I have absolutely no recollection of these events). Seeing this behaviour had my father drive me down to the Queens Medical Centre's accident and emergency block. Where I began to show a new behaviour instead of showing the previous behaviour. I was showing behaviour one would expect from a three or two year old.

That evening I was admitted in to the E39 children's neurology ward.

Over the 9 days spent there, each day my girlfriend would come to visit, I would look forward to each visit, but as after the second day, I became quite annoyed of sitting at my bed all day, which lead me to seem ungrateful towards her, looking back, I shouldn't have been so grumpy to her. Over the course of nine days I began to display a new behaviour, which my parents and girlfriend seemed to declare a trigger of the 'episode' which was a young baby across the ward to me, crying and screaming, in the 'episode' My face would twitch and I would hit my head, each time, would hit the exact same spot, the right temporal lobe, but as the days progressed and I became more agitated the hitting of the head would become harder, every now and again my parents, or girlfriend would film me, in a desperate attempt to show the nursing staff, or the doctors the behaviours I display.

There came a time where as we could show one of the doctors the video my girlfriend took on her phone, once we showed him, he just seemed to comment on how good quality her camera was and asked what phone she had! He didn't even comment on me, and if he'd seen this behaviour before, ever so bizarre.

I had many tests at the E39 ward, I had, urine samples, stool samples, multiple blood tests, sleep deprived EEG's, all day EEG's, CT scans, MRI scans. The bizarre part, they were all clear, everything in working order.

It came to the mid of the second week I'd been in where as the doctors deemed me safe to go home, and the same behaviours carried on, until one day 'Storage wars' was on the television, whilst I was in an 'episode' where 'Dave Hester's' way of bidding is/was a 'yeeeeeeeeeeeeep' whilst in this 'episode' every time he shouted his key saying, I mimicked him, with my own little hearty 'yip' which my parents and siblings and girlfriend seemed to find very amusing indeed, after this, we stopped referring to the seizures as 'episodes' but as 'moments'.

It was a few weeks after the transformation from not being able to form a word, or trying to for that matter, to being able to speak, not much, but it was a start regardless. After that, I began being able to form sentences and string together conversations, but not like how I would outside of a moment, but in a very childish manner. These 'moments' still happen today, and haven't really changed, the only thing that seems to change is that, where I focus on different theme for an amount of time. These themes became apparent when it was my girlfriends birthday. The main theme was birthdays. Where I would proceed to pick up an item and give it to someone and wish them a happy birthday, regardless of what the item was/is, or whether or not it was actually the persons birthday or not. When I say regardless of the item, I mean really, the 'moment' me has picked people up and given them to people as 'presents'.

The next theme seemed to be that where I would keep telling my girlfriend we're getting married. I would make rings out of paper, give her sweet rings, tell her places we're getting married, and would draw images of two people stood next to each other holding hands whilst a 'vicar' was in the middle of the two on a stand. An interesting variation of the drawing included the 'vicar having a *****'.

Bearing in mind this year was my last year in secondary education and I had multiple exams I had to sit, and 'resit' because I had missed them. I had missed four months of my last year of secondary education as school deemed me unfit to go back, as health and safety wouldn't allow it. My mother was absolutely furious that they would prejudice over a child who had missed four months and had multiple GCSE's to sit, with an unexplained disability - at the time anyway. It came to the end of the four months and my mother putting together an intervention sheet, what they would have to do if such happened, she also had to sign a form, allowing the teachers to touch me if needs be. Being introduced back in to school was hard, as people were asking where I'd been, and being assigned a teaching assistant who would care for my every need.

At first it was hard, I wasn't allowed into lessons until I was back into the general pattern of waking up. I didn't really speak to the teaching assistant who looked after me in the house office (we have houses at the school) until about a month in, when I was actually allowed back into lessons. She was absolutely amazing, anything that made me feel uncomfortable, she sorted.

Anyway, it was when I was getting back into full time education, when another behaviour came about. I would lose complete control over my body, and I would collapse wherever I was, which was a problem for school, because they had many hard wooden floors, and a lot of upstairs classrooms. But the odd things about these 'moments' is that I can recall everything that happens in them. It was tough, I'd rather me not recall them, as it's harder to see how people react when I fall onto the desk and I cannot move, but it's also good, because I could tell people how to deal with it. In the school they have a 'quad' area, where the 'quad' is filled with picnic benches to allow the pupils to eat outside under a shelter, the 'quad' itself is about a foot deep from the top step, and it's only sods law that I was stood on the top step when I had a 'moment' and if it wasn't for the help of two good friends of mine, I would have cracked my head open on the concrete floor I was dropping towards. This became a regular thing at lunch time. Personally I think it was the general amount of noise the pupils were talking which could have triggered it; but my friends were always cautious and always caught me, except for one time, where I fell back and hit my head on the top step. I couldn't remember anything after that, apart from waking up at home in bed.

It was mid May where I was half diagnosed with Psychogenic Non-epileptic Seizure Disorder. Which the family were happy with to receive. It was a start, finally after months of nothing, we finally had something to go off. After that we were referred to the Psychiatry team at the Queens Medical Centre where they confirmed the Psychogenic Non-epileptic Seizures. We still see the Psychiatry team today, and we have fortnightly meetings to see how things have progressed/changed.

Nothing had changed up until a few weeks ago, where a new behaviour was developed, where once again I couldn't talk, or recognise others are talking to me. The childishness of the 'moments' are still present in the new 'moment' as I would pull out toys from when I was around 4/5 like the old 'brio'. It's only been this past week, where I have began to jump over my garden fence and go for a walk, after that (it's happened twice, so I'm just averaging), that I wake up in the other childish 'moment' state where I find myself to be lost. The first I was discovered by my brother and my other brothers boyfriend who came and found me only about 20 metres up the road, but tonight (August the 2nd) that I had wandered into a wood nearby, and woke up in the other childish 'moment' state once again, where I was seen to be completely lost, the 'moment' me rang my girlfriend and told her that I was lost, to which she told me to look for a house, after a few minutes she rang my mother, who in turn got the police looking for me. To show how childish the 'moment' me is, I referred to a slug as 'A monster'.

After about an hour of being on the phone to my girlfriend, I was told to hang up as the police were going to ring me. The person who spoke to the 'moment' me told me what to do, to which I followed the instructions, he then told me that a police helicopter was going to land, and that I should wait for then, it was only after the helicopter landed that I was escorted off of the field I was lost on to where I was taken home safely to my parents. It was only after I had waken up on my sofa, to which I was greeted by a police man, who told me of all the events that had taken place this evening.

If you have read all of this, I am truly grateful you have taken the time to read and see what the past 9 months have been like for me, it hasn't been easy for anyone, my family, my girlfriend, my friends. It's been hard on us all, but I am so grateful to them all for sticking with me throughout it all.

Thanks again, and I hope it has enlightened you all to how serious these conditions actually are.

Jake:) x

dawnmarie13
New Member


Date Joined May 2013
Total Posts : 2
   Posted 5/20/2013 3:31 PM (GMT -6)   
Hello, new to this but have read what everyone has said. I have two types of seizures grand mal and non epileptic seizures. Mine steamed from physical abuse. As for the non epileptic seizures I'm new to this and don't really understand it. My neurologist said he found it critical I see a therapist and go from there..... so confused . I know when I have grand mal I see spots the warnin signs sometimes, stop breathing from what I've been told, urinate sometimes, unconsious, don't remember anything afterwards and all I want to do is sleep I hurt so bad. Then the nes I can't respond legs and arms shake but nothing compared to the grand mal ones. I went to therapist did intake and will have first apt next week. Hopefully someone can explain because I am really confused .

S2LR
New Member


Date Joined May 2013
Total Posts : 2
   Posted 5/24/2013 10:54 AM (GMT -6)   
All,

If you get a diagnosis of "psychogenic, pseudo, non-epileptic, etc." type seizures just based on a negative EEG, it's time to fire your neurologist and find another one. Just because the EEG is normal during seizure activity doesn't mean that the seizure is psychogenic in nature. There are deep brain seizures, attributed to some organic or other cause, that are very real. Unfortunately they can only be detected by invasive tests that go beyond the typical nodes on the surface of the scalp done by a regular EEG protocol. Many more thorough tests must be done before a correct diagnosis can be pronounced for any seizure disorder.

The bottom line is don't fall for the "pseudo seizure" diagnosis just because your EEG is normal during your seizure. Get more tests done because there may be a legitimate organic cause for your seizures that could be treated by anti-epileptic meds or surgery. A pseudo or psychogenic seizure diagnosis will send you down a psychiatric path that might not be the right thing to do.

Good luck to you all in your quest for a correct diagnosis to your seizure disorder...

Lorraine234
New Member


Date Joined Jun 2013
Total Posts : 9
   Posted 6/17/2013 6:51 AM (GMT -6)   
Hi, I have a very long history of these type of siezures.They too, started when I was a teenager. I had every test you can think of. I was having these seizures 2 or 3 times a day and each time had to be taken to a&e. I wound up being extremely depressed and anxious.
 
Please, please get you daughter on fluoxetin or a similar antidepressant. You might also want to look at reflex anoxy syndrome. I know it doesn't tick all the boxes but it does happen more in adults than doctors have noticed and observed. Also, talk to you daughter about cognitive behaviour therapy. This does help. It is difficult and will only help if she is willing to do the hard work.
 
I am sorry if this is over presumptious or causes offence. That really isn't my intention. I just dont want any one to suffer the way I have.
I wish you all the best.

mfarnam91
New Member


Date Joined Jul 2013
Total Posts : 1
   Posted 7/4/2013 11:46 AM (GMT -6)   
I have been having "psudo seizures" for about 9 months and am being told theres nothing wrong with me. they are triggered by many things Including lighting. I am about to jump off a bridge, and have been to all of the major hospitals in the Seattle area. any help? suggestions?

Lorraine234
New Member


Date Joined Jun 2013
Total Posts : 9
   Posted 7/5/2013 1:24 AM (GMT -6)   
don't jump of a bridge! There is help out there, just because they've been labled as "psuedo" seizures doesn't mean you in control of this or the blame in ANY way! stress can be a contributing factor and migrains, but I don't believe there is just one cause.

PROUDISLANDER
New Member


Date Joined Jul 2013
Total Posts : 1
   Posted 7/22/2013 1:17 AM (GMT -6)   
im 19 years old and i have had seizures for 13 1/2 years, im non epileptic and ive basically had almost any kind of seizure there is. And no, i dont think ur daughter is having non-epileptic seizures.

Uhura
Regular Member


Date Joined Nov 2005
Total Posts : 166
   Posted 8/5/2013 3:00 PM (GMT -6)   
Sorry if this is too late. I just joined the group. I used to have non-epiliptic seizures and epileptic ones. The NES went away on their own. The happier I felt the more likely I was to have an NES and the more depressed I was the less likely I was to have an NES.

In my NES I would look as if I were having a grand mal but I was conscious. I had smaller NES also, where it was only one arm that seized.

NES are very real. Not faked. The causes may be different from the epileptic ones but that doesn't mean they are being faked or done for attention.

ellaberry
New Member


Date Joined Aug 2013
Total Posts : 1
   Posted 8/13/2013 8:07 AM (GMT -6)   
Hi I have a friend who has started having seizures. When they happen he never passes out he talks while it happens and it always happen after being out in the sun and he sweats a lot. Has any one heard of this before. He does have a lot of stress and mental issues, with the recent loss of a sister a month ago and he is bipolar. confused

SunnySkyJan
Regular Member


Date Joined Aug 2013
Total Posts : 38
   Posted 8/17/2013 8:43 AM (GMT -6)   
I'm hoping everyone has either CT Scans or MRI's before classifying it as False Seizures. Mine were caused by Brain Tumors, and I'm still on my Dilantin and Phenobarbital....the ancient drugs of seizures but the only ones that work for me!

Vic74
New Member


Date Joined Sep 2013
Total Posts : 2
   Posted 9/22/2013 12:51 AM (GMT -6)   
Mum going mad
Hi my daughter as a baby had epilepsy then at 4yrs of age came off all medication and has been fine for 10yrs,until this April. She had a cluster of seizures and put back on medication and once it started to work it seemed to calm down. Until Thursday she had one at school, one Saturday and early hours Monday morning they were her normal seizures. Then midday Monday she started having violent seizures lasted 2 mins-8 mins called ambulance went to hospital... All I can say from then on she didn't really stop they tried giving, phenytoin lorazepam and paraldehyde but still for the next 72hrs she was in and out of fits all the time she was lucky to get a 2hr break in between a cluster, one seizure was non stop for a hour! Now they are saying they think she has epilepsy but these are non-epileptic. They are going to arrange for her to go to therapy this is all well and good if it's true as you will understand she only came out of hospital Friday, my brain is muss at the moment can't think straight.. Just wondered if people on here that suffer non-epileptic seizures have you been told your seizures are more violent and what do you / person looking after you do if you don't stop fitting i.e. Do you still go to hospital as I can't handle 3hrs of what I've witnessed her going through let alone another 72hrs and at home. Really could do with some advice as doctors didn't say and I was stupid and forgot to ask. confused
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