Temporal Lobe Seizures

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Cloudy Days
New Member


Date Joined Jun 2014
Total Posts : 4
   Posted 6/6/2014 12:13 PM (GMT -6)   
Hello,
 
I have a question about temporal lobe seizures. My husband has some mental problems and I was talking to my therapist the other day and she suggested that I look into seeing if my husband might have Temporal Lobe Seizures. He's been diagnosed with Borderline Personality Disorder, PTSD and Brain Damage. The main reason I think he could possibly have these kinds of seizures is that he describes some very unusual feelings from time to time. I have been trying to read about what the symptoms are like and what a seizure actually feels like and it seems that they are very different from person to person.
 
My husband would obviously be better to describe what he is feeling but I am going to do my best. He's described smelling something burning that wasn't there before, he complains of headaches all the time and he's told me several times before that he feels shocks in his brain, like electricity shocks that last for a couple of minutes. I am not with him throughout the day however a lot of our problems with each other have to do with him having racing and obsessive thoughts that just all of a sudden come on, like a rush of emotion that is very overwhelming for him. He said it's like flashes of upsetting memories or pictures. I do know that he occasionally sees things and he has tinnitus (ringing in his ears) from time to time as well. He also has times where his leg and arm muscles will twitch or spasm but never at the same time. He has Deja Vu all the time, but I have noticed that it is when he is stressed out and out in public when he has the Deja Vu the most. I don't know how all of this plays out though. He said he will feel the electrical shocks in his brain and then the emotions will come on strong. The thing is sometimes he will calm down quickly and sometimes it will take him several hours to calm down. Sometimes something triggers it and sometimes he will just pick a fight with me out of nowhere. He does occasionally black out and it is when he has his most erratic behavior. I have thought that this was from his PTSD, but I read something that said PTSD symptoms could be triggered with people who have TLE. He's also said that he disassociates and feels like he is in a dream like state, usually not clearly remembering or not remembering at all what happened but he is very clearly alert and usually very volatile and mean during these times. 
 
Could any of you give me some insight? One thing that stood out to me was that my husband uses Marijuana to calm his symptoms in general and it works really well. He doesn't tolerate medications well. However when he runs out it's pretty much a nightmare to be around him. From Obsessive thinking to paranoia to the weird sensations he has in his brain and the rest of his body. He complains of back and neck aches, a rising feeling in his stomach or acid reflux, the muscle spasms, headaches, shaking, tinnitus and the hallucinations or delusions. He's told me he's seen flashes of light before too. I sort of thought he was making this stuff up because none of it really makes sense.
 
When you have a seizure do you have all these symptoms at once? Because his don't seem to happen all together besides the rush of emotions. He does have a brain injury, he had neuropsychological testing done but never an EEG. He's been doing EMDR therapy to help with the PTSD and it seems to send his brain into overdrive so he's stopped it because it's too much for him to deal with. My therapist said someone with seizures might have a reaction like that since the brain is being stimulated.

Post Edited (Cloudy Days) : 6/6/2014 12:26:03 PM (GMT-6)


JungRulz
Regular Member


Date Joined Jan 2014
Total Posts : 394
   Posted 6/7/2014 6:34 PM (GMT -6)   
Hi, Welcome to HealingWell,

Try this link, it discusses much of what you described.

www.epilepsy.com/learn/types-epilepsy-syndromes/temporal-lobe-epilepsy

I'm not an advocate of marijuana, but oddly enough, the Epilepsy Foundation seemed to be supporting some aspect of it in regard to seizures, you may find their information of some interest.

www.epilepsy.com/search/site/marijuana

Please be sure to visit the Epilepsy resources on HealingWell as well.

www.healingwell.com/epilepsy/

I have TLE, if you have any more question after reviewing the above material, please feel free to ask.

Post Edited (JungRulz) : 6/7/2014 6:39:23 PM (GMT-6)


Cloudy Days
New Member


Date Joined Jun 2014
Total Posts : 4
   Posted 6/9/2014 11:09 AM (GMT -6)   
All I know is that when I looked up these kinds of seizures it was noted that people who used MJ needed to use it without interruption or their seizures would come back with a vengeance. That's the only reason I mentioned that. I do believe my husband probably has some mental problems that are not caused by seizures in any case. He's just been through a lot. I was just wondering how long a seizure could affect someone's mood. He doesn't ever loose the ability to speak or move and he never seems to be out of it. But he does forget things he has done. He's outright thought I was lying to him because he couldn't remember doing something that was very serious and I was trying to fill him in.

I do believe he has Borderline Personality Disorder, I read that these seizures could be linked to BPD. It seems likely enough to me because it deals with the same part of the brain. When someone gets a rush of emotions because of a seizure, do the emotions go away after the seizure is done? My husband can be doing just fine and then all of a sudden he will start talking fast, he will meander into something very traumatic and then turn on me because I am there. Is it common for people to have flashes of bad memories during these episodes?

Post Edited (Cloudy Days) : 6/9/2014 11:17:05 AM (GMT-6)


JungRulz
Regular Member


Date Joined Jan 2014
Total Posts : 394
   Posted 6/11/2014 8:06 PM (GMT -6)   
Hope these help, the first one seems to have more detail.

The Double Storm

patients.aan.com/resources/neurologynow/?event=home.showArticle&id=ovid.com:/bib/ovftdb/01222928-200703020-00025

Pathophysiology of mood disorders in temporal lobe epilepsy.

www.ncbi.nlm.nih.gov/pubmed/23429849

Copy and paste this last link, I can't get it to link properly.

Pathophysiology of mood disorders in temporal lobe epilepsy.

http://www.scielo.br/scielo.php?pid=S1516-44462012000600008&script=sci_arttext

Post Edited (JungRulz) : 6/12/2014 2:21:19 AM (GMT-6)


Cloudy Days
New Member


Date Joined Jun 2014
Total Posts : 4
   Posted 6/12/2014 8:39 AM (GMT -6)   
Thank you for the links. Wow, Borderline Personality Disorder is the most common personality disorder with these kinds of seizures. I sort of hope he is having seizures, it would explain some things and give him some other treatment options. Therapy just has not cut it and he was told that medications don't help people with BPD. So he has been reluctant to stay on meds.

He's been in therapy for around 2 years and while some things have improved, he really is not any better. He has a very hard time using the skills he has been taught because in the moment he can't remember them. Which could be a side effect of seizures. He doesn't have a great memory, but he was told that was from the brain damage. He was also told that his ability to control his anger is affected, it's like he doesn't have a filter, when the flood gates open they stay open until nothing is left. Then he goes back to normal. It's like dealing with two different people.

JungRulz
Regular Member


Date Joined Jan 2014
Total Posts : 394
   Posted 6/12/2014 1:21 PM (GMT -6)   
I learned while researching the question. I have TLE, anxiety and OCD type things are common for me.

One article mentioned the following:

"Dilantin and phenobarbitol, the first medications approved for temporal lobe epilepsy, stopped generalized seizures, but still permitted the localized discharges that make the amygdala susceptible to Geschwind syndrome.

Newer drugs such as lamotrigine, topiramate (Topamax), and felbamate (Felbatol) appear to do a better job at quelling electrical activity in the temporal lobes. These drugs also stabilize mood."

I take Dilantin, but about a year ago, or so, I started experiencing this bizarre fear of everything (Just about anything I thought about would cause fear, if I saw a skyscraper I'd be afraid I couldn't build one, if a saw a soda bottle, I'd be afraid I couldn't design one), I visited my doctor to document the phenomenon and look for advice, no treatment was suggested. I also had a persistent sinus infection then, and phoned my ENT for advice. He gave me an Rx for antibiotics. Didn't resolve the infection. Called him again, Rx for Antibiotics again, and Prednisone added. Not expecting change for the fear issue, I awoke one morning and the fear was gone. I suspect the sinus infection caused inflammation which effected the nearby amygdala, which is the fear center in the brain, and the Prednisone resolved the inflammation. I found an article online proposing such a mechanism, I lived it firsthand.

I'd speak with his doctor, if seizures are part of it, an anti-Epileptic medication may help.

Cloudy Days
New Member


Date Joined Jun 2014
Total Posts : 4
   Posted 6/12/2014 1:40 PM (GMT -6)   
I've also seen a lot of information that's said meds do not always work for this type of seizure. My husband has a hard time tolerating meds, he's taken Depakote, Lamictal, Elavil, Risperidol, lithium, too many to name honestly.
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