I don't know what's wrong with me

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Alicia6312
New Member


Date Joined Oct 2014
Total Posts : 4
   Posted Yesterday 9:42 PM (GMT -6)   
I'm 23 years old, and until late june of this year, I never had any major health problems. Just 2 months before the first "event" I was honorably discharged from the Marine Corps.
Ive had headaches for about 2 years after a car accident, but military docs just gave me otc headache pills and told me to be on my way. Sometimes headaches last up to 48 hours with nausia and dizziness. I know that cant be normal.
The first time, I was participating in a river float down with friend's, and after being in the Arizona summer sun for 4 hours, I was a bit dehydrated when finished. When it happened, my friends and I figured it was a one time thing and to stay better hydrated. But a week later, another seizure/event happened.

They occur every 3 weeks or so, and unfortunately due to health insurance, I won't be able to get any testing or medication for this until Jan 2015. I'm in college, and a mild one happened in the middle of class (leaving me pretty embarassed). Now its escalating to where I also have these "zone-out" kind of episodes, from what my classmates tell me...they have said Ill zone out for up to 20 minutes, unresponsive to sounds or touch.

I've never felt so helpless and not in control over my own brain. I have random bruises on my arms and legs, always feel exhausted from my muscles being so flexed during the events, and last night woke up with a swollen/busted lip.

I just want it to stop, or at the very least know what's going on.

Lanie G
Forum Moderator


Date Joined Nov 2006
Total Posts : 5928
   Posted Today 9:26 AM (GMT -6)   
Welcome to HealingWell, Alicia. A neurologist is the specialist who treats patients with epilepsy. You need to be tested. These episodes could be dangerous to you. Since you are in college, can you go to the school health center and have them look at you? Basic health care is normally part of tuition fees. At the very least, they should be able to send you to a doctor to evaluate you.

If you have an episode, you should also go to the nearest ER where they must take care of you at that time. You can sort out the insurance part at a later time if necessary.

I wish you well.
Lanie

diabetes moderator
diabetes type 2 controlled by diet and exercise and
metformin
very low carb way of eating

Alicia6312
New Member


Date Joined Oct 2014
Total Posts : 4
   Posted Today 7:19 PM (GMT -6)   
I was taken to the nearest urgent care when it happened in class, a doctor looked me over and was able to give me a referral to a neurologist, however she said the testing I need will rack up to thousands of dollars without insurance. And she can't even start me in any type of medication without the eeg. Until then, I'm told to keep a journal of how I feel before and after the events.

jujub
Forum Moderator


Date Joined Mar 2003
Total Posts : 10405
   Posted Today 7:23 PM (GMT -6)   
I believe the yearly enrollment for insurance under AHA is starting now or very soon. That might need to be a priority for you this year, so you can get the care you need.

Untreated seizures tend to get worse over time, and uncontrolled seizures over time can lead to brain damage or even death. Please do whatever you can to get insurance, and let us know how things work out for you.
Thyroid forum moderator

Ulcerative colitis since 2001, starting 8th year of remission with Remicade.
Inflammatory osteoarthritis; osteonecrosis from steroids
Grave's disease treated with radioactive iodine and now on Levothyroxine.
Type II diabetes induced by steroids.

"It's always something." ~ Rosanne Rosannadanna

Alicia6312
New Member


Date Joined Oct 2014
Total Posts : 4
   Posted Today 7:35 PM (GMT -6)   
It took me a while to just get in the system with BCBS but they said they won't legally begin to cover me until jan 1 2015, due to some rule about it being more than 30 days of me going to school after my discharge.
Thank you, I'm doing everything possible to keep safe, and luckly I'm still doing exceptionally well in school. Ill be sure to post updates.

Alicia6312
New Member


Date Joined Oct 2014
Total Posts : 4
   Posted 1/24/2015 9:42 PM (GMT -6)   
I've finally been able to be seen by a doctor who started me on Topamax, which seems to be slowly helping. After many many tests an EEG showed a lesion in my left lobe that my doctor said may be the cause from my car accident.
I have more neurology appointments where we will continue to find the answers I need and hopefully repair whatever is going on inside my brain. Staying optimistic!

Georgia Hunter
Veteran Member


Date Joined May 2012
Total Posts : 1939
   Posted 2/17/2015 12:21 PM (GMT -6)   
Some people have hypothyroid issues after automobile accidents. I'm assuming they did CAT scans and an MRI to rule out structural abnormality. Sodium levels must be regulated constantly. Too much sodium is bad, too little sodium is bad. If your events are happening on a cycle, they are most likely either hormone related or directly related to the life cycle of a parasite. I would investigate both for now.
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