Thank you MandiAnn, and Jennifer
My son is currently on Topomax and Felbamate. Starting Felbamate was really scarry for me because of the side effects but so far so good I guess. He was having tonic clonic and then also developed drop attacks. The Felbamate has gotten control of almost all of the drop attacks
but he still has the tonic clonic ones. The o.k news is that the seizures are always really short less than a minute but the bad news is w/o valium he'll have them back to back. He has been on Dilatin, Depakote, Keppra, Lamictal, Zorontin. His epileptologist brought him in for a three day visit to get other opinions and they deciced ketoginic diet would'nt help him and we started felbamate. I am currently with Childrens Memorial Hospital in Chicago they have a Epilepsy Center. I'm really confident about
his doctors I'm in continuous contact even between visits the first sign of a problem and she's all over it but I'm having a really hard time adjusting. I feel like all I have is the hope that he'll grow out of it.
Post Edited (sonjarenee) : 10/24/2005 3:52:26 PM (GMT-6)