brain injury and seizures?

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Jai Ganesha
New Member


Date Joined Sep 2015
Total Posts : 1
   Posted 9/27/2015 4:46 PM (GMT -6)   
I will keep this as short as possible.

I had a brain injury (frontal lobe and diffuse/coup-contrecoup). Went through several months of rehab including speech language pathology, neuro-cognitive therapy, occupational therapy, neuropsychotherapy, and all that crap.

Initially I had aphasia, reduced grip strength in my arm, severe headaches and sleep problems, and other non-brain issues (including abdominal injuries, neck injuries, etc). My memory more-or-less disappeared and I became a flaky disaster (before I was a high-level nonprofit worker with a Master's degree).

It's been over a year and recently I've been experiencing a kind of total, crushing, peace (if that makes sense), several times a day. I become so complacent that I just stare and I "think" I can snap out of it, but I don't.

Sometimes I smell water as though I'm drowning in a pool (it's always the same smell/feeling), but it goes away quickly. I'm never angry or fearful, just extremely exhausted. The exhaustion piles up and can last for days. My housemate also told me I grind my teeth in my sleep and I have woken with broken teeth, bloody tongue/cheeks, and bruises on my face.

I'm on the verge of becoming homeless because I cannot maintain my life with this problem. I have EEGs scheduled for early next month.

If I did not know better, I'd think I was a total nutcase. But this truly feels outside my control.

I don't have a real question. I am wondering if anybody can relate or if you have any words of advice. I do not have any relatives in this part of the country so if I lose the ability to drive (and work--there's no public transport) I don't know what I will actually do!

Post Edited (Jai Ganesha) : 9/27/2015 4:49:25 PM (GMT-6)


JulesKanter
Regular Member


Date Joined Oct 2015
Total Posts : 124
   Posted 10/11/2015 7:59 AM (GMT -6)   
The First thing you need to do is admit that there is a problem and accept the situation. From what you've mentioned, you had brain damage, aphasia, and experienced a lot of body pains. But you never mentioned any initial diagnosis of what certain illness you are in right now. The good thing is you'll be having EEG, that's a step. You can also consult a psychologist once your EEG has been read by a neurologist. Then once you're diagnosed you can start with curing, surviving, and getting by the situation. As of now, since you're still to be diagnosed, I can't really give a professional opinion. But I can give you some life altering moves if you wish to stay strong while undertaking this predicament that you're in. First is ask for help, we can't face every obstacle on our own sometimes it's essential to swallow our pride and ask for help and guidance. If you don't have any relatives that is in close proximity of you at the moment then ask your friends or find a support group. Second is never lose faith. Divine intervention is very powerful and will help you in any challenge you're about to embark to. Third is be wise about your situation. There are many things you can do in solving a problem, if you can't afford treatment because of the expensive medicines that will be prescribed to you then opt for something affordable and yet as effective. There are countless natural remedies that you can consider. Lastly is love yourself and never give up. No matter how hard this obstacle may be if you wish to be full again then don't give up. Believe in yourself.

I hope I was able to help with this few tips.

f@$kepilepsy
New Member


Date Joined Oct 2015
Total Posts : 13
   Posted 10/25/2015 12:38 PM (GMT -6)   
Depending on where you live there maybe resources available to you. Hopefully you can turn this around because homelessness sucks and come with new challenges. Since you are in the epilepsy site, I will assume you are also epileptic. Many of the medications can cause you to be depressed, fatigued and effect your memory. It might be time to start over and pull your team together. Friends Family Doctors and support group... Be sure to have an epilepsy specialist on the team. Take a hard look at the meds you are taking! We didn't see real progress until we moved to phase 1 and 2. best of luck to you!
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