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New Member

Date Joined Oct 2005
Total Posts : 1
   Posted Yesterday 10:49 PM (GMT -6)   
My name is Amy im 18 years old i live in upper michigan.

I have had seizures for 4 years and its been really hard i have been taken off meds and put on new meds cuz those meds didn't work its driving me crazy ahhhhhhhhhh sad im always tired some nights i cry myself to sleep the doctor said theres a small part of my brain missing and thats what causing my seizures i have had them all my life but they took along to to show up and i just started having them full blown 4 years ago i have many EEGs and couple MRIs

I see my doctor once a month or every two weeks and im always giving blood im sick of it but i have to do it

I could use some prayers please

I Have Had Seizures For 4 Years

Veteran Member

Date Joined Sep 2004
Total Posts : 775
   Posted Today 2:46 PM (GMT -6)   
Hi Amy.
Welcome to Healing well. I am glad that you found us. There are alot of really nice people from all over here on this forum. I have learned so much from everyone here. Being sticked every 2 weeks aren't fun. Do you have seizure control right now? Hope you are well and Take care, Tracy
 25 years old
Nursing Student

New Member

Date Joined Oct 2005
Total Posts : 10
   Posted 10/29/2005 6:31 AM (GMT -6)   
Hi Amy (and all),

I'm new to the forum too. I was diagnosed 32 years ago as a teenager, too. My doctors could never find anything wrong on my eeg's or cat's. I know what it's like to be on meds, off meds, on meds, off meds. Only when I say OFF meds, I mean nothing. My doctors took me off all AED's when my husband and I were trying to have a baby, and put me back on again after we decided to just go ahead and adopt. (No, it wasn't the meds messing me up, but familial history.

Once I was back on, I was on for another 8 years, till the family doc decided, in light of clean eeg's, that I didn't have ep, but I did have hypoglycemia (low blood sugar). Well, four weeks ago today, I was told it was most definitely epilepsy (simple/complex partial). (The reason that they thought was hypo was my automatism of going for food or drink -- but thirst/hunger may be triggers.) Hearing that hurt -- I couldn't drive anymore, and I got put on indefinite sick leave from my job. Amy, I can relate to your crying yourself to sleep. I keep wishing I'd never been taken off meds to begin with. I wouldn't have to get used to it all over again, and I'd probably be going to work on Monday.

Question for the group -- does tegretol mess with your sleep patterns? It's 4:20 am here, and I'm wide awake and have been for an hour. Two days ago, I slept for 10 hours straight.

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