My last EEG was several years ago. As far as medicines-I need to ask about Lyrica, the one someone here posted about. I've been on Tegretal, Trileptal, Keppra, Neurontin, Depakote, Dilantin, Phenobarbital (nightmare!), Topomax (I think), Zarontin, and Zonogran. My neurologists say I've taken them all and there are no more to try.
As it is, I consider myself lucky and blessed. My seizures are frequent but they are myoclonic. I think it's myoclonic. Doctors won't say if I'm right, so I'm only using the description of myoclonic seizures that I've read. And more of my problems come from being on the autism spectrum than epilepsy. The hardest part of epilepsy for me is that I've had more than one doctor tell me I've taken all the medicines there are. And for personal reasons the VNS isn't right for me. (Does the VNS even work on non-epileptic seizures?).
So, if the State Mediciaid will pay for me to see him and for an EEG, I will do it.
Jennifer-are you ok? (I mean really ok?).
How is everyone else?
Gee, you've been on one more drug than I have!... I've heard about Lyrica and if I have any return of my seizures (I've been 5 months seizure-free), I'm definitely going to ask my doctor about it.
I've had a bunch of EEG's over the last 25 years and they're always the same... flashing lights, hyperventilate, fall asleep. And then I have to get the goo out of my hair afterwards. I hope if you have to get another EEG it shows something useful. The only times mine did were when I was really sleep deprived. So, if you have one done- don't sleep for at least 24 hours so you can maximize your chances of having a seizure while you're hooked up for the EEG.
Jen- I discussed getting the VNS with my doctor way before I had my brain surgery. For anyone that doesn't know, I had a left temporal lobectomy this past June. The VNS is apparently only really effective for partial seizures, so I'm not sure about other types. My doctor told me the VNS wouldn't really help me to get rid of my seizures, just decrease them somewhat. And that's what my meds were doing anyway, so I passed on it and went right for the surgery. And I'm glad I did! 5 months so far seizure-free.
I wish I could fall asleep during an EEG! I lay their seizing and being aware I am seizing.
Jennifer, I don't think Utah will do that. It depends on what you have as far as financial assistance here. Maybe I'll find out if they will pay next week.
Have a good day everyone!