new symtoms help!

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csarina
New Member


Date Joined Nov 2005
Total Posts : 2
   Posted 11/14/2005 3:58 AM (GMT -7)   
Hi, I did try to cross refernce a few key words and didn't come up with anything, so I will pose my q's...

First, was diagnosed a year ago with temporal lobe epilepsy (actually, with "temporal anamalies, straight out of star trek!) which my general practioner took to mean temporal lobe epilepsy. (had the symptoms all my life, just never told anyone til they were very frequent!)

I have NEVER had a unilateral seizing of my muscles (the WHOLE side of my body) that I am aware of. Last night I had continuous blue flashes, which didn't bother me too much, but then reading in bed, it felt like I'd stuck my finger in a socket, and half my body totally seized up on me, face to toes. Bizzarre. I knew it wasn't a going to sleep myoclonic jerk, because I was heartily reading, and it was just half my body.

I tried to Google this, as I have been unable to get an appointment with any neurologist, after having fallen on my head on a concrete floor THREE months ago with continuous pain (I even broke a few ribs then!) but haven't found any info involving both flashes and unilateral muscle siezure involving more than just the face.

What I WANT to hear is that these are harmless jerks unrelated to epilepsy and haematomas. Hee hee hee. I know these are unrelated to my usual TLE things, simple partial seizures and occasional short and long black outs (but left standing upright). Geez, this is embarrassing. Am I being a worry-wart?????

Thanks.

goodwitch46
Regular Member


Date Joined Feb 2005
Total Posts : 241
   Posted 11/16/2005 9:58 AM (GMT -7)   

Hi csarina-

Wow, sounds like you had quite an episode the other night.  Half of your body felt like it was seized up - do you mean stiffened up or you were rhythmically jerking?  Did it last very long?  Seeing flashing lights is something that has happened to me lots of times as a part of my seizures,  but not the unilateral stuff.  There are many different types of seizures and hopefully you'll be able to get some answers when you can get into your doctor's office.   I WISH I could say it sounds like it isn't related to seizures! 

I'm glad you came here. If there's any chance it might happen again while you're in bed, you should maybe think about putting something soft on the floor in case you fall off, or better yet, a bed rail with a pad so you don't fall OUT of bed.  Keep in touch to let us know how you're doing.        HUGS,   Glenda :-)


complex partial seizures since 22
lamictal 200mg 2x/d
zonegran 150mg 3/d


csarina
New Member


Date Joined Nov 2005
Total Posts : 2
   Posted 11/16/2005 11:30 AM (GMT -7)   
skull <----- my Fred Flintstone skull... the thickest skull this side of the Atlantic.

Hi Goodwitch and Jennifer. CT all clear and just hanging around waiting for the neuro to get back from vacation!

No, no jerkies, not even stiffies, heh heh! Bizarre, slow contraction starting the top of my head moving all the way to my toes, just the left side. And it was especially bizarre as it was the back of my hand and fingers that contracted, and the top of my foot and toes. I don't know, I was so taken aback, I am not too sure whether it was just the FRONT side of the left side of my body. I think so, now that I try to recall, but you can make yourself remember all sorts of things. How long it lasted, I don't know either. Having grown up in California and getting the north and southern earthquakes, I've learnt not to trust my idea of time during strange phenomena.

Except for the intense blue sparks right before, I can't seem to reconcile this to my epilepsy. I haven't had any myoclonic or clonic activity while being aware and conscious, it was more like I was being partially electrocuted. I certainly felt the surge run down me too, though not at all painful.

I'm hoping it was a seizure, now, as MS was brought up in the hospital. Can you imagine, MS AND epilepsy? It's bad enough I do bizarre things in public, wear prism glasses, and have extreme oral dysphasia, ha! Woohoo, all I'd need to top it off is a big fat hearing aid attached to my glasses and I'd be Miss Popularity!

Thanks for listening, you nice ladies!
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