Mu daugther had an 8 minutes seizure at the end of school on Thursday. I took her to the ER on her doctor's advice to have her evaluated. Her blood pressure was low and she had a UTI. I talked to her neuro on Friday and explained that quite a few of her latest seizures happen during the last block of school. This is a drama class and they often turn down the lights to let teams practice their lines. I think Kimmy gets drowsy setting for an hour and a half with the lights turned down in the audience. The doctor agreed that could be a trigger, fighting not to fall asleep. He suggested that she be allowed to walk around, stretch and even drink a cold refreshing drink.
ANYWHO, I tell this to the school nurse. Then, a few minutes later I get a call from the director of health services, saying they want to meet with us again. She said they want to put in kimmy's 504 plan that if she has more than 1 seizure a week, she will go on homebound until she has no seizures in a week. Kimmy rarely as of late has no seizures, she usually has 1 2-3 minutes seizure a week, sometimes 2. I said I didn't know about that. If she had a bad seizure then I might keep her home a day or so to rest up. She then said maybe we can shorten kimmy's day and let her do the other half homebound.
I don't know what to do. I want to be reasonable but I want kimmy to be as "normal" as possible. I'm thinking I'm not going to sign anything.
Any words of wisdom?
Kimmy's really bummed and doesn't want to be put on and off homebound. Her favorite class is the one at the end of the day.