School pushing for homebound again

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Beth B. in TN
Regular Member


Date Joined Oct 2005
Total Posts : 83
   Posted 11/21/2005 7:59 AM (GMT -7)   
Mu daugther had an 8 minutes seizure at the end of school on Thursday. I took her to the ER on her doctor's advice to have her evaluated. Her blood pressure was low and she had a UTI. I talked to her neuro on Friday and explained that quite a few of her latest seizures happen during the last block of school. This is a drama class and they often turn down the lights to let teams practice their lines. I think Kimmy gets drowsy setting for an hour and a half with the lights turned down in the audience. The doctor agreed that could be a trigger, fighting not to fall asleep. He suggested that she be allowed to walk around, stretch and even drink a cold refreshing drink.

ANYWHO, I tell this to the school nurse. Then, a few minutes later I get a call from the director of health services, saying they want to meet with us again. She said they want to put in kimmy's 504 plan that if she has more than 1 seizure a week, she will go on homebound until she has no seizures in a week. Kimmy rarely as of late has no seizures, she usually has 1 2-3 minutes seizure a week, sometimes 2. I said I didn't know about that. If she had a bad seizure then I might keep her home a day or so to rest up. She then said maybe we can shorten kimmy's day and let her do the other half homebound.
I don't know what to do. I want to be reasonable but I want kimmy to be as "normal" as possible. I'm thinking I'm not going to sign anything.
Any words of wisdom?

Kimmy's really bummed and doesn't want to be put on and off homebound. Her favorite class is the one at the end of the day.

Beth B. in TN
Regular Member


Date Joined Oct 2005
Total Posts : 83
   Posted 11/21/2005 12:44 PM (GMT -7)   
They put the meeting off till next Monday. So, I have a week to pray, think and inform myself. Thanks for the support! BUNCHES. Beth

Daisy9980
Veteran Member


Date Joined Sep 2004
Total Posts : 775
   Posted 11/21/2005 1:12 PM (GMT -7)   
I mean to discuss it with you is one thing, but to demand and mandate is horrible. This shouldn't be their decision. Only the parents. That is just my opinion. Take care and I hope she is feeling better. I was on homeschooling 3 times as a child.(not for seizures).. it isn't so bad. But I always returned about after 3 months or so.


 25 years old
Nursing Student


Beth B. in TN
Regular Member


Date Joined Oct 2005
Total Posts : 83
   Posted 11/30/2005 7:51 AM (GMT -7)   
Kimmy had a long hard seizure the Tuesday afternoon right before Thanksgiving break. They gave diastat and transported to the emergency room. The neuro started her on trileptal in addition to her Keppra. She is still adjusting. Anywho she woke up vomiting Monday, the day of the dreaded meeting. She was so exhausted. I told her that since there are only 16 school  days left till break, perhaps homebound would be okay while adjusting to the new meds. So we agreed to that. They actually would have made me mad in the way the worded some things had we both not been so exhausted. I don't think they mean anything bad, they are just trying to cover their butts from liability. I just wish they could understand Kimmy's point of view. They act like I'm crazy for wanting her in school. Thanks for caring and letting me vent.
 
Beth B. in TN

HALO
Regular Member


Date Joined Nov 2004
Total Posts : 167
   Posted 11/30/2005 11:44 AM (GMT -7)   
does kimmy have an IEP? Check online, I don't know what state you live in, but in WI we have an advocacy group that the Gov. put in place to protect people with disabilities. If she has an IEP they would be able to help in this case. The 504 plan are a list of rights that are designed to protect Kimmy and give her access to as normal a school experience as any other student as possible. it sounds like they are trying to use it against her.
Shaun
No one left behind!
1*
RLTW

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