Post Edited (Uhura) : 12/4/2005 9:07:50 PM (GMT-7)
HI, I had my first seizure on August 5th of this year. As a result of the seizure, I broke my lower orbital ridge, had a maxillary sinus bleed and clot...and basically looked like someone sucker-punched me in the left eye, cheek, and my nose. I was started on meds in the hospital after they figured out it was a seizure (after EEG). I was initially on Tripletal and was free of seizures. I have since been changed to Lamictal and have had 2 seizures, the last occuring on Saturday morning, requiring another ambulance ride and more medications. I can tell you that I think about seizures ALL the time. I was doing really well until I had the second seizure and then the thought came into my head, "It wasn't just a one time thing."
I am a nurse. I know that it MOST CERTAINLY can be a one time thing. It takes a while to get your meds adjusted and to get your body adjusted. I too have anxiety which is another thing I don't have under control yet. I think the doctors don't want me on an antianxiety med for fear of addiction. Have they had anxiety attacks? is my question for them. Anxiety can precipitate seizures. Keep that in mind!
One thing I know is that your doctors need to be on the same page. WHen I was in the hospital I had an attending (who is not my PCP), cardiologist, neurologist, ENT, opthamologist. I had to follow up with all of them after discharge but none of them wanted to do anything about my concerns. I call it "passing the buck." My PCP, who never saw me in the hospital because he did not have privileges there was the first one to say, "we all need to get in sync here and make some decisions."
Make your doctors listen. Talk to someone like a therapist or anyone who will listen without judgement but will help you make your decisions without fear.
I'll see my neurologist on Friday. Hopefully I will learn something new to stop these seizures. Here's hoping!
Post Edited (JoJoHappy1) : 9/25/2006 4:07:34 PM (GMT-6)