Valium for treating seizures

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Lynx
New Member


Date Joined Dec 2005
Total Posts : 6
   Posted 12/5/2005 8:40 AM (GMT -7)   
I'm interested to chat with anyone who has greatly benefited with the use of valium in their treatments.

Uhura
Regular Member


Date Joined Nov 2005
Total Posts : 166
   Posted 12/10/2005 11:55 AM (GMT -7)   

I was hoping someone would reply because I want to know to.  I've only had it in the ER.  (Although I sort of liked Ativan better).  How are you doing on it?

Uhura

 

 


Lynx
New Member


Date Joined Dec 2005
Total Posts : 6
   Posted 12/10/2005 5:32 PM (GMT -7)   
I'm typing for my husband, he's not much on the internet thingy!lol Anyways, he has had seizures 15 yrs, and tried "everything"!, and now is on Phenytek (time released Dilantin), and Valium, and Valium helps more than anything!, controlling his seizures, but the Dr's will not give him the amt he needs a month, and it makes things very difficult. We think sometimes, they don't give it, because it is sooo cheap!, compared to these seizures drugs. They complain of it being addictive and we say "hell..., Dilantin is addictive, since you HAVE to take it, and can't quit it"!.. so... anyways, what can you do? It's a shame that there is a medication, been on the market since early 1950, that works!.., and is cheap!, and very little side affects, especially compared to seizure drugs and Dr's don't wanna give it to ya!? Heck, there's already been side affects and some damage done to his liver from Tegratol and Depakote. Okay... guys.. thanks for replying, and interested in anything any of you have to say. Have a good day.

Daisy9980
Veteran Member


Date Joined Sep 2004
Total Posts : 775
   Posted 12/11/2005 6:35 PM (GMT -7)   
Hi. I am surprised they would use the valium for treatment. It is just addictive and here they try to stay away from that (NY State). I am glad to hear it is helping you. Take care!
 25 years old
Nursing Student


Lynx
New Member


Date Joined Dec 2005
Total Posts : 6
   Posted 12/12/2005 6:24 AM (GMT -7)   
Hey again.  Well, in answer to the last reply from the Nursing student.  If you read some of the paperwork given to you by the pharmacy, when they fill valium prescription... it says it is used in some cases to treat seizure's, and that was our point exactly!... that even the other seizure med's are addictive, IF you have to take something, then it's addictive, and valium has a LOT less side affects than other seizure med's.  That is the trouble with the thinking our our Dr's today.  They are more worried about addiction, and supporting the pharmacutical companies high prices, than they are treating the patients with what will work.  Sorry..., we have been thru this for 15 yrs, and it just get's truly aggravating.  Thanks for your input.  Lynn & Michael

Daisy9980
Veteran Member


Date Joined Sep 2004
Total Posts : 775
   Posted 12/12/2005 2:05 PM (GMT -7)   
I am trying to share with you all what I paid alot of money to learn.

I live it myself and understand the concerns and frustrations of meds and side effects, toxic levels, and being addictive ect. But yes they do try to stay away from highly addictive/strong meds for continual treatment. Because what do they give in a true status epilipticus episode? I guess just a HUGE amount of valium.

I was just trying to be helpful to you. Suporting you and saying that I am glad that you were enduring less side effects while on it.
Take care.


 25 years old
Nursing Student

Post Edited (Daisy9980) : 12/12/2005 2:08:14 PM (GMT-7)


Lynx
New Member


Date Joined Dec 2005
Total Posts : 6
   Posted 12/12/2005 3:00 PM (GMT -7)   
Ms Daisy honey... I'm so sorry, I apologize if I came off so harsh on that last email.  I just found out I have Squamous Cell Carcinoma skin cancer, and I'm upset, and frustrated with my husband's situation with the seizures.  I was only trying myself to get across the point that we "have lived it", and know best, and I have documented almost "every" day of my husbands life the last five yrs, and he has NEVER had a seizure while taking Valium, and yet has them, not taking it, even with the Phenytek Dilantin.  Depakote, he was on 8 yrs, did damage to his liver, and Tegratol he was only a short while did damage to his liver, and all these med's are expensive compared to valium, and when you find something that works..., then why not be able to have it?  After all, controlling the seizures IS the goal.  The nursing consideration's I have read says a patient can be treated with 40-50 mgs of valium a day if needed, and that is about what is needed to control his, but the thing is, it DOES.  Anyways..., I've dealt with sooo many Dr's, and it's just my belief and my opinion, that Dr's are pressured to give patients med's that are expensive, by the pharmacutical companies, and valium has been around a lot longer than these seizure med's have, and I understand the concerns of addiction, but I still say, if you have to take something, then it might as well be addictive too, as they have worse long term side affects than valium has.  Thank you for being understanding, and for replying.  I appreciate your input anyways.  You do suffer from seizures?  What kind, how long and do you know what from?  What med's do you take?  Michael has severe grand mal seizures, most likely because he was hit by a drunk driver on his motorcycle 16 yrs ago.  Thank you again, and again I apologize.  Lynn

Daisy9980
Veteran Member


Date Joined Sep 2004
Total Posts : 775
   Posted 12/12/2005 6:48 PM (GMT -7)   
HI Lynn!
I am sorry to hear about your dx. *hugs*
I just was dx'ed in 04 after a TC. I have a lengthy history actually of being misdx'ed and mistreated. I had absence seizures my whole childhood. But after having the first daytime TC I had then the AEEG that I had a nocturnal seizure on then they put me on Keppra. It is okay in general. I still have breakthroughs, like when I am sick or stress levels at school and work are too high.
It is funny my father just came home from the dentist and he had liquid valium to put him out.
Hope to see you around. Tracy
 25 years old
Nursing Student


Lynx
New Member


Date Joined Dec 2005
Total Posts : 6
   Posted 12/12/2005 7:02 PM (GMT -7)   
That's funny, my daughter's name is Tracy too!, only that's another stress, cause she's 30 yrs old, and messed up bad and is in prison until 2011!  Luckily my son, 26 got thru his minor troubles and joined the Army and has been in almost 8 yrs now!  Haven't seen him but twice since then, and finally he'll be home from Korea this May!!! YEA!  As for the seizure's... I read the absence seizures (don't know a lot about it), but do you have epilepsy?  As is the case if starting with childhood, as for what I've studied and read.  I've never heard of Keppra?  And I'm sorry, but lost me on the acronym (TC??)  If you'd like to send me an actual email, the address is lsburris@netscape.com  It's been nice chatting with you.  Guess the forum is suppose to stick with Seizures?!lol  But nice to get to know people.  That's also funny what you said about your father, since you said NY wasn't fond of the valium thingy!lol  Take care, Lynn

Daisy9980
Veteran Member


Date Joined Sep 2004
Total Posts : 775
   Posted 12/13/2005 4:50 AM (GMT -7)   
No that isn't info you would find in a pamphlet. We are just taught how drugs are classified, their uses, emergency drugs, cross interactions ect. TC is Tonic Clonic (aka Grand Mal) Absense are Petite Mal. Yes I have epilepsy. It is easier for me to tell other people now. I am not ashamed anymore. Glad to hear your son is coming home soon how exciting for you. This is all about E we can talk here it is more then appropriate. Oh yeah they put him out for oral surgery with the valium IV yesterday. He is shot. Well have to get ready for school, enjoy your day. Tracy
 25 years old
Nursing Student


Lynx
New Member


Date Joined Dec 2005
Total Posts : 6
   Posted 12/13/2005 5:09 AM (GMT -7)   
Hey again!  Thanks once again for replying.  Not sure what you were referring to, about the pamphlet thingy, but was just trying to say that when you fill a valium prescription (or any), the pharmacy gives you the paperwork about that drug, and in that paperwork, it says the various uses for valium, one of which is listed for "seizures".  I'm not thinking right last nite, of course I know what TC is..., that is what Michael has, tonic clonic grand mal seizures.  Oh, and for goodness sakes, I'm glad you not ashamed, NEVER be ashamed of having a medical condition.  You certainly can't and don't have any control over that.  Michael had a few petite seizures back in 1993, but ALL of his now are severe grand mal seizures.  Anyways... it was good to chat with you, and I appreciate having this forum.  Hope that you have a great day!  Hugs, Lynn :-)

Daisy9980
Veteran Member


Date Joined Sep 2004
Total Posts : 775
   Posted 12/14/2005 5:15 AM (GMT -7)   
Anytime, take care & hope to see you around soon.
Tracy
 25 years old
Nursing Student

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