I caught your post tonight... welcome to HW. Sorry that you are having all the troubles recently. It's enough to have all the physical misery and then on top of that to have to go through the wondering what you are going to do with your doctor.
Sounds like there could be many options at this point. No matter what steps should be done next, one thing is for certain - your neuro should have shown you more concern and a more definite plan for your care and follow-up. The key to a good working relationship with your doctor is Communication, and if you aren't getting it, don't hesitate to call, call, call him and make your symptoms known or make an appointment. If you don't get at least that much, you're certainly going to have trouble getting better.
You should feel Confidence in your doctor, not incompetence.
If it was me, I would be thinking about moving on to someone else. Every neuro does things differently and getting a second opinion might also shed some light on your problem and perhaps a different treatment/drugs.
I'll be thinking of you,
complex partial seizures since 22