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New Member

Date Joined Dec 2005
Total Posts : 8
   Posted 12/13/2005 8:39 PM (GMT -6)   
it really really sucks.

Regular Member

Date Joined Feb 2005
Total Posts : 241
   Posted 12/13/2005 9:10 PM (GMT -6)   


I feel that way sometimes too.  I always thought of E as more than just a disease - it was like a parasite - literally sucking the life out of me.   That's why I come to this forum.   It's so good to relate to others that don't judge you because of E.    Hang in There. 

Hugs, Glenda :-)

complex partial seizures since 22
epilepsy surgery, June 2005

Veteran Member

Date Joined Feb 2003
Total Posts : 662
   Posted 12/14/2005 1:37 AM (GMT -6)   

Yeah ~ what really sucks is the stigma that is attached to the word "EPILEPSY".   People look at you differantly.

That's why I like to say that I have a "SEIZURE CONDITION" rather than Epilepsy cuz it sounds better.

People think if you have "EPILEPSY" you will have convulsions all the time but EP can take so many differant forms and people should be made aware of this. In fact there are probably a lot of people out there that have it in some form that don't even know it.

The general public is not educated in this area. We have to raise awareness and make people aware that there are a lot of famous people that have/had Epilepsy.


Diagnosed with epilepsy and ulcerative colitis in 1979,
Been on meds ever since.

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