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scottybug
New Member


Date Joined Jan 2006
Total Posts : 3
   Posted 1/2/2006 7:36 PM (GMT -7)   
I was curious about pillows, I've heard that they can be dangerous for a child with nocturnal seizures and I've heard that there are pillows that you can buy so that they can't suffocate if they land face down during a seizure during the night. Has anyone heard of these? I took Scott's pillow away after his breakthrough seizure two weeks ago and he's not happy with me.

help, if you have experience...negative or positive with any of these can you let me know!  Thanks
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scottybug
New Member


Date Joined Jan 2006
Total Posts : 3
   Posted 1/2/2006 9:03 PM (GMT -7)   
Thank you Jennifer, do you know if any of these pillows have been tested or if one is better then the other or if a pillowcase on the pillow would make it useless?

scottybug
New Member


Date Joined Jan 2006
Total Posts : 3
   Posted 1/2/2006 10:08 PM (GMT -7)   
He is on Trileptal, he had 2 seizures 2 yrs ago (tomorrow is the 2yr anniversary of the 1st, then a 2nd a month later) 2yrs seizure free then a breakthrough last week, I am hoping he just outgrew the dosage of the meds (fingers crossed) and that we will regain control. His seizures are due to a brain injury at birth, we knew he would have a low seizure threshold but after 8yrs we figured we beet it...then he had his first, doctor said not an unusual age because of hormonal changes. So, becuase they are symptomatic I'm not fantasizing about them going away, but would be content with control. Actually, would just be content with him being able to live a normal life. He has partials with secondary generalization, he has them within the first out of sleep or just prior to waking up.

I've read your story a number of times and it brings me to tears every time, thank you so much for sticking around to help and educate others about the safety risks.

leensa
New Member


Date Joined Nov 2005
Total Posts : 8
   Posted 3/3/2006 3:37 PM (GMT -7)   
Hi
I am in the UK and have the website address of a company that manufacture safety pillows. It is www.sleep-safe.co.uk I did in fact order one for my 16 year old daughter. The product itself is of very good quality and has been designed by a pharmacist whose son suffers from epilepsy. I believe that he designed the pillow originally to cater for his son's needs as there was nothing available to him. My daughter finds the pillow a bit hard but I think a younger child would adapt more readily to it. Hope this is of some help. Gill.
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