I am brand new to this forum, but really need to know if this is standard procedure. I will try to be short and describe my father's condition, to see if you recognize the symptoms and then I have a question.
My father had two Gran Mal seizures in 1965. After evaluation, he was put on Mycelene. Since then, he has continued to have what I believe Petit Mal seizures. He used to just start saying Yeah, Uh-huh, over and over for about 8 seconds. Throughout the years, this happened to him about once a week. about 10 years ago, the symptoms changed and he started grimmacing, groaning, like he was in pain. This became more and more frequent. He has never wanted to talk about this. I think it was because there was still a stigma attached to epilepsy in the 60's. Also, his doctor said he did not want to use the particular word, because of the negative perception. This led my father to believe that it was nothing to be concerned with. He just called them memory lapses.
My mom and I talked to him about 6 months ago and said that he should go to a neurologist because we knew that there was newer medication and they might be able to stop these episodes altogether. Begrudgingly he went. The doctor weaned him off the Mycelene and the spells became more frequent. They did an outpatient monitoring test for 48 hours. During this time, he had two of these incidents. My dad wrote down the time and what he was doing when it occurred.
The neurologist said that he saw something on the recording, but they were not seizures. He said it was something like ADD similar to a sneeze reaction. Next visit, my mom and I went and upon our explanation, he put my dad on Trileptal. My dad has had no improvement.
They are now planning to send him to the Medical University in Charleston for inpatient monitoring. They said he might stay two days or up to 7. The doctor said he has to catch 3 incidences before he could go home.
Here is my long-winded question. The doctor stated that my dad would have to have someone in the room with him 24-7 and commit to be there 7 days if necessary. Is this normal?
I have a child and work and my mom is in a wheelchair. Charleston is 90 minutes away from our house and I can't take care of my mom, my child and be at the hospital at the same time. We have no one else to go.
If they have a camera and monitors on him, why do they want us to notify them when we see him have what we described to them? Don't they read the tape and watch the video? What if the person with him has to take a shower, go to the bathroom or sleep? Do we just hope we don't miss something? Oh well, know one knew, so he will just stay longer?
I have never heard of such a thing and it has my family upset.
My dad has agreed not to drive for the time being, but my mom can barely drive, so I am doing all I can for them. The hospital basically said, well, when you can work out your situation, call us to set up an appointment.
Ever heard of this?
Also, please excuse me if I used wrong words in any of my postings, for I don't mean to be insensitive to anyone who suffers from this condition. I know people who don't go through what you do, often misunderstand. I know, I am bi-polar and have people think I am crazy, rather than having a medical condition.
Thanks so much for your help!