Accomodations at restaurant?

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Beth B. in TN
Regular Member


Date Joined Oct 2005
Total Posts : 83
   Posted 1/14/2006 8:20 PM (GMT -7)   
Okay, long story. We have recently began to see that Kimmy has seizures if she's in a dimly lit situation, and then looks at a light that's on, like in a theater, restaurant or such. She had one in class on Friday, the teacher's was telling them lights on, lights off in spanish and flipping the lights. I don't know if that did it or the anxiety that it brought on, but she had a seizure. so...Today we went skating and took a friend that has sensitivity to strobe lights. I told the manager and no flashy lights while we were there. YEAH! Then tonight, the girls were going to a friend 16th birthday party. The restuarant was rather dim, so I mentioned to the waitress could we turn the lights up an bit. They barely turned them up, and then 20 minutes later they dimmed down again. Kimmy started getting anxious, we walked outside for awhile and even though she has been in a dark surroiunding her pupils were tiny. I was worried, but after a bit she said she was fine and we went back in. Then her freind came up to me and said, I'm not trying to be a drama queen but I'm not feeling well either. Same thing tiny pupils. She went outside for a while, then back in. It took forever for the service as the place was packed. I told the manager as he went by they needed to turn the lights up, He said this is as light as it gets. Okay, dessert comes The friend has a complex partail. I get her on the floor on her left side and take her pulse while timing her seizure. The next thing I know the lights are turned on brightly and the manager is saying "should I call an ambulance?" I'm like no what you should have done is listened to me these girls needed the lights up, like what are these bright things on now? He starts making more excuses, I just said you need to leave I'm dealing with a seizure. He did. I was so mad. I could have hurt that man. I wrote to the corporate office. I hope I hear back from them groveling cause I'm pee'd off. AM I crazy stupid or was this guy being a butt? I would make sure someone was comfortable if I could. OOOOO! What was the big deal. They could have turned the lights up. Brought us our food pronto and we would have been out of there.
 
Boy I get steamed when somebody messes with my babies.
 
Beth B. in TN

Beth B. in TN
Regular Member


Date Joined Oct 2005
Total Posts : 83
   Posted 1/14/2006 9:07 PM (GMT -7)   
Thank you Sweetie. We could have left but that would have upset the girls, and I was afraid the stress would have triggered something. It was a no win situation for us. I was so mad. It would have ruined the whole party and DID!

Daisy9980
Veteran Member


Date Joined Sep 2004
Total Posts : 775
   Posted 1/15/2006 9:30 AM (GMT -7)   
I am behind you 100%. Good for you that you are getting in contact with the corporate office. They were all lucky to have you there with them. I would be mad also and that manager deserves to find himself a new job. I hope you got his name. Take care and keep us update. Tracy
 
 


memerelorraine
New Member


Date Joined Jan 2006
Total Posts : 19
   Posted 1/16/2006 7:25 AM (GMT -7)   
Thank you for standing up for someone. It is time for us to stand up for one and other. Not to make visible disabilities any less of any issue but accomodations are made time and time again and so they should be but when it comes to disablities that are not visisble and we ask that accomodations be made we are questioned "why?". We need more people to stand and say because it simply is! I know I have needs at times and get looked at like I just fell off this earth I am sure many of you have experienced the same but I insist and get it done.
 
Again I thank you and look forward to your post,
 
Lorraine
 
 


Bernard
Regular Member


Date Joined Mar 2005
Total Posts : 22
   Posted 1/19/2006 2:26 PM (GMT -7)   
Beth, when you requested they turn the lights up, did you mention that there was a medical need for it (ie. that the girls were susceptable to seizures)?  It's not clear from your post if the seriousness of the situation had been communicated.

Post Edited By Moderator (Admin) : 3/2/2006 9:23:44 AM (GMT-7)


Beth B. in TN
Regular Member


Date Joined Oct 2005
Total Posts : 83
   Posted 1/19/2006 2:56 PM (GMT -7)   

I did tell him that the girls had seizure and the lighting was a possible trigger for one girl (my daughter) and lowered the threshold for both. I was just thinking today, how much eating a good meal, can make you sleepy, as I understand it from my daughters doctor drowsy times are opportune times for seizures. I'm still learning, I didn't think about full bellies making them that drowsy at the time. Kimmy had a seizure at school today in a class she's totally bored in this is her first Spanish class and the teacher always talks in Spanish. They haven't even learned 100 words yet and he speaks it almost all the time. She also just had a snack. I'm still guessing and wondering. I asked the school nurse to call her doctor. I'm afraid of not doing the right thing. The doctor says her seizures are gonna be hard to control, but....I don't know that he's doing enough or quickly enough and yet nothing could possibly be quick enought if you know what I mean. I one today was 4 minutes long and she really hurt afterwards. She also gets bad headaches after. We've been giving tylenol after per the doctor, but she says it doesn't help. She's also been waking up with headaches. Maybe she's not getting a restful sleep. Any advice?

 

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