Post Edited By Moderator (~Jennifer~) : 2/1/2006 12:51:14 PM (GMT-7)
Post Edited By Moderator (~Jennifer~) : 2/1/2006 1:22:53 PM (GMT-7)
Post Edited By Moderator (~Jennifer~) : 2/1/2006 1:23:14 PM (GMT-7)
I find your story very interesting as it is almost exactly the same as mine.
I had one major seizure in 1979, was out for about 20 mins. and woke up in the ambulance. After several tests EEG, PET scan, CAT scan CT, my lower left tempral lobe showed epileptic activity but at that time there wasn't that many anti-epileptic drugs available so my neurologist at the time put me on Dilantin as he feels I am (was) a high risk. All that time I had to be on Dilantin because epileptic activity showed up on my tests.(epilepsy does seem now to run in the family, Doctors didn't know it at the time, it was my sister.)
I didn't have another sz until 2002 and one since then. I do have lots of side effects from the Dilantin.
If you are "high risk" but the medication is controling your seizures but you can't stand the side effects, talk to your Doctor about possibly changing meds to make you feel better.
Post Edited (coffee 'n cigs) : 2/2/2006 10:39:52 PM (GMT-7)
I could have changed medications BUT around the same time that I was dx'd with epilepsy, I was also dx'd with Ulcerative Colitis and dilantin and pheonobarb are the only meds that will not have a chemical reaction or cause other probs.
I'm not sure if you were responding to me or Phlau but here is my reply:I was perscribed meds AFTER my EEG.
Post Edited (RanMan) : 2/5/2006 9:56:28 PM (GMT-7)
If you are not happy with this round of appointments, I suggest getting another opinion.
The doctor who diagnosed me properly after 10 years of confusion from a host of other doctors is named Dr. Jacoby, and he's at the Noran Clinic in the northern suburbs of Minneapolis. He's so down-to-earth, and is cool with any question at all that you have. He really saved my sanity at a key time in my life. I can't recommend him highly enough.
Hope that helps. Good luck to you.