Guidance PLEASE

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pharmerphil
New Member


Date Joined Feb 2006
Total Posts : 7
   Posted 2/1/2006 12:12 PM (GMT -7)   
I'm new here, and here solely to help my dear Wife.
a long story...sorry sad
10 years ago, my wife had a seizure.That was it, none since.
At the time, they said it "May have been" an epileptic seizure, and that was all they gave her..well not quite...
They prescribed Depakote.
and no small dose either.
She has no family history, and no other health problems.
The day she had this seizure, she was in a large store, the outdoor temperature was near 100 degrees, she went into the air conditioned store, and fainted, she was going through a divorce at the time, and had her daughter nagging her to "spend Money".So Stress, pressure, and the transiition from a 100 degree day to a "goose pimple cold store", in her opinion is what caused it.
She does not believe that she has, or ever had a ep. seizure, she hates the depakote, it has such an effect on her memory.

Where the problem lies is 1. Once prescribed by any doctor, all others are "reluctant" to take her off the depakote.
Problem 2 is, That the whole medical and drug industry WANTS you to be on maintenance medicine, to line their own pockets.
So, I ask you, where does one go to get an unbiased opinion, the doctors are not willing, in their words, to doubt the original diagnoses, even though this was one isolated incident, 10 years ago, with none since.
any advice will be greatly appreciated, and yes, the reason I am asking this question is, she cannot keep focused for this amount of time.

pharmerphil
New Member


Date Joined Feb 2006
Total Posts : 7
   Posted 2/1/2006 12:43 PM (GMT -7)   
First, thank you, Yes, I do care!
She was seen by a nuerologist.
NO, no tests, just assumptions
She goes in for a eeg today??
She has had No sz, since, and has had no healt problems, that are not side effects from the Depakote.
She moved to Minnesota three years ago, when we were wed, and seeked a Doctor in this area.
They told her, again, without doing any type of test, We wouldn't want to "second guess" the original diagnosis.
Her yearly check-up, last week, showed her cholesterol a little high, and her Depakote level, low
low, because she only takes half the prescribed amount, due to the fact she cannot function at the prescribed level, even when she forgets to take her meds, she has no problems.
I am against anyone taking drugs that are not needed, of any type, and so is she, she just wants to be able to find out, Yes, she needs this drug, or No she does not
I have to tell you, She was well insured at the time of this "seizure" and is well insured now, a perfect 'target' for our pill pushing medical profession.

Post Edited By Moderator (~Jennifer~) : 2/1/2006 12:51:14 PM (GMT-7)


pharmerphil
New Member


Date Joined Feb 2006
Total Posts : 7
   Posted 2/1/2006 1:05 PM (GMT -7)   
Where is Mincep Located Jennifer, we are near Owatonna Mn., just south of Minneapolis


pharmerphil
New Member


Date Joined Feb 2006
Total Posts : 7
   Posted 2/1/2006 1:16 PM (GMT -7)   
ok, just got off the phone with the wife, kinda a flurry here, we are both at work!
she takes 500 mg. a day, and is suppose to take 1000
she states, and I have observed, that she gets nothing done but sleepat the higher dose, and is unable to function.
her last eeg, was here in Mn. and they said it looked good, no elaboration, she will be on here later as a new member, she needs someone to talk with this about.

Post Edited By Moderator (~Jennifer~) : 2/1/2006 1:22:53 PM (GMT-7)


pharmerphil
New Member


Date Joined Feb 2006
Total Posts : 7
   Posted 2/1/2006 1:19 PM (GMT -7)   
Thats fine, I was just utilizing the space, and the Mcode had the script to add linked text, which is not of a 'spam' nature, it is Our homepage.
Sowwy!

Post Edited By Moderator (~Jennifer~) : 2/1/2006 1:23:14 PM (GMT-7)


pharmerphil
New Member


Date Joined Feb 2006
Total Posts : 7
   Posted 2/1/2006 1:29 PM (GMT -7)   
sorry again, I had only caught this part:
"Only links to personal home pages are allowed in signatures and member profiles"
We are so close to our members, I guess it is hard to consider it anything but home!, I was going to send you a P.M. in regards to this, but couldn't find how to do it!
I have since read the rules again!


pharmerphil
New Member


Date Joined Feb 2006
Total Posts : 7
   Posted 2/1/2006 1:51 PM (GMT -7)   
"Again a PB forum is not considered a homepage"

As I Stated "I have since read the rules again!" and removed the link, I assumed you had already done this

Phlau
New Member


Date Joined Feb 2006
Total Posts : 4
   Posted 2/2/2006 8:09 AM (GMT -7)   
I made it here..I am pharmerphil's wife..
Where to start..
!996..very hot summer..under stress..
I had pre-seziure activity for several month's prior to the one I had in the store..namely..the metalic taste..strange smell's..odd sensation's in my arm..I have not had those since being on Depakote. I have had numerous testing done. EEG..EKG..MRI..CT scan..you name it I have more then likey had it. I had an MRI done yesterday..my last one was done 22 month's ago..they found a lesion at the base of my skull & wanted to keep an eye on it for changes.
I have a half Brother who has Epl.. He has had it all his life. No one on my side of the family has it.
I take only 500 mg. of the 1000 mg. that they say I should take.
Back to 1996..when I had the seziure..I was down for 20 minutes. Came to in the ambulance. I did not lose bladder control..but felt exhusted afterward's. I did bite myself..brusied myself from falling..and scared the living day light's out of my Daughter.
I feel fine now..but the Dr.s insist that I am too high risk to take me off the medication.

Phlau
New Member


Date Joined Feb 2006
Total Posts : 4
   Posted 2/2/2006 8:29 AM (GMT -7)   
I had an MRI yesterday.have to wait untill some one read's it as I asked the person who did it if she saw anything..she said she does'nt read them..so wait for 2 week's unless I get a call before then. This is where I tend to get frustrated..as no one really tell's me anything.

RanMan
Veteran Member


Date Joined Feb 2003
Total Posts : 664
   Posted 2/2/2006 2:03 PM (GMT -7)   

Phlau,

I find your story very interesting as it is almost exactly the same as mine.

I had one major seizure in 1979, was out for about 20 mins. and woke up in the ambulance. After several tests EEG, PET scan, CAT scan  CT, my lower left tempral lobe showed epileptic activity but at that time there wasn't that many anti-epileptic drugs available so my neurologist at the time put me on Dilantin as he feels I am (was) a high risk. All that time I had to be on Dilantin because epileptic activity showed up on my tests.(epilepsy does seem now to run in the family, Doctors didn't know it at the time, it was my sister.)

I didn't have another sz until 2002 and one since then.  I do have lots of side effects from the Dilantin.

If you are "high risk" but the medication is controling your seizures but you can't stand the side effects, talk to your Doctor about possibly changing meds to make you feel better.

Randy


Diagnosed with epilepsy and ulcerative colitis in 1979,
Been on meds ever since.
 
275mg-dilantin/day
120mg-pheonobarb/day
3,000mg-Mesasol/day
20mg-Celexa/day


Phlau
New Member


Date Joined Feb 2006
Total Posts : 4
   Posted 2/2/2006 8:05 PM (GMT -7)   
I was also on Dilantin & Pheonobarb..did'nt feel good on either of those 2 med's..The Dr. tell's me the Depakote is good for several different thing's. Migrane's, Depression, Sz.. I will argue my case with him in 2 week's.

coffee 'n cigs
Regular Member


Date Joined Jan 2006
Total Posts : 69
   Posted 2/2/2006 9:10 PM (GMT -7)   
Phlau said...
I was also on Dilantin & Pheonobarb..did'nt feel good on either of those 2 med's..The Dr. tell's me the Depakote is good for several different thing's. Migrane's, Depression, Sz.. I will argue my case with him in 2 week's.
Hi Phlau! I believe that Depakote is used to treat the mania half of manic depression. It acts as a depressant on the brain. I had to be taken off of it, when I became suicidal.

Post Edited (coffee 'n cigs) : 2/2/2006 10:39:52 PM (GMT-7)


RanMan
Veteran Member


Date Joined Feb 2003
Total Posts : 664
   Posted 2/2/2006 9:40 PM (GMT -7)   

Phlau,

I could have changed medications BUT around the same time that I was dx'd with epilepsy, I was also dx'd with Ulcerative Colitis and dilantin and pheonobarb are the only meds that will not have a chemical reaction or cause other probs.

Randy


Diagnosed with epilepsy and ulcerative colitis in 1979,
Been on meds ever since.
 
275mg-dilantin/day
120mg-pheonobarb/day
3,000mg-Mesasol/day
20mg-Celexa/day


RanMan
Veteran Member


Date Joined Feb 2003
Total Posts : 664
   Posted 2/5/2006 12:06 PM (GMT -7)   

Madipy,

I'm not sure if you were responding to me or Phlau but here is my reply:I was perscribed meds AFTER my EEG.

 "After several tests EEG, PET scan, CAT scan  CT, my lower left tempral lobe showed epileptic activity but at that time there wasn't that many anti-epileptic drugs available so my neurologist at the time put me on Dilantin as he feels I am (was) a high risk."
 
I have to walk a tight rope and balance the meds for my Epilepsy and Ulcerative Colitis. So far (touch wood)  my seizures and UC flare ups have been uder control.
 
BTW ~ I'm also from Ontario (Hamilton)
 
Randy



Diagnosed with epilepsy and ulcerative colitis in 1979,
Been on meds ever since.
 
275mg-dilantin/day
120mg-pheonobarb/day
3,000mg-Mesasol/day
20mg-Celexa/day

Post Edited (RanMan) : 2/5/2006 9:56:28 PM (GMT-7)


strawdog
New Member


Date Joined Jan 2006
Total Posts : 2
   Posted 2/7/2006 12:54 AM (GMT -7)   

Hi Phlau,

If you are not happy with this round of appointments, I suggest getting another opinion.

The doctor who diagnosed me properly after 10 years of confusion from a host of other doctors is named Dr. Jacoby, and he's at the Noran Clinic in the northern suburbs of Minneapolis.  He's so down-to-earth, and is cool with any question at all that you have.  He really saved my sanity at a key time in my life.  I can't recommend him highly enough.

http://www.noranclinic.com/yv.htm

Hope that helps.  Good luck to you.


RickyB
Regular Member


Date Joined Dec 2003
Total Posts : 106
   Posted 2/7/2006 5:53 PM (GMT -7)   
Laura and Phil good to see you both over here,hate the reason you had to find this place but there are some very knowledgable people here that may lead you in the right direction.haven't made it to the Pharm in awhile .will try to stop by.Yall take care.

seems like everytime I make my mark somebody always paints the wall


Phlau
New Member


Date Joined Feb 2006
Total Posts : 4
   Posted 2/7/2006 6:30 PM (GMT -7)   
Got a call late last week..no changes with the MRI..I had an EEG year's ago. I however dont remember the result's. I could start all over with the Dr's..since no one around here is willing to take me off the Depakote. Nor were they willing to in WI..I saw a Dr. from Mayo while he was in town here..he also would not release me from the med's..
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