Any females out there who take Dilantin????

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Jennyo
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Date Joined Feb 2006
Total Posts : 70
   Posted 2/20/2006 2:20 PM (GMT -7)   
 Hi, my name is Jennifer---Just had my 1st & hopefully last seizure on 1-26-06....New to all of this...I am currently taking Dilantin--but my Neurologist says that Dilantin causes unusual hair growth in women, so he wants to try me on something different...I have already tried Tegatol & had an allergic reaction to it---they just had me stop that today...Just curious about the hairgrowth...I have a very interesting story to tell about my seizure...Will tell anyone who is interested...
 
Thank You!
Jennifer
 Therefore if any man is in Christ, he is a new creature; the ols things passed away; behold, new things have come. (NASB)


Jennyo
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Date Joined Feb 2006
Total Posts : 70
   Posted 2/20/2006 8:14 PM (GMT -7)   
Thanks for a quick reply...I'm really wondering how bad the hair growth is in women? Where is the growth? I'm I gonna get a beard?


Thank you for responding to me.
 Therefore if any man is in Christ, he is a new creature; the old things passed away; behold, new things have come. (NASB)


Jennyo
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Date Joined Feb 2006
Total Posts : 70
   Posted 2/21/2006 4:31 PM (GMT 0)   
Thanks again--this is helping!
 Therefore if any man is in Christ, he is a new creature; the old things passed away; behold, new things have come. (NASB)


DuvLady
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Date Joined Feb 2006
Total Posts : 56
   Posted 2/21/2006 7:38 PM (GMT -7)   
I've been taking dilantin or the generic in recent years for maybe 10 years. I have grand mal seizures - so when i have one i'm out for the count! and can't even go back to work for almost 2 days. the dilantin was a life-saver. as for hair - very very little an i've been taking it a long time.
i've had no facial hair - but once in a while i'll get like a single strange hair growing on the underside of my arm. i only notice it because it's black as coal, and i'm a dirty blonde. it hasn't been a big deal for me - i pluck it and go on.
i'm just thankful the dilantin controls my seizures. as there are a lot of people out there who can't find the right medication.
i'd ask your dr. about your concerns. perhaps he can put it in the "right light" or put you on a diff. medication.
if i had weird hair growing all over or on my face i'd be concerned too, but it just hasn't happened. God bless!
seizure disorder - chronic myofacia pain - B-12 anemia - severe neutropenia - bulging disk in neck, etc.


Jennyo
Regular Member


Date Joined Feb 2006
Total Posts : 70
   Posted 2/21/2006 9:27 PM (GMT -7)   
Thank you MandiAnn & DuvLady for your input---it has really opened my eyes to some stuff I need to talk to my Neurologist about.
Thanks again!
 Therefore if any man is in Christ, he is a new creature; the old things passed away; behold, new things have come. (NASB)


Jennyo
Regular Member


Date Joined Feb 2006
Total Posts : 70
   Posted 3/2/2006 10:13 AM (GMT -7)   
 Mandy,
  Thanks for checking on me! Boy have I really been through it!
I started taking Carbamazepine (generic for Tegretol) on 2-10-06. The next evening after I started--we were @ one of our friends--they have cats--I am allergic to cats!!! Within minutes of being there--my eyes started itching...The next morning I woke up with swollen-goopy-sealed shut eyes!!! I was freaking out that the cats affected me so much. Few days later--was still having allergy issues--talked to some people--they said the pollen was high---I thought it was weird that I was having allergies so bad---severe itchy eyes--sneezing--stopped up/runny nose confused
I didn't know what was going on...Had thought it might be allergy to meds---Then Sunday 2-19-06 I started breaking out in a rash. My husband said I should call the Dr., so I did...Nurse returned my call after I left her a detailed message---she said I was definately having an allergic reaction---Dr. said to stop the Carbamazepine immediately!!! I got worse before I got better... During the time I was on the new med I felt something I'd NEVER felt before--DEPRESSION!! It was aweful---I always wondered how someone that serves the Lord & has that joy- could ever be depressed...Now I know---it's almost something you cannot control...I hate that!! It started to take over me... sad Now that the new med is totally out of my system--rash is gone--depression is gone yeah I feel like Jennifer again...Still debating on trying another med---but we will see!! I'm very thankful that I found this site---reading all the postings & getting replys to my thread has helped me so much! Thanks for caring! I'm gonna hold off for a few weeks before I have them try another med on me---I want to enjoy being myself for awhile...
 
Thanks Again!
Jennifer :-)
 
 
 Therefore if any man is in Christ, he is a new creature; the old things passed away; behold, new things have come. (NASB)


DuvLady
Regular Member


Date Joined Feb 2006
Total Posts : 56
   Posted 3/5/2006 8:58 PM (GMT -7)   
Jennifer,
wow! what you have been thru!!!! my heart goes out to you...
God bless! I will continue to keep you in prayer.
I can understand your feelings about being yourself for a while after going thru that!
I want to mention that when i first started on my meds, it made me pretty loopy - and i asked the dr. if i could cut back 1 pill an evening. he didn't like it because my blood work indicated i needed more - but i couldn't function on what he had me on. Well i've been on this for over 10 yrs or something and it has worked for me.
 
Things will get better. When we are weak, he is strong.
seizure disorder - chronic myofacia pain - B-12 anemia - severe neutropenia - bulging disk in neck, etc.


Jennyo
Regular Member


Date Joined Feb 2006
Total Posts : 70
   Posted 3/6/2006 6:19 AM (GMT -7)   
DuvLady--
 
 Thank you so much! I love how you and others are checking up on me & being concerned... I'm very thankful that I found this site--It has been very encouraging... :-)
 
   Jennifer
 
 Therefore if any man is in Christ, he is a new creature; the old things passed away; behold, new things have come. (NASB)


Daisy9980
Veteran Member


Date Joined Sep 2004
Total Posts : 775
   Posted 3/6/2006 5:04 PM (GMT -7)   
Welcome to HealingWell. Good luck with everything Jennifer I just read all of the posts. Keep us updated if you can. We are happy to help. Take care, Tracy
 
 


Jennyo
Regular Member


Date Joined Feb 2006
Total Posts : 70
   Posted 3/6/2006 5:55 PM (GMT -7)   
Daisy9980
Thanks for checking this post out...I've learned so much - just reading all the other postings...And all the replies I have receieved...
Thanks
 Therefore if any man is in Christ, he is a new creature; the old things passed away; behold, new things have come. (NASB)


donajean
Regular Member


Date Joined Jan 2006
Total Posts : 141
   Posted 3/12/2006 8:00 PM (GMT -7)   
Hello Jennyo,
 
I am sorry I can't help you. But I will tell you that you are in my prayers, for
a Healing!
 
Also I can't help my self in saying I love that scripture you wrote. Take
 
Care and May the Lord Bless you :-) ....
 
Hugs with Love,
donajean
 
 
Therefore if any man is in Christ, he is a new creature; the old things passed away; behold, new things have come. (NASB)

Jennyo
Regular Member


Date Joined Feb 2006
Total Posts : 70
   Posted 3/12/2006 8:18 PM (GMT -7)   

donajean-

Thank you so much! I appreciate your prayers & concern!!! We serve a healing God - and I am receiving His healing!!! 

I was confused when I saw your signature...Then I realized it was yours too!!! That's awesome!! Have a great night!---Jennifer


 Therefore if any man is in Christ, he is a new creature; the old things passed away; behold, new things have come. (NASB)


donajean
Regular Member


Date Joined Jan 2006
Total Posts : 141
   Posted 3/12/2006 8:23 PM (GMT -7)   
Hello Jennyo,

You very Welcome....Yes ma'am we sure do serve a Healing God!

Hugs with Love,
donajean

His word is a like a lamp for my feet and a light for my way.

pgcandy7
New Member


Date Joined Mar 2006
Total Posts : 12
   Posted 3/17/2006 12:26 PM (GMT -7)   

Hi Jennifer, My name is Candace. I am 23 and had my first seizure at the age 20, right out of the blue. No past history of it. They don't know why or what is causing them. Very frustrating! I have had two Grand Mal Seizures very violent and scary. My doctor put me on dilantin after my second one and I have had only a mild one since, due to me not taking my medication. When I take if faithfully I was seizure free. I have notice some excessive gum growth but not hair. My gums are fine as long as I brush thoroughly twice a day and I use peroxide diluted with water for mouthwash. Hope this helps. Good luck!

 

C

 


Jennyo
Regular Member


Date Joined Feb 2006
Total Posts : 70
   Posted 3/20/2006 6:41 PM (GMT -7)   
Hi! Candace--
   Thanks for your response!!!!I'm not sure about the gum thing...That's crazy!!!! Since i've been on Dilantin for nearly 2 months now, i've noticed a little extra hair growth on my chin...But if that's all I end up having, I can deal with that...Have you talked to your doc about the gum thing??? Is that a side affect???
 
   Jennifer :-)
 Therefore if any man is in Christ, he is a new creature; the old things passed away; behold, new things have come. (NASB)


pgcandy7
New Member


Date Joined Mar 2006
Total Posts : 12
   Posted 3/21/2006 9:56 AM (GMT -7)   

Hi Jennyo, Yes that is one of the side effects, actually from what I have read it is one of the most common. It feels more like an inflamation (only sometimes). My dentist told me as long as a floss and keep my mouth really clean it shouldn't be a problem. How is the Dilantin working for you?

 

C


Diagnosed with Epilepsy in 2000
 
Medication: 600mg of Dilantin a day
 
"Never frown, even when you are sad, because you never know who is falling in love with your smile"


DuvLady
Regular Member


Date Joined Feb 2006
Total Posts : 56
   Posted 3/21/2006 6:34 PM (GMT -7)   
Yes, I have slight gum swelling also from dilantin. Some people do get it much worse though. My dentist says he can't tell mine are swollen until he does that test to see how deep the gum tissue is (pockets). He even has told me that some people have such bad swelling that they have to laser off the excess gum tissue - awful, huh?
 
Yes, the peroxide-water thing is good for anyone. Besides flossing everyday, I also have a water pick that i won't be without.


seizure disorder - chronic myofacia pain - B-12 anemia - severe neutropenia - bulging disk in neck, etc.


Jennyo
Regular Member


Date Joined Feb 2006
Total Posts : 70
   Posted 3/21/2006 7:48 PM (GMT -7)   
The dilantin so far is working just fine...I only had a cluster of about 4-5 black hairs sprout off my chin...If that is all I get--every once in a while---then I will be fine...I'll pluck them off & go about my business!!! So it seems to be working fine for me...I hope I don't ever get the excess gum growth...
 Therefore if any man is in Christ, he is a new creature; the old things passed away; behold, new things have come. (NASB)


DuvLady
Regular Member


Date Joined Feb 2006
Total Posts : 56
   Posted 3/23/2006 7:41 PM (GMT -7)   
I hope not either.
 
For a while there I was getting a weird black hair growing on the inside of my arm. But after I plucked it like a hundred times - it finally didn't come back.
 
LOL
seizure disorder - chronic myofacia pain - B-12 anemia - severe neutropenia - bulging disk in neck, etc.


Jennyo
Regular Member


Date Joined Feb 2006
Total Posts : 70
   Posted 3/23/2006 7:51 PM (GMT -7)   

only 100 times!!!!!! lol   tongue

well I can live with that!


 Therefore if any man is in Christ, he is a new creature; the old things passed away; behold, new things have come. (NASB)


DuvLady
Regular Member


Date Joined Feb 2006
Total Posts : 56
   Posted 3/23/2006 8:02 PM (GMT -7)   

he he!!! 

what's really bad is when you forget about that black hair for a few wks and all of a sudden one day you happen to catch a glimpse of it - and shock goes thru you - how long has THAT been there - how many people have seen that horrid long black hair - how could I have NOT seen it????

and then you immediately, without pause, pluck the nasty little bugger out!

(you gotta keep laughing - you know - it's the best medicine!!! besides our great physician, that is)


seizure disorder - chronic myofacia pain - B-12 anemia - severe neutropenia - bulging disk in neck, etc.


Jennyo
Regular Member


Date Joined Feb 2006
Total Posts : 70
   Posted 3/24/2006 6:20 AM (GMT -7)   
I will be keeping the tweezers close at hand!!!!! As long as I don't have to get in the mirror and shave right along side my husband - I'll be fine!!!!!!
Those little hairs are just enough to keep me laughing--Lord knows, if I started growing a beard that I'd be in tears.... That's probably why that's all we get--to keep us laughing!!!!!
 Therefore if any man is in Christ, he is a new creature; the old things passed away; behold, new things have come. (NASB)


DuvLady
Regular Member


Date Joined Feb 2006
Total Posts : 56
   Posted 3/25/2006 9:29 PM (GMT -7)   

so so true. we have to be able to laugh at ourselves!!!

i made some crazy mistake at work the other day, and my boss was asking something about it, i look him in the eye, and say " do you know how much medication i'm on?" in a laughing type of way - it totally broke the ice. and he ended up admitting that he makes those kind of mistakes and he's not on anything. (even though we don't always like talking about it with people who's not going thru the same thing - once in a while it's ok to remind them...)

talking about laughing... we went to see "the shaggy dog" tonight. and i laughed so hard - laughing really does make you feel better!!!

 


seizure disorder - chronic myofacia pain - B-12 anemia - severe neutropenia - bulging disk in neck, etc.


Jennyo
Regular Member


Date Joined Feb 2006
Total Posts : 70
   Posted 4/1/2006 9:00 PM (GMT -7)   
DuvLady,
Hello!!!! I have not seen Shaggy Dog yet, however I just went to see Ice Age2 today...That was very funny...Even if I didn't think something was very funny---my 2yr old son who was sitting in my lap was cracking up, it was so darling....
Keep laughing tongue tongue tongue tongue tongue !!!!!!
******Jennifer
 Therefore if any man is in Christ, he is a new creature; the old things passed away; behold, new things have come. (NASB)
2Corinthians 5:17


DuvLady
Regular Member


Date Joined Feb 2006
Total Posts : 56
   Posted 4/3/2006 7:20 PM (GMT -7)   
Oh that's wonderful!
 
what a super age!!! I remember those kind of things with my boys....
seizure disorder - chronic myofacia pain - B-12 anemia - severe neutropenia - bulging disk in neck, etc.

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