'Jacksonian seizures'

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Uhura
Regular Member


Date Joined Nov 2005
Total Posts : 166
   Posted 2/27/2006 6:49 PM (GMT -7)   
Anyone familiar with them?  Have a good night!
 
Uhura

Oya
New Member


Date Joined Sep 2006
Total Posts : 2
   Posted 9/5/2006 2:10 PM (GMT -7)   
Hi Uhara,

I just joined the forum.

I have Jacksonian March seizures. They have only really come to greater recognition within the last five years or so.

Jacksonian March seizures start with convulsing in one part of the body, gradually progressing, or "marching" throughout the rest of the body. Consciousness is not lost until they get really bad, which is confusing to doctors and EMS workers who may assume you are faking or mentally ill because you still have a certain level of communication and awareness (although progressively diminishing)until it plays itself out.

Not fun. As I was in the process of losing consciousness I've heard panicked EMS workers say some of the dumbest things to each other as my breathing was arrested and blood pressure plummeted. "OH MY GOD!!! IS SHE GONNA DIE???"

Makes you wish you were already unconscious.

"You can't be having a seizure if you can respond to me."
The assumption was that I had to be on illegal drugs.

I have eleven different seizure types. One of the types I dread the most is Jacksonian (named for a Dr. Jackson who identified them).
It is a prolonged agony.

Oya

Uhura
Regular Member


Date Joined Nov 2005
Total Posts : 166
   Posted 9/6/2006 6:42 PM (GMT -7)   
Hi.
 
Mine are controlled by Lamictal now.  Mine were only with one arm and medicine stopped them from continuing on to the rest of the body.  I have been told they are non-epileptic seizures (implying panic attacks) but I know my body and how I react emotionally and I believe they are seizures.  Oh well, they're controlled now and that's what I need to focus on.  Can't live in fear that they'll come back...not a good thing for anyone to do.
 
Eleven seizure types!  Wow!  How many are there total?
 
ER...Hate the implications you hear there but can't not go  because of that. 
 
I pray my seizures will stay controlled.  How often are your seizures?
 
Uhura

Pei.Rose
New Member


Date Joined Dec 2006
Total Posts : 1
   Posted 12/29/2006 1:51 PM (GMT -7)   
Uhura
This is my first time on this site and am very glad to have found it. I have just been clinically diagnosed with "Jacksonian Seizures". I have many sypmtoms, which have changed over time. Maybe someone can tell me more also, but here is what happend the first time. My head whirled, left hand dropped from steering wheel, hand clenched and felt pulling and crawling feeling go up to my elbow. Left shoulder shook as did the rest of my left side. My eyes seemed to have crossed for a moment. Felt really lightheaded and when walking, felt like my feet weren't touching the ground.
Since the first attack, my symptoms have gotten much worse and doctors are having a hard time with it. I will have the numbness start at the top of the left side of my head and march down the whole left side of my body. My left side will get heavy feeling and my functions like speaking, eyes blinking, and movements will slow down to almost a stop. I will go into somewhat of a trace and stare in space. left side of face will droop. I can see and hear, but can only mumble a response. My eyes will glaze over. Will have tingly sensations on left side etc.. Sorry this is so long. This has progessed even futher to my right side. I am very confused also. My eyes will now roll into my head.
I have had as many as 18 per day some lasting as long as ten minutes or so. Get very tired afterwards for a couple of hours.
All my tests came back negative, but I'm taking Tegretol, and Gabapentin. Seems to be helping somewhat.

Uhura
Regular Member


Date Joined Nov 2005
Total Posts : 166
   Posted 1/7/2007 11:50 AM (GMT -7)   

I wish mine were diagnosed as Jacksonian.  I think they are that.  I know that one time I had one during an EEG and the technician said it showed up, which tells me that not all of them are Non-Epileptic Seizures, as I had been told before.  They are controlled now by Lamictal but I that kind is still not diagnosed.  I've been told that the ones where I lose control of my arms but stay conscious are NES.  I have other kinds that are epileptic seizures.  Oh well, I'll live with it.

I haven't had any that match your description, but we know there are a lot of types of seizures. Hopefully someone here will have had experiences like yours. 

Uhura

 

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