This is my first time logging into this site, actually, the first time I ever post anything and share information and details. I thought that the least I could do is share the good news and how I'm controlling my seizures with everyone who has epilepsy. If it's old news to you, you can skip it, otherwise, I hope it makes a difference.
I have Temporal Lobe Epilepsy - had it since I was a kid, but officially diagnosed with it in my late teens (I'm 26 now), and attacks were getting worse with time. Currently taking TEGRETOL CR 400 - 1000mg a day.
There are several main methods I used for controlling seizures
1. DIET - THE MAIN FACTOR
- Drink a lot of water: I have a litre when I wake up, another before going to bed, and at least 2 throughout the day.
- Eat a lot of foods that increase blood flow in the body.
- Avoid all red meat: if I have red meat, even anything cooked with red meat, I suffer from several seizures a day until it's completely out of my system. Currently having chicken and sea food only. (Try eliminating all white meats as well and bring them back into your diet one at a time to make sure they don't cause attacks)
- Avoid additives like MSG
- Avoid Aspartame from diet drinks: drinking several diet drinks a day used to trigger attacks. Now I'm off of those completely.
- Avoid green beans
- Eat well: I have several small meals with light snacks throughout the day - instead of 1 or 2 main meals.
- Eat something sweet: I was always off carbs and sweets for weight control and not to gain weight, but was having a sometimes up to 4 seizures a day. Now, I'm back to carbs, and eat loads of chocolate :) and my sugar level is high enough.
- Reduce coffee and tea amounts. I've been off coffee and tea (switched to herbals) but if I have any, it's not more than one cup.
Alcohol: no more nights of getting totally wasted. If I have alcohol, I have a couple of drinks.
Chocolate: I was told that this causes attacks for some people (but thank God it doesn't cause any for me)
* Monitor your diet - a lot of food groups or items could trigger attacks. If you notice that, eliminate that from your diet for a while. Bring it back to your diet and monitor. If it still triggers attacks, eliminate completely.
* Supplements and Vitamins: Specific vitamins are ok for me. Multi vitamins I noticed could give me auras and trigger attacks. I stopped those completely. If I take vitamins, I go for specific ones and finish one course when needed.
- Keep the blood flowing in your system and exercise in any form.
3. STRESS AND ANGER
- When highly stressed, worried or depressed, these could cause attacks
4. LACK OF SLEEP AND FATIGUE
- If I don't get at least 6-7 hours of sleep and end up tired throughout the day, this could cause symptoms and auras, or even attacks.
The good news: following the above points worked for me. I noticed that I was not having attacks (dropped from daily to weekly to monthly) by following the above points, and reduced my medication dosage from 1200 to 1000, and went through two months without a single attack. I'm trying to control my attacks, reduce the medication, and spend the longest possible period without getting any. And God willing all goes well and I clear my head forever.
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