What are your aura's or triggers?
I'd like to try and keep this post going so new people can see it and know that they are not alone. Also, I'd like to start a post that encourages new people to add to it to post what they are going through. Then they won't need to search so many pages of newbies just to find out if they are normal.
What does everyone think? Should someone start a post saying "Newbies, read here and post here"?
I've had epilepsy since 1979. My "auras" are exactly like you described above ~ plus ~ I hear bongo drums (not kidding)
At first I would get them about once a month and then as I got older they became more frequent, now it seems to be every day.
I'm only 49 but when I was 47, It was affecting my job (office) and my employer forced me to take medical retirement.
It's better now with less stress and more sleep but I still get these auras once in a while.
Hello, I'm not really sure what my Aura is! I have Grand Mal seizures the only warning I get is maybe 30 seconds before I go into a full seizure. My tounge starts to go crazy and I feel like I can't breath. Then I pass out, and it takes me a good five minutes to get all my functions back! Sometimes I think I have an overwellming sense of fear but I think that's just me being paranoid! I slacked off on medication and had a partial facial seizure about two weeks ago after being seizure free for almost 4 years. Before that I was fine and didn't feel anything!
I get the same stuff that you have plus I also get the numb feeling in my LEFT side ONLY sometimes from my head to my toes. So NO your not alone at all!!! And yes I hate it. I also get ringing in my ears sometimes as well. At least I get this 100% of the time before a attack. I can drive now though but I havent from choice for 8 months now. My wife drives everywhere. My job I have for over 10 years fired me for having this at work a few months ago. Im on medical disability now and am only 38 years old, so Im really worried about my future. The part that makes me mad is Im a computer admin and had a great work history and was the only one in the dept. that had employee of the month awards and things like that. I think I was making more and that was the reason they fired me. But now my wife says to stay on disability and get cured (If thats posible) till I go back to work. Im here in San Diego, CA, USA.
Good luck all,FEN
Aura's are quite strange things. Both me and my mum suffer from epilepsy (I have been diagnosed about 5 years and my mum has had it for many more than that!) She often gets a bitter taste in her mouth before a seizure and a feeling that everything is getting closer (a bit like the world is shrinking.
But for any newbies out there, dont worry if you dont get an aura becuase not everyone does or can remember it. I have had epilepsy for 5 years and have never had an aura prior to a seizure. To start with, I thought it was the fact that I was new to epilepsy and that I wasnt paying attention (for want of a better phrase) but as iv'e come to live with it, I have found that im not actually missing anything because there is nothing there to miss!
There are of course triggers; mine is generally stress. The last seizure I had (Which resulted in me having to surrender my driving licence) was whilst I was moving house, (You dont normally get more stressed than that!) but it isnt always the same level of stress. Perhaps there are different types of stress? Thoughts and comments would be appreciated.
I completey understand your concern about flying. please check out the Epilepsy safety post. There is a section specifically about how to be safe while flying.