SLE, limited scleroderma, Sjogrens, Hashimoto's, seizure disorder, Raynauds, anemia
I know that this is 4 years after you posted your post, but I hope that you read this. Your story is almost identical to mine. I was a triathlete, then I ran a half marathon with menigitis but didn't know it. I have never been the same since. I stopped all sports, and I now suffer from severe migraines with seizures. I had an EEG done and it was normal, about a week ago I had seizures from 7pm till 1am and I don't remember a thing. I was finally taken to the ER at 1am when I "woke up" about 1:15am. They say my seizures are non ecileptic, which makes them emotional. That way they can blow me off. They don't put together my headaches with the seizures and that only frustrates me. I am on Topamax and that has helped. I was off of it for a month because I started a new job and we didn't have insurance yet. And when I did get back on the Topamax it was too late my migraines and seizures were in full force. I am also on a small dose of an antidepressant and imetrex shots. All of that is helping me so far.
I does get so frustrating that you can't get an answer about what is going on. You aren't making this up, and it makes you feel so embarrassed. Plus you feel bad for the people around you because they are scared. It is a vicious circle, and the stress of it makes the headaches even works. My advice to you is ask your doctor what is causing these headaches. Don't ever give up. These conditions you are having are real. And try to keep living your life.